Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Tired

june27

Recommended Posts

june27 Apprentice
june27
Posted

I have been feeling really tired lately. I have been gluten/dairy free for 6 months now, but I just don't seem to have much motivation. I am not so sluggish that I can not function, but I am more than happy to spend my days reading on the couch (I used to enjoy this occasionally, but now it seems like I want to do it all of the time). I have also been needing a lot of sleep lately. My doctor ordered a batch of blood tests to check B12, iron/ferritin and thyroid - I am told they they are all within normal range, but that it looks like I might be leaning toward anemia. The doctor is concerned about folate/folic acid (which was not tested).

I was just curious if anyone has had similar experiences, and if being tired is just part of the healing process.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Dugudugu Rookie
Dugudugu
Posted

Same story overhere!

I've been 2 months gluten free, and more tired than ever. GP thinks I have 'chronic tired disease' afteral as there has been no progress on me. I feel he cave up on me. . My B12 levels are okay now. In the meantime I am stuck behind my computer watching movies and doing volunteer work, because that costs me the less energy.

nvsmom Community Regular
nvsmom
Posted

I am tired too but it's been recently "discovered" that my thyroid isn't working well through a hight TSH test. I've suspected thyroid problems in myself off and on for years, and I had my TSH tested a few times but they came back a slightly high normal so I let it go since my symptoms aren't extreme. I now know that TSH levela can vary WILDLY in a very short time period so my thyroid could have been starting to "malfunction" but that test didn't show it. Ask for other thyroid tests (T3 and T4) since many celiacs have hashimoto's disease (hypothyroidism).

Also, I had ITP, which is a autoimmune blood disease where your white blood cells attack and kill your (clotting) platelets, so patients can get quite anemic. It could be something else to check.

Best of luck. I hope you find answers soon.

cahill Collaborator
cahill
Posted

Did he check your vitamin D levels ?

LauraB0927 Apprentice
LauraB0927
Posted

I'm three (almost four) months into going gluten free and I was extremely tired, especially around 1:00pm right after I had my lunch. I fell asleep at my desk a few times and was totally embarrassed when a coworker found me. Vitamins levels are fine, thyroid/TSH levels fine, no explainable cause. Still not sure what the issue is but I can definitely understand your frustration. Maybe we're just still healing? Possible CC?

frieze Community Regular
frieze
Posted

I'm three (almost four) months into going gluten free and I was extremely tired, especially around 1:00pm right after I had my lunch. I fell asleep at my desk a few times and was totally embarrassed when a coworker found me. Vitamins levels are fine, thyroid/TSH levels fine, no explainable cause. Still not sure what the issue is but I can definitely understand your frustration. Maybe we're just still healing? Possible CC?

Laura, your specific instance sounds like blood sugar problem. Have you gone to gluten free bread/grain products? They tend to be higher in carbs and lower in protein. Try a no-grain lunch and see if that fixes your problem.

To the others, quantitative B12 testing, for the most part, isn't worth the effort, and the "norms" are too low. Either get MMA testing, or just supplement B12 and see how it goes...because gluten free foods aren't supplemented with folate, that may be an issue to check/watch as well. good luck

june27 Apprentice
june27
Posted
  • Author

@nvsmom - they checked T3 and T4 as well, and both came back "normal"

@a1956chill - no they did not check Vit D. i'll have to ask for that next time...

@frieze - what is MMA testing? my B12 came back as 335 - but they didn't include the desired range. from what i have seen online, this seems on the lower end of the scale, but it's hard to say without knowing if all tests have the same range...

i have been taking a multi-B for 6 days now. today is the first day that i am starting to feel like i have more energy, but i honestly think it is too soon to tell. i am certainly not full of vim and vigor, but i am actually motivated to cook dinner, and clean up the kitchen (the latter has been a big struggle these days).

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


frieze Community Regular
frieze
Posted

@nvsmom - they checked T3 and T4 as well, and both came back "normal"

@a1956chill - no they did not check Vit D. i'll have to ask for that next time...

@frieze - what is MMA testing? my B12 came back as 335 - but they didn't include the desired range. from what i have seen online, this seems on the lower end of the scale, but it's hard to say without knowing if all tests have the same range...

i have been taking a multi-B for 6 days now. today is the first day that i am starting to feel like i have more energy, but i honestly think it is too soon to tell. i am certainly not full of vim and vigor, but i am motivated to cook dinner, and clean up the kitchen (the latter has been a big struggle these days).

MMA is methylmalonic acid, if it is elevated, your B12 is deficient. 335 would read "normal" in the US, not in many other countries, ie Japan is over 500. Also, the older we are, the less accurate it becomes. It measures B12 analog (inactive substances) as well as active B12.

since you are potentially symptomatic, your level is too low. supplement with methylcobolamin, not cyanocobolamin. You may have to get that on line.do it on an empty stomach, even if you do the sublingual. good luck

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748
    Estee
    Newest Member
    Estee
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...