Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Q For Those Who Had/has Gerd As A Symptom Of Celiac

beebs

By beebs
in Coping with Celiac Disease

Recommended Posts

beebs Enthusiast
beebs
Posted

I had really bad GERD for ages, I was on medication for it but it didn't work. When I went gluten free it stopped, that day - no more GERD. It was awesome. Anyhow all of a sudden about 5 months ago the GERD came back really bad, I have it all the time now, even though I am on nexium. What has happened? Why did it just come back like that? Has anyone had anything similar?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


FruitEnthusiast Enthusiast
FruitEnthusiast
Posted

I had GERD for years before I lost weight, then it went away. I think the most important thing you can do is to sleep on a wedge pillow. You may be doing that already, but if not, I can't stress it enough. Medications are like a band-aid to treat the damage caused by the acid. To prevent the acid from entering your esophagus further, you need to be sleeping on an angle from the waist up. It feels awkward at first but you get used to it and I really like it. I still sleep on mine. Don't try raising the head of your mattress 6 inches like some doctors recommend. You'll be sliding down your mattress all night! I like the 10 inch wedge pillow best. Make sure it's firm so it will last a long time. Medical supply stores have them. It's worth the investment. You'll end up saving money on all the medication you won't have to buy.

You probably already know the list of foods to avoid for GERD.

Chad Sines Rising Star
Chad Sines
Posted

A good many GIs feel that GERD is also caused by intradbdominal pressure from a flora imbalance that causes excess fermentation (gas). I have noticed when I feel bloated my GERD is much more noticeable. Lower carb or the SCD diet can help starve the bacteria. As much as I try to reject it, I keep having to come back to both because the difference is very noticeable.

GottaSki Mentor
GottaSki
Posted

I agree with Chad - bacteria is part of the equation.

My son's GERD nearly disappeared during his first months gluten free. It slowly returned. Seems to be doing better since we've added daily probiotic - took several weeks before we noticed improvement.

ciamarie Rookie
ciamarie
Posted

I would also suggest to 1st double-check to make sure you're not being cc'd with gluten somehow. And 2nd double-check any newer items you've added to your diet, or double-check ingredients to make sure they're still safe. Sometimes companies change ingredients and something that used to be o.k. isn't anymore.

beebs Enthusiast
beebs
Posted
  • Author

There are a few different things that have been going on, I may or may not have a stomach ulcer (due to have an endo to see), I have put on some weight, and I have become very relaxed with regards to CC including eating gluten free pizzas from a normal pizza place.

But I'm going to see about the probiotic. And truthfully - if I am getting cc'd - then hopefully something will show up on the biopsy. I am undiagnosed due to a medical screw up, but the GI says that if the damage was bad enough he may still be able to see some damage even after 18 months. Hopefully he can.

I'll get onto the pillow and probiotics right away! Thanks!

cap6 Enthusiast
cap6
Posted

You may wsnt tocheck out taking liquid aloe. I take 4 oz 2x's per day and altho I am still taking prilosec I have been albe to cut down from two a day to only 1/2. I just buy the gallon jug of pure liquid (not gel) aloe at Walmart.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

Well, if it does turn out to be an ulcer, you can try some natural cures for it. DGL is really good for ulcers, mastic gum can also help. Take them both morning, noon and before bed. And don't stop until a month after the pain goes away.

pricklypear1971 Community Regular
pricklypear1971
Posted

There are a few different things that have been going on, I may or may not have a stomach ulcer (due to have an endo to see), I have put on some weight, and I have become very relaxed with regards to CC including eating gluten free pizzas from a normal pizza place.

But I'm going to see about the probiotic. And truthfully - if I am getting cc'd - then hopefully something will show up on the biopsy. I am undiagnosed due to a medical screw up, but the GI says that if the damage was bad enough he may still be able to see some damage even after 18 months. Hopefully he can.

I'll get onto the pillow and probiotics right away! Thanks!

I had refux/acid/GERD pretty bad in my late 20's. Pills didn't work. Then I managed it with meditation and it slowly went away after pregnancy.

Guess what started surfacing about 5 months ago (9 months gluten-free) 24 hours to the minute after cc/glutening????! Goes on for 2 weeks, apx. I manage it with careful meals, water. Now that I know what it is I'll use digestive enzymes and probiotics. Once in a blue moon I may use an acid reducer in the first day or so, so I don't burn my esophagus.

Ugh.

At least I know what was going on in my 20's (and earlier).

beebs Enthusiast
beebs
Posted
  • Author

Damn, prolly getting myself glutened maybe..

kittty Contributor
kittty
Posted

Are you under any more stress than usual? I used to have GERD, and medication didn't help me either, but it gradually went away when I finished grad school. It was mostly stress related.

beebs Enthusiast
beebs
Posted
  • Author

God yes Kitty, haha. But it is life stress, so nothing i can really change unfortunately!

dilettantesteph Collaborator
dilettantesteph
Posted

With my son and me, our symptoms went away, including GERD and came back again a few months gluten free. We cleaned up our diets by checking everything we were eating and symptoms went away and came back again in a few more months. This process repeated itself with our believing that we had become more sensitive to trace gluten and eliminating more possible traces, things made in shared facilities, etc. At this point, 5 years after diagnosis we eat mainly unprocessed foods only and I can't remember the last time I had GERD. I hope you get it figured out.

pricklypear1971 Community Regular
pricklypear1971
Posted

Damn, prolly getting myself glutened maybe..

Well, for me it's crystal clear. The only two times it's happened is 24 hours after eating out. Never 24 hours after only eating at home. I know for others it may not be so clear.

It took twice for me to figure it out, since prior to that I would get a headache/flu symptoms and a "rock" in my stomach.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    2. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    4. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,880
    • Most Online (within 30 mins)
      7,748
    Loveruss
    Newest Member
    Loveruss
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.