Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Whoa, Yes, I Am A Bit Overwhelmed


Javamom

Recommended Posts

Javamom Newbie

New member here. I do not have a celiac diagnosis. I have been gluten-free for about 2 weeks and it has made a big difference! However, the more I read, the more questions that I have.

Perhaps a few opinions would help? Here are my main concerns (so far) and questions.

Sandwich bread is a huge thing here. I am not able to bake right now, but I will get there. What is a good brand that my husband will enjoy too? He's going gluten-free with me (he may actually need it more than I do). We like whole wheat, the kids like the white stuff.

Stocking my pantry (once I get the chance to bake):

Should I invest in an All-Purpose gluten-free flour, AND also get some other flours for specific cooking applications (ex: nut flours, rice flours) and xanthan gum?

I know that with my time being at a premium, and my frustration level high, I need to have the right products. These are pricey items, so I have to choose well. I am not sure why this is my biggest question right now, other than it will help me to know how to proceed to feed the family.

Thank bunches!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

For bread I like Udi's multigrain. Canyon Bake House San Juan Seven Grain is really really good too. It is more like those multi-grain breads in the supermarket with little nutty bits in it.

I don't want to put a damper on anything for you but I will tell you about my experience. When I first realized I had a problem with gluten I went out and bought all kinds of flours and gluten-free foods. I stocked up on hunt's spaghetti sauce and gluten-free pastas. I gave away every bit of gluten food in my kitchen and replaced them with gluten-free foods.

And THEN my corn intolerance hit. I had to give away all of the expensive gluten-free foods, and all of those spaghetti sauces. I have given away HUNDREDS of dollars worth of food!!

A LOT of us develop intolerances to other foods after being gluten-free for a while. It might well happen to you too, so I would recommend going slowly. Only buy what you will be using within a week. That way you won't waste money.

Usually after the gut heals, people get back a lot of the foods they lost but it takes time. I lost potatoes and corn but have gotten both back, 14 months later.

But I have learned my lesson. I won't go buying a ten pound bag of potatoes. I get just enough for the week, just in case. :)

eatmeat4good Enthusiast

Yes, I agree with Bartful. Don't buy a lot of things until you know you can tolerate them. I would suggest you find a recipe you want to try and then buy what you need for that recipe and that way you won't be investing in a lot of stuff you don't really like. For example, I hate bean flours. Any mix with bean flour in it got donated or trashed outright regardless of how expensive it was. I developed the sensitivity to Soy shortly after getting rid of gluten, so out went all the flours and gluten free products with Soy! I outright trashed them after I read how bad soy is for people.

I would suggest Udi's Multi-grain for you and hubby and Rudy's gluten free bread for the kids. It's softer and more like white bread in texture. The other thing to do is buy one mix for example Pamela's, but there are others and see if you like the things it makes.

Be careful because Rudy's also makes gluten bread.

I didn't feel much like baking so I stuck with Elana's Pantry for recipes because her recipes are very simple and good and they don't take a thousand kinds of flour or ingredients. That got me by just fine.

Good luck with all of it. It can be overwhelming at first. But try to keep it simple and try just a few things at a time. You can always stock up when you know you really like something and can tolerate it.

mamaw Community Regular

Would you mind telling why you decided to go gluten-free ? You said you have no Dx's............

If you live near a Whole Foods they have a new breas from the UK called Liv Well, it comes in multi grain & white. 10% off of a case of 6.....I'm a gluten-free tester & a suuport group leader & this is one of the best breads.. There are other good ones as mentioned, another is Three Bakers...

Breads by Anna is excellent a whole grain type....

Are your children gluten-free too?

justlisa Apprentice

Would you mind telling why you decided to go gluten-free ? You said you have no Dx's............

If you live near a Whole Foods they have a new breas from the UK called Liv Well, it comes in multi grain & white. 10% off of a case of 6.....I'm a gluten-free tester & a suuport group leader & this is one of the best breads.. There are other good ones as mentioned, another is Three Bakers...

Breads by Anna is excellent a whole grain type....

Are your children gluten-free too?

I was quite impressed with Three Bakers.... The only problem that I have is that I can't get individual slices from the frozen loaf (have to thaw the whole thing). We just don't eat enough bread to make it worthwhile...so most of it went in the trash... :(

That's the biggest reason why I've been thinking of baking my own bread...so I can freeze it in smaller amounts...

But, again, the Three Bakers was quite good... :)

Javamom Newbie

Would you mind telling why you decided to go gluten-free ? You said you have no Dx's............

If you live near a Whole Foods they have a new breas from the UK called Liv Well, it comes in multi grain & white. 10% off of a case of 6.....I'm a gluten-free tester & a suuport group leader & this is one of the best breads.. There are other good ones as mentioned, another is Three Bakers...

Breads by Anna is excellent a whole grain type....

Are your children gluten-free too?

I have had to figure this out for myself. I have battled GERD for almost a decade. My doctor has tried different meds with varying success. I even lost a lot of weight over the course of a year, but then steadily gained it all back over the next three. The foods that worked then, are not working now. I asked my doctor on more than one occasion if it were possible that I am just allergic to food. It seemed like everything I ate gave me issues.

It all came to a head in the last few months. The GERD got even worse, I couldn't sleep at night because I was coughing up food, and I developed diagnosed sleep apnea. I was falling asleep as soon as I came home from work, but had a family to care for. Faced with this new hurdle, I decided to investigate my allergy suspicions. The more I searched, the more I began to suspect gluten. I should add that my oldest sister went gluten-free 10 years ago.

Out of desperation, I decided to chuck the gluten from my diet and see what would happen. It was almost immediate. My nightly battle with reflux ended. I could sleep and not wake up choking on food that my body didn't like. I found out that some of the things that I had blamed the GERD on were not really the culprit. My husband says that I am not tossing and turning as much. I am not 100% better yet, as I think my gut needs to heal. I think that I need to get on a probiotic. I am having some stomach aches in the morning, but I am learning that may be the apnea talking.

It is possible that I may have more than one food allergy. I guess that I will figure that out in due time.

mamaw Community Regular

Many of us have allergies to food & other things as well as celiac.. Nightshades would be a great example... I understand why you took matters into your own hands also very coomon. These docs sometimes just don't get it or even care... I'm so glad that being gluten-free has helped you....

Just remember that CC can also play a big part too, so make sure you check all your kitchen gadgets....animal foods as well....

If your kids are gluten-free I would maybe try to get them tested before school as school's usually want documentation of an illness... if they are home schooled then no worries they will get gluten-free for lunch!!!Being tested would mean they need to be eating wheat/ gluten or the test would not be accurate ....

Note the the other poster (sorry , I forget who commented on three bakers bread)... If you let the bread set out for a few minutes & use a butter knife to separate the pieces it comes apart fairly easy .......I wish these bakers/vendors would put parchments sheets between the slices.. Not all of us use a loaf of bread at a time....when I make homemade bread I always use a paper in between slices.....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Javamom Newbie

Many of us have allergies to food & other things as well as celiac.. Nightshades would be a great example... I understand why you took matters into your own hands also very coomon. These docs sometimes just don't get it or even care... I'm so glad that being gluten-free has helped you....

Just remember that CC can also play a big part too, so make sure you check all your kitchen gadgets....animal foods as well....

If your kids are gluten-free I would maybe try to get them tested before school as school's usually want documentation of an illness... if they are home schooled then no worries they will get gluten-free for lunch!!!Being tested would mean they need to be eating wheat/ gluten or the test would not be accurate ....

Note the the other poster (sorry , I forget who commented on three bakers bread)... If you let the bread set out for a few minutes & use a butter knife to separate the pieces it comes apart fairly easy .......I wish these bakers/vendors would put parchments sheets between the slices.. Not all of us use a loaf of bread at a time....when I make homemade bread I always use a paper in between slices.....

Thank you. My kids seem to do OK with gluten, so I am not going to force them to be gluten-free. If problems arise, we can revisit that. We are segregating the kitchen, and whatnot. Sometimes the kids want to try the gluten-free stuff, so they may just fall into naturally because that is what is going to be around the house.

I suppose that I should see if there are any celiac docs in town? My husband and I have pretty much given up hope on our DO, for various reasons.

GFinDC Veteran

Hi,

You can also use corn tortillas instead of bread. Look for tortillas with minimal ingredients, and you can check their gltuen free status with the company or by doing a search on line. Mission brand is a good one. But I have tried others also and had no problems. There are also rice tortillas from a couple of companies that are cheaper than the bread.

I experimented with making gluten-free pancakes as bread for a little while. Works ok.

Rudi's is making tortillas now also.

Rudi's facebook promo for their tortillas:

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,554
    • Most Online (within 30 mins)
      7,748

    Becky 0163
    Newest Member
    Becky 0163
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.