Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seeing Dermatologist Again Soon

Alwayssomething

By Alwayssomething
in Dermatitis Herpetiformis

Recommended Posts

Alwayssomething Contributor
Alwayssomething
Posted

I am going to my dermatologist in a couple days for a rash that doesn't appear to be DH like my other rashes have been. I have been gluten free for almost a year (October will be one year) if I understand things correctly I can not be tested for DH becuase it will not be accurate since I have been gluten free, is this information correct?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


squirmingitch Veteran
squirmingitch
Posted

Yes, you are correct that the biopsy for dh will be negative having been so long gluten-free. However, IF you have been getting regular cross contamination then it could prove to be positive. But if that were happening then you would surely be having dh present.

Alwayssomething Contributor
Alwayssomething
Posted
  • Author

Since seeing your suggestion for eliminating Iodine as well I have been symptom free. Yahoo!!! How long do you suggest before I add it back a little at a time?

eatmeat4good Enthusiast
eatmeat4good
Posted

I have DH too and did not heal until I got the iodine as minimal as I possibly could. That is a very limiting diet so I "tested" it every month or so to see if I could add it back. For me, it was several months AFTER the healing before I could tolerate iodine without breaking out. The outbreaks were minor compared to a gluten outbreak, but I would suggest you wait at least a couple of months if you are sensitive to iodine. But if you are like me you will test it more often to see if you can vary your diet a little more. ;)I can use it now with no problem. My endocrinologist said it was ok to limit iodine for a few months until the sores healed so that is what I did.

pricklypear1971 Community Regular
pricklypear1971
Posted

I was gluten-free 2 months before figuring out iodone. Did no iodine 2 weeks and healed. Started with adding back half n half for coffee. I added milk products back first since they were hard to sub. I went slow. Big itchies for me were seaweed products and egg yolks. It took me about 3 months to be able to handle a "load" like a 2 egg omelet, half n half, and asparagus in the same day. And I didn't do it 2 days in a row:). I got an outbreak at about 2 1/2 months over thanksgiving. Somehow I managed to come up with a very iodine rich menu, then proceeded to eat it for 2 days. It got me.

squirmingitch Veteran
squirmingitch
Posted

I agree with eatmeat & Prickly. You just have to test it every once in a while & see where you stand. From what I've read of others reporting on here it seems that seafood is the biggest hurdle for iodine though. I'm guessing that's the last thing we will all be able to add back in our diets for those of us who have the iodine "connection".

eatmeat4good Enthusiast
eatmeat4good
Posted

Oh yeah, I still don't do seafood due to the iodine. I'm chicken to try it. Did have shrimp over New Year's and it did a real number on my DH, so I think I may be "all done" with seafood, but I handle milk products and eggs now with no problems.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

Seafood, ok shrimp, was actually ok for me. I could even eat a bit of sashimi... I would make that my "iodine of the day" but still...I could do both around 2 months.

But seaweed, carageenan. Ut uh. It was my tipping point. And egg yolks. I think potato skins got me, too. Asparagus was a noticeable reaction too.

Everyone is different.

squirmingitch Veteran
squirmingitch
Posted

I like being an individual human being but sometimes I wish we were all clones so we could have a nice neat little rule book we could follow --- one size fits all sort of thing. Would make dh a lot easier to deal with!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,995
    • Most Online (within 30 mins)
      7,748
    Karen Bloom-McElwain
    Newest Member
    Karen Bloom-McElwain
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Treen
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Treen · Posted

      Wow. Okay. I’m definitely going with private testing. And since my sister was diagnosed just last month, I’ll have her as a great resource. I’m otherwise in excellent health for a 60 year old woman. No diabetes, normal blood pressure and cholesterol levels. I work out regularly, although I’m too thin because I’m afraid of food. I appreciate both of your helpful, informative insights - Scott Adams and @plumbago.  I’ll let you know the results of my panel (giving blood sample on Wednesday) here on this thread. 
    • Scott Adams
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Scott Adams · Posted

      Celiac disease was considered a pre-existing condition that affected costs before the ACA, and I was paying life insurance premiums at age 45 that a 70 year old would have to pay because of it (this was back when it was my only diagnosis--not that case now).  I don't disagree with @plumbago's approach here either, but just keep in mind, it will be on your PERMANENT RECORD!😉 On top of this, a majority of job applications that I've see in the past couple or years include "celiac disease" as a pre-existing condition that the employer requires you to disclose--do you have the same shot at the job if you say yes?:  
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Treen, I'm not sure I totally understand, but if I were you, while you still can, get your doctor to run the celiac blood test panel (the complete one) now, and if any of those tests turn out to be positive, get him or her to order you an endoscopy with biopsy. Do this while you still have insurance that will cover the cost! If it turns out to be positive, it seems your worry is that you would not then be able to get health insurance after 2025 because celiac, you say, is a pre-existing condition? Being in the state (I am from there, btw), you no doubt have observed the rate of metabolic disease in the population, conditions that are far more emblazoned in neon lights that say "pre-existing!" than Celiac, I would think. Meaning, it's quite likely that a near-majority would have pre-existing conditions. You might not even be denied. If I were you I'd reach out to either UAB (below) or the Alabama celiac facebook group with your concerns, and even research the topic - was Celiac considered a pre-existing condition before ACA? I think it was, but at any rate, maybe get the local perspective. The alternative I suppose is to wait to get tested, as you indeed say, until after you have new insurance. Not a bad strategy (I don't think it's really dishonest, but that's just me), but personally I like to have it all on the record so we're all on the same page. At any rate, if your fears bear out, a whole LOT of us are in a bunch of trouble, no??  UAB Digestive Health Center https://www.uabmedicine.org/medical-professionals/clinical-services/digestive-health-center/celiac-disease/
    • Scott Adams
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Scott Adams · Posted

      I personally don't believe you have an obligation to disclose such a diagnosis with your doctor or insurance company, especially if a health insurance company can use this information against you for the rest of your life--and yes, it does look like we may be headed back a time a place where pre-existing conditions could affect the cost and ability to get health insurance--but that remains to be seen. If we were talking about a congenital heart condition I might offer different advice, but for celiac disease where the only treatment is a gluten-free diet and there is no subsidy for gluten-free food costs in the USA, it seems reasonable for you to go with more privacy regarding your test--just confirm with the company that your results will ALWAYS be private (i.e. see 23andMe news--their data has or will be auctioned off in bankruptcy proceedings). 
    • Treen
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Treen · Posted

      I’m just worried about pre-existing conditions and my imminent loss of insurance. I’m self-employed. Finding insurance outside the ACA marketplace in Alabama is almost impossible even when you’re healthy. I still have 5 years before I’m eligible for Medicare. There is no treatment for Celiac except gluten avoidance. If Celiac disease becomes part of my medical history — even though the ‘treatment’ (gluten avoidance) is ‘free’ (only I can treat myself and it costs my insurance nothing), I might find myself uninsured if something like cancer arises in the next 5 years. 
×
×
  • Create New...