Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Problems W/skin


mandigirl1

Recommended Posts

mandigirl1 Enthusiast

Hello!!!!

I am broken out very badly on my checks (acne) and I get cyst-like erruptions out of nowhere. A big, red, angry pimple appears from nowhere....for example, the tip of my nose!!!!!!!! :angry:

I see a dermatologist and do get creams--they dont work.

I also break out on my back and a little bit on my chest. Plus, my nails are so short, damaged and brittle that it scares me!! My hair also......went from curly/wavy to terrible, terrible frizz! I do use a flatiron though. Im noticing my hair is also thinning out, more than ever.

What might cause this? Is it celiac disease related? Or DH????

Does anyone else have this problem???

Any feedback would be appreciated!

:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I've had some of the skin problem you describe (and I had DH). The skin thing you have does not sound like DH.

The hair and nail thing can be gluten related or something else. Are you gluten-free?

richard

jams Explorer
Hello!!!!

I am broken out very badly on my checks (acne) and I get cyst-like erruptions out of nowhere. A big, red, angry pimple appears from nowhere....for example, the tip of my nose!!!!!!!!  :angry:

I see a dermatologist and do get creams--they dont work.

I also break out on my back and a little bit on my chest. Plus, my nails are so short, damaged and brittle that it scares me!! My hair also......went from curly/wavy to terrible, terrible frizz! I do use a flatiron though. Im noticing my hair is also thinning out, more than ever.

What might cause this? Is it celiac disease related? Or DH????

Does anyone else have this problem???

Any feedback would be appreciated!

:)

<{POST_SNAPBACK}>

I break out a lot when I eat gluten. They get pretty yucky. I went to the dr before celiacs and they said it was rosatia (spelling.. sorry!). My nails were also very brittle.

Now, gluten-free, I have a clear face (except for when I oops) and my nails are hard to cut even with a clippers! I tried to bite them this past weekend at my son's soccer game and I couldn't because they were so hard!!

Are you gluten-free and if so, are you sure you are not slipping up anywhere? Things such as toothpaste, chapstick, soaps, small altoids :unsure: ?

Rachel--24 Collaborator

I've been getting bumps on my face since I went gluten-free and accidently get glutened.

I'm not sure what they are but I got them 3 years ago when I first got sick and then nothing for a couple years until now that I've gone gluten-free. I was also dx'd with Rosacea back then but I don't really have it.

I don't think they are pimples cuz they arent like any pimple I've seen before and they also stay for several weeks. They also usually have a twin on the other side of my face so I don't know if it might be DH. Sometimes they are in small clusters on each side but they hardly itch at all so I don't know if they are weird pimples or DH.

mandigirl1 Enthusiast

Yes, as far as I'm aware, I'm completely gluten-free, for 7 years now. However, I suspect I am getting glutened all the time. Maybe Im too risky, because Ive had celiac disease for a while, but I try to "be like everyone else" and eat in restaurants where there may or may not be contamination. I try to be very careful though....even my family/boyfriend. "jumps right in" and go on and on telling the waiter my whole story!!!! I get so embarrased, even though they mean well.

I used to eat such bland, tasteless food for the first few years of having celiac disease. Later on, I was way more lenient. Maybe now Im still too lenient. I had a boyfriend doctor who gave me "permission" to ease up alittle, dont be so paranoid. What this basically meant was: After not having a hot dog from the BBQ in so many years, I followed his advice and tried it. I was fine. (I also checked the label). I never took chances!!!!. Thanks to him, he opened up a whole new world for me and food -----gluten-free food!!!! So now, I'll enjoy bacon or frozen yogurt or tuna from a can, etc....and not just the steamed chicken and broccoli, or salad w/no dressing.

What my point is in saying all this is that:

Can CDrs ever be completely free of Gluten???? Im beginning to think No, its just impossible. You cant take evrey measure, every time to protect yourself. Its just everywhere. <_<

Oh, and by the way, even if you eat gluten-free totally in a diner, for example, how well are the utensils and cookware cleaned in the washing machine? Are YOU back there? #1 and #2 what if it isnt 100% sterilized? Obviously this is a risk when eating food off the grill, counter, same pans, etc.

Getting back to the acne (cystic), I think it could be celiac disease related. If that is the case, and I get this all the time, in the past year, then Im being glutened for sure.

:o:(

Corrine Rookie

My husband gets these cyst like things as well. They are horribly ichy and he scratches them until they bleed and then they don't itch anymore. Then he has these ugly scabs. The dermetologist said it wasn't DH but I suspected it was. In June he consented to going gluten-free. He did have a blood test that came back negative so we're going this route. He says he doesn't feel any different but I haven't noticed any new cysts.

laurie222 Newbie

[ Plus, my nails are so short, damaged and brittle that it scares me!! My hair also......went from curly/wavy to terrible, terrible frizz! I do use a flatiron though. Im noticing my hair is also thinning out, more than ever.

What might cause this? Is it celiac disease related? Or DH????

Does anyone else have this problem???

Any feedback would be appreciated!

:)

<{POST_SNAPBACK}>


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



laurie222 Newbie

Seven years for me and I don't think you are ever going to be totally free. Especially if you ever eat out or anywhere other than your house. Always a calculated risk.

Yes, as far as I'm aware, I'm completely gluten-free, for 7 years now. However, I suspect I am getting glutened all the time. Maybe Im too risky, because Ive had celiac disease for a while, but I try to "be like everyone else" and eat in restaurants where there may or may not be contamination. I try to be very careful though....even my family/boyfriend. "jumps right in" and go on and on telling the waiter my whole story!!!! I get so embarrased, even though they mean well.

I used to eat such bland, tasteless food for the first few years of having celiac disease. Later on, I was way more lenient. Maybe now Im still too lenient. I had a boyfriend doctor who gave me "permission" to ease up alittle, dont be so paranoid. What this basically meant was:  After not having a hot dog from the BBQ in so many years, I followed his advice and tried it. I was fine. (I also checked the label). I never took chances!!!!. Thanks to him, he opened up a whole new world for me and food -----gluten-free food!!!!  So now, I'll enjoy bacon or frozen yogurt or tuna from a can, etc....and not just the steamed chicken and broccoli, or salad w/no dressing.

What my point is in saying all this is that:

Can CDrs ever be completely free of Gluten???? Im beginning to think No, its just impossible. You cant take evrey measure, every time to protect yourself. Its just everywhere.  <_<

Oh, and by the way, even if you eat gluten-free totally in a diner, for example, how well are the utensils and cookware cleaned in the washing machine? Are YOU back there? #1 and #2 what if it isnt 100% sterilized?  Obviously this is a risk when eating food off the grill, counter, same pans, etc.

Getting back to the acne (cystic), I think it could be celiac disease related. If that is the case, and I get this all the time, in the past year, then Im being glutened for sure.

:o  :(

<{POST_SNAPBACK}>

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.