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Got Glutened-Need Help

gluten-is-kryptonite

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gluten-is-kryptonite Apprentice
gluten-is-kryptonite
Posted

Hi everyone

I was diagnosed with Celiac disease 4 months ago. This is my first post here. It took about a year to get an accurate diagnosis and it has been life changing to say the least. I have never felt better in my whole life. However a few days ago I decided since I had been doing so well (VERY strict gluten free and dairy free diet)- wnet a full month with no symptoms- that it would ok to have french fries at a local restaurant. I figured that that since they are only potatoes with no breading it should be fine. I didn't think I would react to the cross contamination of the oil in the deep fryer that is shared with all sorts of gluten laden items.

I knew immediately I was glutened when we got home- headed right to the toilet for the big D word. Then the next few days all my symptoms have returned. Leaky gut type symptoms after eating and just in general. Incredible flu like fatigue and sleepiness, whole body muscle fatigue, brain fog, bad mood, no energy to exercise etc, not to mention a constant low grade stomach ache. I have not been able to get any work done this week and have left work early to sleep. Been sleeping a ton.

What do people do to speed up the clearing of gluten? I can't take this fatigue. Is there a supplement you take? I am on glutamine, probiotics and pancreatic enzymes. Really feeling desperate and just want to feel good again.

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shadowicewolf Proficient
shadowicewolf
Posted

Water, water, water, and water. There is no real way to speed it up.

kittty Contributor
kittty
Posted

A co-worker said that chia seeds can help clear up the GI issues after a glutening, but I haven't tried it out yet.

GottaSki Mentor
GottaSki
Posted

Welcome! Love your screen name - my kids have called gluten "mom's kryptonite" since I was newly diagnosed - about the time I had my first experience with CC at a restaurant.

Sorry you are feeling poorly - there really is no way to speed it along besides what you are doing already - ginger root can sooth the stomach issues and lots of water is always a good choice - I've never found anything to help with the flu like symptoms.

Oh - limit the gluten-free processed foods as they can be hard on an upset system. Homemade chicken/vegie soup is our favorite healing food around here.

cyberprof Enthusiast
cyberprof
Posted

Sorry about the glutening...happens to us all I think.

I drink lots of hot peppermint tea, which really helps. Water is important, because a lot of water is lost with Big D, so tea is a good way to get water. The tea is soothing and mint is an herbal remedy for bad stomachs from way back in medieval times. The only thing is that I've heard if you have heartburn, mint makes it worse.

Also, after the initial Big D, I take a couple doses of Pepto-bismal. It soothes my stomach and makes the episode last a shorter time, or at least that's my experience, and was originally recommended to me by long-time member Ravenwoodglass.

Some people like ginger tea (I don't like ginger) but that is another old fashioned remedy. If you're on the go, you could drink ginger ale.

ravenwoodglass Mentor
ravenwoodglass
Posted

While there are things that can help the symptoms, as others have mentioned, I don't think there is any way to speed those antibodies away. I'm so sorry you are feeling so bad right now, it will pass but the time it takes to pass varies. I find Cream of Buckwheat cereal to be soothing to my tummy and the Pepto Bismal liquid helps my stomach pain. For me it doesn't help with the D but then I want everything out asap anyway. However if you do need to leave home and have D immodium can be quite effective at stopping it.

Rest as much as you can and hopefully you will be feeling better before too long. Don't beat yourself up over your mistake. We all have made them. Even some of us who have been gluten free for years sometimes slip up. I did myself a couple of weeks ago and am just now starting to feel like myself again.

kristenloeh Community Regular
kristenloeh
Posted

No matter what you do, the gluten will be in your system for a couple of weeks. All you can do is help ease the symptoms. A lot of rest and a lot of fluids. I take the vitamin supplement Celiact, so even when I do get glutened somehow, my symptoms aren't NEARLY as bad as they were before hand. Feel better and be careful!

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luvrdeo Apprentice
luvrdeo
Posted

I got glutened a little over a week ago...I reacted instantly. I keep reading "rest and fluids"...my question is, I work typically a 10 hour day (which I hate), and the last few nights I've had things going on after work. By the time I get home I'm exhausted (been gluten-free for almost a month now). Today, I feel HORRIBLE...massive headache, extreme fatigue, just bad all around. Does this all go back to the glutening, or am I still adjusting to going gluten free? My family is worried because I've been in such horrible shape since going off gluten...

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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