Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Normal?


AfterAll

Recommended Posts

AfterAll Apprentice

to have a hard time adjusting to having Celiacs on an emotional level? I feel like I am almost in mourning sometimes. I never got to say goodbye to my favorite foods before cutting them out forever. Don't get me wrong... I am living my life, and most of the time I am fine, but sometimes I just don't want to be "different"... I want to be me, just a version of me that is more like everyone else.

I hate that my dietary needs and restrictions are constantly a topic of conversation among friends, family, and coworkers; that I need to think and plan ahead no matter where I go or what I do; and that sometimes if I don't plan ahead, I end up eating nothing and pretending that I am fine with it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Yes, it is normal. Grief or mourning is a normal reaction to the diagnosis. You will move through the stages. You seem to currently be at the anger stage. You will reach acceptance and recovery. It will take time.

GottaSki Mentor

Welcome AfterAll!

Yes, what you are feeling is completely natural. It is important to give yourself time to adjust. Time does makes it easier - time allows those around us to adjust, eventually your diet will not be the focus of conversation - the amount of time differs for everyone. While checking every label never ends it does become second nature and far less time consuming.

Hang in there - we've all gone thru it so feel free to come here to vent, ask questions and find some helpful hints to shorten the duration of transition frustration!

shadowicewolf Proficient

Very, but you'll find replacements or gluten free items that you can eat.

gfcolorado Newbie

It's totally normal and it does get better. For me, the first year was really hard. I wanted to eat everything that I couldn't eat. And the first of everything is hard....first dinner party, first vacation, first Thanksgiving. But, it does get easier and I really feel fortunate that I can control my health through my diet. I have several friends with cancer and I look at what they have to go through. It also has made my life more interesting. I have tried restaurants that I never would have gone too and when I travel I get to see areas I would never have gone to because they have a #gluten-free restaurant.

Another important thing is to always have emergency food with you. And eat before you go to parties so you don't get sad when you can't eat anything...and then you are pleasantly surprised if you can.

It's an adjustment but it gets easier! Good luck!

flowerqueen Community Regular

I agree, it's completely normal. Having said that, things do get better as you learn to adjust. I have adopted the 'attitude of gratitude' though, it makes me appreciate what I have got and not what I don't have. It's probably done me a favour, as I look very carefully at what I am eating now, and my diet has improved immensely - I didn't realise how much I'd let my diet 'slide' until I had to examine everything I ate. I eat food mainly prepared from scratch now and make healthful choices. Eleven months in and I still can't tolerate dairy and a lot of sugar but I'd much rather be healthy than indulgent, even if I have to remind myself of that fact ;) It will get better with time.

Celiac Mindwarp Community Regular

I am still doing anger and denial (though still gluten-free!!!) fairly regularly.

Seeing folks here who have got through it gives me hope though.

Good luck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AfterAll Apprentice

Thanks everyone! I wouldn't say that I am angry- anger is a strong word. I am just annoyed, haha.

I am also adjusting to people saying to me "My God, what DO YOU eat?"..."You mean you can't eat bread? I'd kill myself"... and the blank stare that ensues afterward when I am trying to contemplate what to say in response. :)

GottaSki Mentor

I am also adjusting to people saying to me "My God, what DO YOU eat?"..."You mean you can't eat bread? I'd kill myself"... and the blank stare that ensues afterward when I am trying to contemplate what to say in response. :)

The adjustment will come. Soon you'll your answers will roll off your tongue with a smile on your face.

"Well, I eat wonderful foods and have replaced bread quite nicely - I feel much better and know I can manage a serious health condition with the food I eat rather than with harsh medications - I feel lucky, not punished - there really is no reason to feel sorry for me, but I do appreciate your concern"

edited to add - yes I actually say things like this all the time - but it didn't come easy, naturally or quickly - it all took time.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.