Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Please Help, Major Stomach Issues

MATT1983

By MATT1983
in Coping with Celiac Disease

Recommended Posts

MATT1983 Rookie
MATT1983
Posted

Hello all, It's been a while since I have posted or asked any questions. Recently my wife and I went on vacation. We went to see her family and they understand my gluten-free & DF Celiac Disease. But the problem is that they don't think about all the cross contamination that can occur. We came back home and the day we left I started to feel extremely sick. I'm thinking that there was some cc involved and the bad thing is that we were there for four days. Since being home i have had nothing but a horrible week. I have been very sick. Nothing but laying down. If I get up I get extremely sick. I mean bathroom runs and coming from both ends. If anything makes it threw without coming back up, it just comes out as quickly from the other end. I have only been able to eat Applesauce. That is the only thing I can Stomach. My Question is, Is this normal with celiac disease? Or can it be something else? I don't have insurance and cannot really afford to see the Doctor. I have tried to eat more, but only results with bathroom visits and major stomach bloating/stiff stomach, cramping, etc.

Thank you for anyone's help.

Matt

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

Do you have a fever?

And yes, from what i know, it is.

MATT1983 Rookie
MATT1983
Posted
  • Author

Do you have a fever?

And yes, from what i know, it is.

Not that I have seen/caught yet. My temperature is running between 96.8-97.3.

shadowicewolf Proficient
shadowicewolf
Posted

Keep an eye on it. If it is a virus (i got hit with a nasty one a couple of weeks ago) then it might show up.

As for the stomach issues, at this point i'd say stay on a BRAT diet (bannanas, rice, apple sauce, and toast (or maybe not lol)). Keep drinking water. If you can, i'd also suggest drinking somehting like gatoraide for the vitamins.

GottaSki Mentor
GottaSki
Posted

If you don't have a fever, I'd guess it is gluten related. I've had "flu" like symptoms many times...sometimes just a few days, worst was several weeks.

Rest, drink as much water as you can and eat any whole food your stomach can handle. Good old chicken broth soup with vegies is my go to when these "flu" symptoms hit.

Hope you are feeling better very soon.

LauraB0927 Apprentice
LauraB0927
Posted

I second the gatoraide suggestion - from all the vomiting and D you are having (combined with the fact that you aren't eating too much) you are probably losing tons of electrolytes which will make you feel even worse and do terrible things to your body. Make sure you are having some intake of sodium, potassium, magnesium, calcium, and phosphate. If you start to notice changes like confusion or altered states of consciousness, get to the emergency room ASAP - it means you lost too many electrolytes. Can you tolerate things like rice and chicken broth? They help me when I get glutened.....feel better!!

MATT1983 Rookie
MATT1983
Posted
  • Author

I haven't tried to incorporate much food because anything I do just does't make it. I will deff. try those suggestions though. I have continued to take all the vitamins the doctor did tell me to take. I take everything twice a day. I was happy to find out that the doctor was able to tell me what I had before my wife changed jobs. We had ins. at that time and he did all the test to make sure it was celiac disease. Blood test and stomach biopsies confirmed both. It's crazy how this disease can affect so much in our bodies. Thank You to all.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


pricklypear1971 Community Regular
pricklypear1971
Posted

I haven't tried to incorporate much food because anything I do just does't make it. I will deff. try those suggestions though. I have continued to take all the vitamins the doctor did tell me to take. I take everything twice a day. I was happy to find out that the doctor was able to tell me what I had before my wife changed jobs. We had ins. at that time and he did all the test to make sure it was celiac disease. Blood test and stomach biopsies confirmed both. It's crazy how this disease can affect so much in our bodies. Thank You to all.

If you are taking supplaments while you're sick, you may want to stop til you feel better. They can be very harsh in your stomach and contribute to the misery.

Once the sickness passes, ease back into them.

MATT1983 Rookie
MATT1983
Posted
  • Author

If you are taking supplaments while you're sick, you may want to stop til you feel better. They can be very harsh in your stomach and contribute to the misery.

Once the sickness passes, ease back into them.

I never thought of that. I was just trying to follow docs orders to hopefully get better. lol I notice sometimes the vitamins he has me taking make me sick if i don't eat. So that would make sense.

Not sure if this helps but these are the vitamins I take 2xs a Day:

These are all Wal-Mart or SAMS brand.

Vitamin C -1

Multi Vitamin -1

Fish Oil -2

Fiber Pill -3

Anti Acid 2- 150mg

I have two Ulcers also that don't like to help at all. And the meds the doc wants me to take are Extremely Expensive even without Health Ins. The bad thing is I can tell a major diff when I miss all these.

The bad thing is I Want to Sleep So Bad, but for what ever reason, Being Glutened Doesn't help in that. And since I got glutened on vacation I haven't been able to sleep except about 1 -2 hrs. On average, I get about 4hrs of sleep every night. This is not healthy and nothing helps. But thankful I get some sleep. I know that everyone here knows what I mean.

flowerqueen Community Regular
flowerqueen
Posted

It sounds like cross contamination, but you can't totally rule out bugs etc., I find when I've accidentally been CC'd my stomach can't cope with vitamins as the gut is already damaged. Being in England I don't know what is available where you are to stop you being dehydrated and this is more important than food when you've had such harsh symptoms for so long. Hope you are on the mend soon.

GottaSki Mentor
GottaSki
Posted

I agree with Prickly - stop all the supplements for at least a few days - until you are successfully getting food into you. When you feel stronger and are eating with no problem re-introduce them one at a time/no more than one a day - so you'll be able to identify if one sets you back.

GFinDC Veteran
GFinDC
Posted

Hi Matt,

It might help to take some probiotics. I suggest trying some deglysternized licorice (DGL) for the ulcers and mastic gum. Antacids are not real helpful for your condition. H.Pylori likes a low acid environment and that just lets it thrive. I take Betaine HCL for my H.Pylori to help kill it. And I sleep on my side that hurts so the stomach acid and DGL washes over the h.Pylori infected area of the stomach. It helps kill the bacteria and keeps the pain at bay.. It may hurt at first but if you can do it for 10 minutes at a time and build up it can help. It is important to keep your stomach acid at a high enough level to kill invading germs. Especially at night before going to bed, try the DGL.

I suggest avoiding sugar and carbs while you are getting over being glutened. Pepto Bismol may help some if your gut is irritated.

joolsjewels Newbie
joolsjewels
Posted

I am going through the same thing right now. Got cc from a favorite eatery. Boo! Yesteday was the first day i was able to eat solid foods. I spents several days consuming soup,, gatorade, and water. Finally the nastiness has stopped, but i am weak and abdomen is sore. Still just wearing jimjams. I hate that torn up feeling inside.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748
    jenny44
    Newest Member
    jenny44
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.