Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Think I Am Worrying Far To Much


nickhills1

Recommended Posts

nickhills1 Rookie

Hi everyone.

First time posting on this board, and had a couple of thoughts that i wanted peoples opinions on.

I am 30, and about 6 months ago, i started getting occasional severe stomach pains (as though i had really bad trapped wind). It was so painful that i wanted to go to hospital and get a needle popped into my stomach to release the pressure. It was also putting so much pressure on my stomach that it was made me physically sick.

After a few months of this occasional occurence, i worked out that it happened just after i had eaten bread. The strange thing is that it doesnt appear to be consistent, in that i sometimes eat bread and i am fine, and sometimes, i am doubled up in pain for about 3 hours.

I am now living in Paris, and went to the doctor today, who told me to try avoiding Gluten for a couple of weeks, and then go back and see him again. Does anyone think this is Celiac, or do bread and me just not get on?

Many thanks for your thoughts..

Nick


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Could be a possibility of celiac so you should get tested. Even if you do not have it, it is still worth being tested for because it can be very serious and deadly if it goes untreated.

Some people get no symptoms at all and there are over 200 symptoms associated with it so you can't tell from the symptoms. You could maybe only be getting symptoms with certain amounts. I don't think it is just bread because it is obvious it is something in the bread causing it-and that is found in many other products.

I would not go gluten free until you are tested though because that can interfere with the results. You need to be eating equal to 2-3 pieces of bread a day for 3 months before testing.

If you do not want to be tested but just eliminate all gluten to see how you feel that's fine but most people do not want to make that change in diet unless they need to.

nickhills1 Rookie

Kaiti..

Thanks for the advice.. When you say that i need to be eating the equivalent to 2-3 pieces of bread per day for 3 months prior to the test, do you mean that i actually need to eat bread, or a substitue?

Its just that i dont think i could put up with the pain of the bloating etc for 3 months..

I am also worried about how i go about getting these tests done in France? I dont know how big this is over here..

But i agree that i should be tested, as i have been doing some research this afternoon into having a Gluten free diet.. Man Alive.. How tough is that!!!! I have suddenly realised how lucky i am/was..

Nick

Merika Contributor

Nick,

It doesn't need to be bread. could be pasta, beer, graham crackers, just the equivalent of several slices of bread a day. I don't know about France, but I hear that celiac is better known in Europe than the US, and so I would think a test would be available.

Funny, French bread used to make me feel real bloated, but I was ok with sourdough and other forms (or so I used to think...).

Hth,

Merika

Jnkmnky Collaborator
Nick,

It doesn't need to be bread. could be pasta, beer, graham crackers, just the equivalent of several slices of bread a day. I don't know about France, but I hear that celiac is better known in Europe than the US, and so I would think a test would be available.

<{POST_SNAPBACK}>

Be careful with the BEER, or you'll find yourself on another kind of self-help website in no time! :lol:

nickhills1 Rookie

Great..

Thanks for that Merika.. I have another doctors appointment in 2 weeks time. I think that i will mention this, and ask him about getting tested. Although, he suggested that i avoid gluten for the next 2 weeks, and now i am getting advice to keep having gluten, for the test..

Hmm.. This isnt easy is it?

;-)

Nick

aikiducky Apprentice

I don't think your doctor's suggestion is all that crazy... He's probably thinking, try gluten free for a couple weeks, see if you feel any better, go back on gluten, see if you feel worse, and then do the test.

At least it sounds like he's taking it seriously!

Pauliina


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



VydorScope Proficient

His suggestion is not crazy, but you could speed upthe proccess with a simple blood test now while your still eating gluten, I suggest you get the test right away and the you will know.

It could also be a wheat or egg allergy.

But i am not a doctor...so take that with a grain of sugar :)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,259
    • Most Online (within 30 mins)
      7,748

    MauraBue
    Newest Member
    MauraBue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
    • Scott Adams
      Thank you for the kind words! I keep thinking that things in the medical community are improving, but a shocking number of people still post here who have already discovered gluten is their issue, and their doctors ordered a blood test and/or endoscopy for celiac disease, yet never mentioned that the protocol for such screening requires them to be eating gluten daily for weeks beforehand. Many have already gone gluten-free during their pre-screening period, thus their test results end up false negative, leaving them confused and sometimes untreated. It is sad that so few doctors attended your workshops, but it doesn't surprise me. It seems like the protocols for any type of screening should just pop up on their computer screens whenever any type of medical test is ordered, not just for celiac disease--such basic technological solutions could actually educate those in the medical community over time.
    • trents
      The rate of damage to the villous lining of the SB and the corresponding loss of nutrient absorbing efficiency varies tremendously from celiac to celiac. Yes, probably is dose dependent if, by dose dependent you mean the amount of exposure to gluten. But damage rates and level of sensitivity also seem to depend on the genetic profile. Those with both genes HLA-DQ2 and HLA-DQ8 seem to be more sensitive to minor amounts of gluten exposure than those with just one of those genes and those with only DQ2 seem to be more sensitive than those with only DQ8. But there are probably many factors that influence the damage rate to the villi as well as intensity of reaction to exposure. There is still a lot we don't know. One of the gray areas is in regard to those who are "silent" celiacs, i.e. those who seem to be asymptomatic or whose symptoms are so minor that they don't garner attention. When they get a small exposure (such as happens in cross contamination) and have no symptoms does that equate to no inflammation? We don't necessarily know. The "sensitive" celiac knows without a doubt, however, when they get exposure from cross contamination and the helps them know better what food products to avoid.
    • MauraBue
      Help!  My 5 year old daughter just stopped eating dairy and gluten due to her EoE and Celiac.  Her favorite candy in the world is tootsie rolls.  I did some research, and it sounds like these are the only options for finding something similar, but I can't find them anywhere to actually purchase.  Have they been discontinued??  Does anyone have another recommendation for a gluten-free/DF tootsie roll option?
    • catnapt
      I wonder how long it usually takes and if it is dose dependent as well... or if some ppl have a more pronounced reaction to gluten than others   thanks again for all the great info    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.