Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Soy?


shadowicewolf

Recommended Posts

shadowicewolf Proficient

Well, its currently 3 am where i'm at and i can't sleep at all. I feel like, in whatever position i lay, i'm goin to fall, my limbs feel fatigued, as do my eyes. My allergies are going as well, so thats not helping any.

I cannot for the life of me figure out why.

The night before last i had to stay up and only get like 2 hours of sleep due to homework -_- but last night i got about 9 and then earlier today i got a small 2 hour nap in.

The only thing different that i have done was take the maximum of my cranberry pills, and the only main problemish thing with them is that they contain soy. OH... and i've still got "C". -_-

I'm so bloody tired that i can't sleep, i've somehow rubbed my tounge on the side of my retainer and its sorta sore (happens every so often).

I also sleep with a wedge pillow to keep my GERD from acting up at night.

Here is what i ate:

rice chex (and two cranberry pills)

peanut butter and honey on corn tortilla (haven't had in a while but sounded good along with two more pills)

chicken, carrot, and rice soup (and the final two pills).

I followed the instructions to a "T" with them, so yeah i don't know.

I'm really tired atm, so i appologize for any errors.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

Soy does me in. Insomnia is one of my glutening symptoms and soy does the same thing to me. I avoid it like the plague.

shadowicewolf Proficient

Ugh this sucks. I'm bloated, my stomach is trying to kill me, my wonderful monthly gift decided to show up again, my tounge is irritated, and i'm in the middle of a philosophy class. Two hours of sleep is not fun.

Im thinking it was the pills. I do fine with pb and honey along with my corn tortillas. Same with chex and soup.

I hooe it isnt the cranberry part though.

Another idea is that maybe it was cc'd? Its labled gluten free, dye free, dairy freee etc.

shadowicewolf Proficient

I reeeeeallly hope it isn't soy thats doing this though. I mean come on :( its in my bisquick and my alfredo (i'm going to learn how to make it homemade for GP though).

Pretty sure it wasn't dairy as i haven't had any dairy in nearly a week.

bartfull Rising Star

Your peanut butter wasn't one of those recalled brands, was it?

GFinDC Veteran

How about the peanut butter? Does it have soy? most of them do unless you go for the organic or natural versions.

shadowicewolf Proficient

Nope, its peanuts, sugar, salt, and palm oil. Its skippy all natural :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Pegleg84 Collaborator

Ooh, soy...

Have you had trouble with soy before? Can you eat soy-based things like tofu and soy-sauce and such? Or have those been cut out for a while?

I stopped eating soy around the beginning of the year when I noticed (after cutting out casein a few months before) it made my head all floaty, aggravating my "vertigo" symptoms that had gotten better when I stopped eating dairy. Now, no soy for me and I didn't feel dizzy all the time this summer! Yay! But it sucks. I miss tofu, and it's harder to avoid even than gluten or dairy.

Maybe you should try cutting it out for a while and see if it helps. If it's only in your supplements and such, then it might be something else, but we do get more sensitive to things if we haven't been eating them for a while. So best to cut it out and see.

I hope you feel better soon! You've been having a rough time lately.

Peg

GFinDC Veteran

Nope, its peanuts, sugar, salt, and palm oil. Its skippy all natural :)

That's good. lately I've been getting peanut butter at a health food store. They have a grinder so you just flip the switch and fill up a container. Nothing but ground peanuts in it.

I can't eat carrots. We can develop intolerances to any food, so it is good to look at everything and consider eliminating the possible culprits.

shadowicewolf Proficient

Ooh, soy...

Have you had trouble with soy before? Can you eat soy-based things like tofu and soy-sauce and such? Or have those been cut out for a while?

I stopped eating soy around the beginning of the year when I noticed (after cutting out casein a few months before) it made my head all floaty, aggravating my "vertigo" symptoms that had gotten better when I stopped eating dairy. Now, no soy for me and I didn't feel dizzy all the time this summer! Yay! But it sucks. I miss tofu, and it's harder to avoid even than gluten or dairy.

Maybe you should try cutting it out for a while and see if it helps. If it's only in your supplements and such, then it might be something else, but we do get more sensitive to things if we haven't been eating them for a while. So best to cut it out and see.

I hope you feel better soon! You've been having a rough time lately.

Peg

I really haven't. Thats what got me thinking that it might be it.

Pegleg84 Collaborator

Yeah, soy is sneaky. It's like, one day you're fine with it and the next day you're not. I was doing fine with soy until suddenly tofu would kill me. Now even small amounts, like soy lectin and such, can bother me (seems to be ok in small amounts if I take a digestive enzyme with it, but I don't buy anything with soy in it any more.)

It's worth a try.

Peg

celiacsoprano Newbie

Well, its currently 3 am where i'm at and i can't sleep at all. I feel like, in whatever position i lay, i'm goin to fall, my limbs feel fatigued, as do my eyes. My allergies are going as well, so thats not helping any.

I cannot for the life of me figure out why.

The night before last i had to stay up and only get like 2 hours of sleep due to homework -_- but last night i got about 9 and then earlier today i got a small 2 hour nap in.

The only thing different that i have done was take the maximum of my cranberry pills, and the only main problemish thing with them is that they contain soy. OH... and i've still got "C". -_-

I'm so bloody tired that i can't sleep, i've somehow rubbed my tounge on the side of my retainer and its sorta sore (happens every so often).

I also sleep with a wedge pillow to keep my GERD from acting up at night.

Here is what i ate:

rice chex (and two cranberry pills)

peanut butter and honey on corn tortilla (haven't had in a while but sounded good along with two more pills)

chicken, carrot, and rice soup (and the final two pills).

I followed the instructions to a "T" with them, so yeah i don't know.

I'm really tired atm, so i appologize for any errors.

When I was first not aware of my soy allergy, the cranberry pills made me sick. Most cranberry pills contain soy. Avoid them if they don't say soy free. Also, Rice Chex may be gluten free, but their not soy free. Rice Chex have vitamins which most certainly contain soy. Honey, unless it is locally sources is from China... soy again. Your peanut butter is a legume which you should also be avoiding, but some peanut butters contain soy also (hydrogenated vegetable oils). Hope this helps, but basically you ate soy all day that's why you're sick.

shadowicewolf Proficient

Eh, i don't think i have a problem with it then. I eat chex all the time with no issues, the same with peanut butter and honey. I think at the time the cran berry pills were to cause.

Pegleg84 Collaborator

I hope you're right! Soy is one of the worst things to avoid. I do ok-ish if I have small amounts, but damn, I miss tofu and real soy sauce, and all that. I might challenge it soon as see what happens, but I don't have high hopes.

Also, cranberry is a diuretic, right? Maybe there are dangers to having too much? Are you taking them as a digestive aid? Maybe find an alternative?

Hope you're feeling better soon!

Peg

shadowicewolf Proficient

I took the max that day because i thoughyt i was starting to get a UTI. I think my stomach just did not like that many of them at once (6, 2 taken after every meal).

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    2. - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

    3. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

    4. - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

    5. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,289
    • Most Online (within 30 mins)
      7,748

    SarahZ
    Newest Member
    SarahZ
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.