Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Behavior Issues/tantrums


divamomma

Recommended Posts

divamomma Enthusiast

I need some help. My daughter is 6 and was diagnosed with celiac 20 months ago. Our entire house is gluten free except for the ocassional beer my hisband had. Lately (about one episode per week, usually on sunday/monday) my daughter has been having horrible behavior issues and meltdowns. She gets aggressive with her sister, hitting and punching for no reason. SHe gets whiny, she gets impossibly disobedient. Normally she is a very sweet and helpful girl but she sometimes seems like a Jekyl and Hyde personality. Am I missing somehting??? I am worried she is getting cross contaminated at school or perhaps at ballet on Friday nights?? Hands on the bars?? I am getting so tired and frustrated and I don\t know what to do at this point :( Her Ttg levels are well below normal though in August she had low iron and low hemoglobin. We have her on vitamins with added iron now. Help!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Roda Rising Star

Both my boys will have meltdowns and behavior issues when they are tired, overstimulated or getting sick especially from strep. My oldest also has mood issues when his allergies are bothering him.

There is also the same issues when my youngest son gets a bad glutening. Sometimes it is hard to tell. My oldest doesn't have behavior issues when he is glutenened so he is a good indicator for the youngest. If they are both having issues at the same time and kids are getting sick at school then I can pretty much figure that out.

nvsmom Community Regular

Could school be the issue if it happens on Sundays and Mondays. Perhaps something is causing stress at school?

frieze Community Regular

Could school be the issue if it happens on Sundays and Mondays. Perhaps something is causing stress at school?

yeah, hadn't thought of that. Perhaps it is anticipatory rather than result.

kittty Contributor

Could it be another intolerance?

I was exactly the same way as a child, and the doctor suggested cutting out all artificial food colorings. It worked! Red and yellow colorings are especially notorious for causing behavioral problems. Several of them have already been banned in the US, but the ones that aren't banned can still be just as harmful.

divamomma Enthusiast

I don't think it is school causing stress or her not wanting to go. She is happy at school and always goes to school without issues. I am wondering about other intolerances but don't even know where to start for that.

mamaupupup Contributor

Hi there,

I'm so sorry to hear she's having a tough time. Her behavior is very similar to one of my twins (both have Celiac...but very different responses to the disease...). My girls are about to turn 6 (we homeschool, so I see just about everything they consume/do!).

I'm seriously considering taking our twin who has little impulse control when she gets cc or glutened off of casein (milk/dairy). As I read more, it seems that casein and gluten have similar molecular structures. I have little more to offer other than to say "You are not alone."

Thinking of you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kelleybean Enthusiast

I need some help. My daughter is 6 and was diagnosed with celiac 20 months ago. Our entire house is gluten free except for the ocassional beer my hisband had. Lately (about one episode per week, usually on sunday/monday) my daughter has been having horrible behavior issues and meltdowns. She gets aggressive with her sister, hitting and punching for no reason. SHe gets whiny, she gets impossibly disobedient. Normally she is a very sweet and helpful girl but she sometimes seems like a Jekyl and Hyde personality. Am I missing somehting??? I am worried she is getting cross contaminated at school or perhaps at ballet on Friday nights?? Hands on the bars?? I am getting so tired and frustrated and I don\t know what to do at this point :( Her Ttg levels are well below normal though in August she had low iron and low hemoglobin. We have her on vitamins with added iron now. Help!!

I agree with what someone else said - my son seems to have a reaction to food dyes. Super annoying that it's in everything! I'm also wondering if there could be another intolerance, like dairy. Another idea might be high fructose corn syrup. I would keep a food log and see if you can find a pattern.

Thought of something else ... does your daughter have any sleep issues? My son goes through periods when he doesn't sleep well, and we see big behavior changes there.

Takala Enthusiast

Sounds like a cross contamination issue, are you going out to eat on Fridays or Saturdays ?

Where you start is easy. Write down everything she eats. Look for the changes. Correlate what was eaten and what happens later.

She may just need to be reminded to wash hands and rinse very well, before eating.

Oh, and those food dyes.... my goodness, yes, that stuff has even gotten me sometimes, I had to switch my candy bar treats to one that doesn't have it, and I stopped eating ice cream that is obviously "colored," (like green) because I noticed that I was getting temperamental after eating a certain kind with a lot of colorings. And I'm an adult !

MitziG Enthusiast

I would recommend a food diary. My celiac son had the same issues, and we finally discovered caffeine, food dyes and dairy all would cause the nasty emotional outbursts. As long as we keep himm away from them, he is a nice little boy! :)

lindsayanne0 Newbie

My son was the same way. We had got gluten free but we were still having some behavior issues.

I ended up cutting our dairy, as well, and it made a BIG difference. Try cutting out dairy and go from there. If there are still issues, do an elimination diet. We've found that he can have limited amounts of dairy (as minor ingredients in something)and still be okay...but not something with it as a main ingredient.

I had also found that he was having more issues during the week than during the weekend and found that at school he was still having items with wheat and dairy in them. Once we nipped that in the bud he was good to go!!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,823
    • Most Online (within 30 mins)
      7,748

    Kayaker
    Newest Member
    Kayaker
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.