Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Problem With Bc Pills


kittty

Recommended Posts

kittty Contributor

Sorry for the long post!

I've been on Yasmin, and later the generic Ocella, for almost ten years. I've never had any problems with the pills, they fix my erratic cycle and PMS symptoms, and I'm happy that they're gluten free. I've tried other pills and none of them work as well for me.

Yesterday I went to pick up a refill and the pharmacy had changed generics to Syeda. I didn't know that pharmacies can just switch out generics without informing the customer, because generics only have to have the same active ingredient but can have completely different inactive ingredients. Ocella and Yasmin have identical ingredients, but I wasn't sure about this one.

So I took the pills home, and went online to look up Syeda. The first thing I find is a forum where people who had been on Yasmin/Ocella for years are complaining about unpleasant side effects with Syeda and Zarah, which is another new generic. I looked up the inactive ingredients for Syeda, and they are very different from Yasmin/Ocella. I can't find any information about Syeda or Zarah being gluten free, except for a post on this site which never gave any answers, and revealed that the company was being extremely difficult about answering the question.

So I went back to the pharmacy and explained that I didn't want to risk taking a generic that may or may not be gluten free. The pharmacist was a total b-word about it, but the assistant was very helpful. She called around to all of their other stores until she found a store that still had a couple of packs of Ocella, and is having them shipped to my store for pick up today. Hooray! That takes care of one month.

I called around to other pharmacies in the area, and all of them have switched from Ocella to either Syeda or Zarah (there are still a few left to call that aren't open on Sundays). Apparently the inactive ingredients in the new generics are cheaper, which is why everyone is making the switch - more profit for the pharmacy.

My questions are:

Where can I get Ocella?? Does anyone know of any large chain drug stores that still carry it as the Yasmin generic? I tried Kroger, WalMart, and Walgreens with no luck.

If the other generics won't disclose if their products have gluten or not, can I ask the insurance company to cover more of the cost of Yasmin? They covered almost all of the cost of Yasmin before Ocella came out, but where there is a generic I have to go with that to get the savings. I don't think it's right for the insurance company to force me to go with a generic that may harm me. I have Caremark prescription insurance.

This is the first time that celiacs has caused a major frustration in my life, and it took a lot to not start crying in the pharmacy (especially when the pharmacist was shooting dagger eyes at me). Why can't the FDA force pharmaceutical companies to disclose allergy/intolerance information?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kittty Contributor

Whew! The last pharmacy on my list still carries Ocella. They're a local compounding pharmacy, and hopefully they're small enough to let me know ahead of time if they switch to a new generic.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,799
    • Most Online (within 30 mins)
      7,748

    Liss Drisk
    Newest Member
    Liss Drisk
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • RMJ
      The normal ranges can vary for the tissue transglutaminase and gliadin antibody celiac tests because the units aren’t absolute.  Could you please tell us what the normal ranges are for the laboratory used? If her tissue transglutaminase results are 10-fold above the normal range some would diagnose her on that alone.  Endomysial antibody ranges are more standardized, and a titer of 1:5 would usually be normal.  Might that be the normal range and not her result?  Her total immunoglobulin A is normal for her age. (This is tested because if low, then the other IgA tests might not be valid).
    • Samanthaeileen1
      Hello there! New to celiac community, although I have lots of family in it.  My two year old was just diagnosed with celiac disease based on symptoms and bloodwork.  symptoms (swollen belly, stomach hurting, gagging all the time, regular small vomit, fatigue, irritability, bum hurting, etc) she got tests at 18 months and her bloodwork was normal. She just got tested again at 2 1/2  because her symptoms were getting worse and these were her results :   Tissue Transglutaminase Ab, IgA 58.8 Unit/mL (High) Endomysial Antibody IgA Titer 1:5 titer (Abnormal)   Gliadin Antibody IgA < 1.0 Unit/mL Gliadin Antibody IgG 8.5 Unit/mL Immunoglobulin A 66 mg/dL Her regular pediatrician diagnosed her with celiac and told us to put her on the strict gluten free diet and that we wouldn’t do an endoscopy since it was so positive and she is so little (26lbs and two years old). I’m honestly happy with this decision, but my family is saying I should push and get an endoscopy for her. It just seems unnecessary and an endoscopy has its own risks that make me nervous. I’m certain she has celiac especially with it running in mine and my husbands family. We are now thinking of testing ourselves and our 5 year old as well.  anyways what would y’all recommend though? Should we ask for an endoscopy and a GI referral? (We are moving soon in 5 months so I think that’s part of why she didn’t refer us to GI)    
    • olivia11
      This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.
    • olivia11
      High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.
    • xxnonamexx
      sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.