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Chronic Sinusitis


Trtnop

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Trtnop Newbie

Has anyone had chronic sinusitis? I have had two sinus surgeries in four months. My ENT mentioned he thought I might have an autoimmune disease. I had some blood work done and I had low IgG. They are doing some more testing. I have done some research, I have several of the celiac symptoms. Just wondering. Thanks!


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SMDBill Apprentice

I do not have chronic sinusitis, although I have had a few bouts in the last few years. However, I had constant drainage that made me clear my throat constantly. I developed a few throat and sinus infections that were only killed by strong antibiotics. All my life I've been susceptible to strep throat, but not sure if that mattered back then that I now have celiac.

After about 4 days being gluten free I noticed I hardly had to clear my throat at all and the morning sinus drainage/blockage has minimized. When I got glutened a week ago my sinuses started to act up again and I was clearning my throat a lot. Those symptoms have since settled back down and the drainage is minimal. I'm guessing if you are gluten intolerant or have celiac, the sinus issue will change or disappear once you know and go gluten-free.

Are you gluten-free right now? If not it may be a good idea to see your gastro and get tested for celiac before going gluten-free. Going gluten-free will give you answers but it'd be best to find those answers after knowing the root cause.

Trtnop Newbie

I went on a gluten free diet for about two weeks. I noticed I did much better...no headaches, joint pain, less drainage, prickly skin, fatigue, etc. I am back to eating gluten....symptoms have returned. I don't want to go gluten free until all of my testing is complete....which should be mid November. I think my physician thinks I am crazy....but, something has to be going on....I have been feeling not like myself this past year!

SMDBill Apprentice

I had the rough skin and now I believe I had DH showing signs on my feet. I had these light brown "blisters" that I called them, but they were deep in the skin rather than surface blisters. They itched and were red around them. I also had daily headaches and occasional (monthly) migraines. Fatigue, drainage, muscle weakness/soreness. gluten-free solved each and every symptom I had in relatively short time....2 days when I felt like a new person and the skin and muscle issues stopped just a few days later. It was like a miracle for me to find out.

If your doc thinks you are crazy, find another. Elimination of gluten is confirmation of the problem if the symptoms resolve. If he/she does not accept that as proof even after negative test results, get another opinion. Find a specialist and make sure they agree with the testing you believe should be done. THeir gut doesn't hurt with gluten....yours does! You have a right to a proper diagnosis, even if it is a lot of work for them.

amahones Rookie

I've had chronic sinusitis due to seasonal, food, and environmental allergies. I've also had two sinus surgeries (but they were five years apart). I've heard of people whose sinuses and allergies improve on the gluten free diet, but so far I've noticed no difference. I've i've been gluten free for a little over two months though, and this time of year is the worst for me, when it comes to seasonal allergies.

GottaSki Mentor

One of my sons has battled sinus issues for about ten years. He has had improvement gluten-free - for him the improvement was very slow. He has been gluten-free for 3 years and still has minor problems, but he has improved a lot!

I hope your improvement is speedy, but do give it time.

megsybeth Enthusiast

I did and was lucky to have this clear up to some degree almost immediately after I went off gluten. My son, who also has celiac, also has terrible sinus/tonsil issues and has had two surgeries. He's still in the middle of testing but I had taken him off for almost a week and noticed him breathing through his nose better and he went back to putting his face in the water when swimming, which he'd stopped doing (he's just four).


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    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
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      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
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