Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did I Handle This Okay?

DavinaRN

By DavinaRN
in Coping with Celiac Disease

Recommended Posts

DavinaRN Explorer
DavinaRN
Posted

Discussion with DH--

DH-you act like eating gluten is going to kill you

Me-your right I don't have celiacs, but why would I want to eat something that will make me feel bad

DH-you don't follow the diabetic diet

Me-yes, I struggle with that, but the effect of that is years away (kidney diease, eye sight, amputation) but if I eat gluten my bones hurt and I feel like I have a stomach virus in an hour

I've been out to eat a few times, always order a salad or just side of bacon if its breakfast. Only ordered the wonderful thick ranch once, lesson learned, now Italian only. Next week we are going out of town, staying at the inn on biltmore estate and I'm worried. They have a gluten free menu, but we also eat off the estate frequently for most meals due to the expense. Ideas for snacks needed (not the type of place that comes with frig or microwave)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

peanut butter and rice cakes always go good for me.

You did well. Just stick to your guns.

1desperateladysaved Proficient
1desperateladysaved
Posted

Hard boiled eggs travel fairly well in an egg carton, but be sure to mark them hard boiled!

ravenwoodglass Mentor
ravenwoodglass
Posted

Have you got a hot plate? If you do bring it and a small pan and some silverware with you to heat up gluten-free soups, Dinty Moore beef stew or other gluten-free prepared foods.

Cheese and Hormel pepperoni make a good snack. Fruit, nuts, chex cereals, peanut butter and some Udi bread.

The most important thing is to have a good time. Enjoy your trip.

kareng Grand Master
kareng
Posted

I like to take these. I get them at Target or one of the local groceries. Read the box, there are a few that are not gluten-free.

Open Original Shared Link

You could take a cooler and re-fill with ice to keep some basic things like hard boiled eggs or cheese cool. Have you asked the hotel for a frdige? Many will provide one if you tell them its a medical need. They aren't supposed to ask what the medical need is but "food allergies" is a good reason.

I have had to do a few of these trips. One thing I do is grill some chicken, cut it up and freeze it. Then I bring some salad fxings and keep it all in a cooler for a chicken salad. We like to have cheese and crackers and fruit in our room for a meal.

mamaupupup Contributor
mamaupupup
Posted

I'm thinking of you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,116
    • Most Online (within 30 mins)
      7,748
    Mary Pack
    Newest Member
    Mary Pack
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.