Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Longer Reacting To Gluten?


Kirstie

Recommended Posts

Kirstie Apprentice

I cut gluten out of my diet and felt relief straight away. My constipation, fainting spells, bloating, nausea, vomiting and brain fog cleared up within 2-3 months and I've been feeling great ever since.

I've been gluten free for 7 months and occasionally had mishaps and eaten gluten, causing me to have strong reactions, like vomiting, pain, brain fog and mouth ulcers.

However, that hasn't happened for the past month so out of curiosity I began trying gluten, its been 2 weeks and I've no reaction!

My reactions use to be so severe, but not I don't seem to have any!

Has this happened to anyone?

Thanks,

K


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Persei V. Enthusiast

I'd say no visible reaction. But have you been diagnosed by endocospy and blood tests with celiac disease? I have a leaky gut and intolerances that come and go, and never have been diagnosed with celiac, so theorically it would be possible for me not to react to gluten anymore, but that's not true to celiacs...

rosetapper23 Explorer

Yes, this happened to me after I had followed a strict gluten-free diet for 18 months. I then read an article (later I was to discover that the author was NOT correct) that said that after a while, a person's autoimmune system settles down so that a person with celiac can ingest gluten from time to time without consequences. Well, I immediately ordered a pizza and thoroughly enjoyed myself. I was ecstatic when I had no reaction....so a month later I did the same thing. Long story, short--after the fourth time, I discovered that I could no longer absorb iron no matter how much I took. My ferritin level fell to 2 even though I was taking massive amounts of iron. Eventually, I had to be placed on intravenous iron infusions, and two years later I developed cancer. So, I guess you know what I'm going to recommend, right? Do NOT eat gluten under any circumstances, regardless of whether you get a reaction or not. Damage is still being done, and you will pay the price someday.

GFinDC Veteran

Some people have gone back on gluten. If you do have celiac tho it doesn't go away. Symptoms may subside temporariily but not forever. Your body doesn't forget how to make antibodies. If it did you would die from measles or some other infectious disease pretty quick. Children who are born with celiac and go gluten-free or a while and then are told they are cured or have grown out of it and then start eating gltuen again often don't have obvious symptoms for a period of time. But later symptoms resume or they get another autoimmune disease or symptom and all the fun that goes with that. Sometimes those other symptoms or AI diseases don't go away when resuming the gluten-free diet. Below is a thread kind of debating eating gluten when you have celiac and possible effects. It might be useful to read through it. I hope this helps.

How bad is cheating?

http://www.celiac.co...t-periodically/

Lisa Mentor

There is no consistancy with this disease.

But, if you are diagnosed with Celiac, I would strongly recommend that you continue to eat gluten free. To do otherwise, would be a waiting game for a secondary diagnosis, not as easily remedied as a gluten free diet. :rolleyes:

Skittles Enthusiast

I was off of gluten for about 5 months and feeling very good. One of my biggest problems was constipation but being off of gluten I was not suffering from it anymore. I ate a little bit of gluten and felt ok so I ate a bit more and I was still fine so I thought I could go back on gluten too. However, about a month later all of my symptoms came back. So I am off the gluten again and starting from scratch again and it is taking a little while for my stomach to heal, again! and I really regret ever going back on gluten!

But even if you do eat gluten and you feel fine that doesn't mean that your body IS fine. If you are celiac there is no cure

nvsmom Community Regular

Like GFin DC said, I was a (undiagnosed) celiac as a child and had many symptoms but those symptoms largely went away in my teens. I still got some like headaches and aches but my stomach wasn't too bad at all. By my late teens I developed another AI disease and another in my early 20's. Not good.

So, my symptoms did go away for a while even though I was never gluten-free. Everyone is different though. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AandGsmomma Apprentice

I had this happen. Before I was diagnosed I had several episodes of stomach pain that went away when I went off gluten. Then y stomach would feel better and I would start eating wheat again. All this accomplished was my symptoms coming back worse then before.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

    5. - trents replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,342
    • Most Online (within 30 mins)
      7,748

    Muhammad
    Newest Member
    Muhammad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.