Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No More Cookies!


bartfull

Recommended Posts

bartfull Rising Star

I guess I've been playing with fire, letting my regulars bring cookies to the jam sessions here. I'm always good about washing my hands before I eat, but I got glutened the other day, and I know it was a stray cookie crumb that got me because I've not eaten anything different from my usual fare.

They get crumbs on the table. Then I touch the table. Then I play my guitar. The crumbs get on my guitar strings. Then I touch my face.

I'm so miserable right now. I was sick to my stomach the other day and thought it might be a bug. A few hours later my psoriasis started to flare so I knew it was gluten. Now my jaw problem is flaring up really badly. I am in SO much pain! I can't open my mouth to even brush the inside of my teeth, I'm mashing my sweet potatoes so I can suck them through my teeth, I'm talking funny as if I had my jaw wired, and the pain is almost unbearable.

Another sure sign of a glutening for me is temper. This morning a friend came in for a lesson and I had to move an open package of cookies out of the way. A couple fell out and I flung them to the floor. I looked at my friend and told her THAT'S why my jaw looks like a hampster's. Then I threw the whole package across the room. (It's a good thing she is a friend.)

I spent the whole day in bed yesterday and wish I could be in bed today. I need to get started putting my huge Christmas tree up here at the shop because it takes days, and I want it up for Black Friday. But I'm just not up to it right now.

I am going to tell everyone that from now on, no cookies are allowed unless they are gluten-free and soy-free. I hate to do it, but I WON'T go through this again! :angry:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

Awww you poor thing! This is not a good time to have to deal with this. I get the grumps too and probably would have responded the same way to the cookies. I agree that it is time to stand up to the cookies and protect yourself. It simply isn't worth the risk. Do try to get some extra rest tonight. (((HUGS)))

And backatcha:

bartfull Rising Star

Oh Adalaide, THANK YOU! I love that video, and the fact that someone sent it to me when I'm feeling so down has made me cry. (((((HUGS)))))

Adalaide Mentor

GAH! That is the opposite of the intended effect! On a dark gluteny day in August when you shared it with me you said it always cheers you up. :P Okay, I'll stop being a dorkus. Feel better!

Takala Enthusiast

They are just going to have to suffer with the Lara bars, the Kind bars, the coconut macaroons, the enjoy life chocolate chips melted on crumbled rice cakes with coconut flakes, the bananas, apples, etc.

Cookies sound so horrible right now. Something other than gluten is kicking both me and my spouse's guts a bit from the salads we had for lunch. I made myself exercise, because otherwise I was pretty loose- jointed, but I barely got thru it. (have to catch it while you can, as we are entering the rainy season) drinking ginger in club soda water.... Ugh.....

L.J. Rookie

Oh Bartful,

I am so sorry you are feeling horrible...UGH :ph34r: Hope you can get good nutrition in your stom and get some rest -- You are right!!

No more poisonous cookies to be brought in to your store! Hang in there... :)

ncdave Apprentice

Dear Bartfull,

I"m sorry your feeling a little under the weather, hope you have a super speedy recovery. I have no idea why i stopped by to read about your cookies, but i"m sure glad i did. How else would i ever found out about the coconut macaroons and the enjoy life chocolate chips melted on coconut flakes to make my own mounds bars!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



katecamp Newbie

I just responded to a suffering soul in another post with some tips on how to feel better. I've learned that with celiac disease you've got to watch out for things you never thought of. You may have a yeast infection. My gums hurt so bad and I have to really scrub my mouth 3X daily. And throw away the brushes frequently. I buy cheap children's tbrushs so I can get into nooks and crannies. Even gluten-free flour can cause problems and things like vinegar can upset your PH. Good luck.

Pegleg84 Collaborator

I always worry about cookie crumbs. I help with tea at my meditation centre, and try to be very careful when handling the cookies and other gluteny things, wash hands afterwards, etc, but I always worry that something bad might happen (obviously not worried enough to stop helping out though).

If you got that sick just from cookie crumbs, then indeed, for the sake of your health and sanity, no cookies (or other crumbly gluteny items) allowed! Maybe you can switch to some gluten-free chips or another snack instead. If these are people you jam with often, and come to your store, they should want to keep you happy and healthy, so I see no reason not to put your foot down.

Feel better. The tree can wait.

Peg

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748

    Blough
    Newest Member
    Blough
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.