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joseyheather22

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joseyheather22 Newbie
joseyheather22
Posted

Hello I'm josey and I had a gastroscopy yesterday because a few months ago I had a rash on my chest and elbow and ankle so my doctor did a blood test and came back positive for celiac disease so I had the gastroscopy yesterday and the doctor said my small bowel looks abnormal so he said I probably have celiac disease, he said I can start the diet now , but I have no idea where to start ...

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kareng Grand Master
kareng
Posted

Doctors are so helpful, aren't they?

Celiac is the only disease that a doctor says, " you have it & good luck with that". Can you imagine them saying that to a newly diagnosed diabetic or cancer patient?

Anyway, here is a good place to start:

guest134 Apprentice
guest134
Posted

If bedside manners meant the difference between having a job and not, 90 percent of doctors would be unemployed. I always find it funny how as a financial planner for a big bank I would lose my job in a second if I treated my customers the way doctors do their patients. If I rolled my eyes whenever a client was confused about some finance term and said "here is your investment portfolio, go find out what I invested for you by yourself." it doesn't make sense in any other industry, why do doctors get away with it?

Luckily celiac research is very easy and accessible, let me know if you have any specific questions.

Adalaide Mentor
Adalaide
Posted

Aren't doctors awesome? I got the same treatment... you have celiac, good luck! Obnoxious. The link Karen shared is great. Ask any questions you have after you check it out, we're all here to help. And keep in mind that no matter how you feel, you aren't crazy and it is normal.

joseyheather22 Newbie
joseyheather22
Posted
  • Author

Thanks :) I have to go see him in 4-6 weeks

GottaSki Mentor
GottaSki
Posted

Thanks :) I have to go see him in 4-6 weeks

Welcome!

In 4-6 weeks you will likely know far more than your doctor about Celiac Disease.

Start with the Newbie 101 thread, then ask as many questions as you need. Transitioning to a gluten-free life is not easy, but it does become much easier with time.

Let us know how we can help :)

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Hiya, welcome

Come on in, ask lots of questions. Good simple foods work well for many people, meat fish veg fruit.

Come and shout if you need to as well :)

Good luck

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GFinDC Veteran
GFinDC
Posted

Hi Josey,

Take two aspirin, read all the threads below, and call me in the morning. :D

Ok, you don't have to read all those, some are just for reference.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Get your vitamin/mineral levels tested also.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

Helpful threads:

FAQ Celiac com

http://www.celiac.co...celiac-disease/

Newbie Info 101

http://www.celiac.co...ewbie-info-101/

What's For Breakfast Today?

http://www.celiac.co...reakfast-today/

What Did You Have For Lunch Today?

http://www.celiac.co...or-lunch-today/

What Are You Cooking Tonight?

http://www.celiac.co...ooking-tonight/

Dessert thread

http://www.celiac.co...399#entry802399

Easy yummy bread in minutes

http://www.celiac.co...ead-in-minutes/

How bad is cheating?

http://www.celiac.co...t-periodically/

Short temper thread

http://www.celiac.co...per-depression/

Non-celiac wheat sensitivity article

http://www.celiac.co...ists/Page1.html

Thread For gluten-free, Dairy, Soy, Corn And Nightshade Free Recipes

http://www.celiac.co...e-free-recipes/

Super Easy Meal Ideas Anyone?

http://www.celiac.co...l-ideas-anyone/

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    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
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      Supplements for those Diagnosed with Celiac Disease

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    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
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