Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Imaculate Brand- Cookies

bny06

Recommended Posts

bny06 Apprentice
bny06
Posted

I have been strictly gluten free for almost 2 years.... I was really really ill by the time they realized gluten was the problem.. . I was thrilled when I found one of my favorite pre-made cookie dough cookies are now in gluten free.. I have tried them THREE TIMES... (the chocolate chocolate chip ones).. and EVERY single time have a major GI flare hours later, that lasts for a good day at least... Are these really gluten free? Are they made in a factory that is contaminating them? Anyone else have any problems?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

I looked at their website. They make mainly gluten containing cookies and they don't say anything about separate facilities for their gluten free items. You could call or e-mail them to check.

bny06 Apprentice
bny06
Posted
  • Author

Thanks so much!!! I will do that.. you would think after eating them TWO times, I wouldn't try a third... but I had a weak moment and thought to myself, it says gluten free!!! maybe it was just a coincidence in the past!?! But just like the last two times horrible left upper quandrant pain and awful GI symptoms.. shakiness, felt steaming hot for a day or two.., couldn't eat for over a day anythign solid without pain, lower gi symptoms and horrible nausea..etc... I never eat out at all.. and rarely eat anything processed.. but man, I would love to indulge every once in a while!!! Do you get LUQ pain with gluten?? is that common do you know?? Thansk so much for your help!

dilettantesteph Collaborator
dilettantesteph
Posted

Is that left upper quadrant pain? I hurt everywhere when glutened.

Adalaide Mentor
Adalaide
Posted

When I checked their site I was like zomg... crescent rolls. Not that I would buy a lot of them but the occasional treat would be nice. Next thing I knew I was emailing them. To my surprise I had an email back when I got up from my nap! I don't remember exactly what I asked word for word, but it was in essence about separate facilities, lines, batch testing and accuracy of batch testing. I would eat them, and I am the most super paranoid person I know. I also know my bodies response to gluten and have to say if I got sick after eating them I would know if it was in response to gluten or something else and would stop eating them. This is the response I got:

Thanks for writing. The gluten-free cookies are not manufactured in a separate facility, but the line on which they are manufactured is segregated from other production. gluten-free product is run first thing in the AM after an overnight sanitation and wash down procedure. Equipment is swab tested for gluten prior to running. And all dough is tested for gluten and diary before being released to our warehouse. The test is accurate to 1 PPM. The limit put in place by the Gluten Intolerance Group is 10 PPM, but we have never detected any wheat in our products.

bny06 Apprentice
bny06
Posted
  • Author

WOW... thanks - adalaide- that does sound promising, but still so strange, that i have tried it THREE times and gotten sick for a good 24 hours after each time.. i kept thinking maybe it was a conicedence.. maybe i had a stomach bug etc... haha.. i really like the taste of those cookies!!! It's my typical reaction though - (however I am a weird case.. not diagnosed by blood or endoscopy, as I was gluten free for a bit before tested.... i was really sick and loosing TONS of weight... gluten free diet helped me so much.. and the IVIG fixed the problem.. unless I have an occassional flare).. I get that left upper quandrant pain that lasts for a good 2-3 days and everything I eat goes right through me for a good 24 hours.. I loose a bit of weight each time.. .. if it's not gluten in them, i wonder what it could be!????

dilettanstesteph- Yup, sorry, it is left upper quadrant.... and it's like I can't put any solids in my stomach for several days without bad pain.. its just right under my left lower ribs.. when I first got sick and was loosing weight, i started calorie loading, thinking I need to eat more... i ate more and more (TONS of gluten.. lots of fatty cookies I thought would help my situation).. I felt like i was starving to death, but eating more than a linebacker! i had horrible constant pain there for several months, when i stopped eating gluten it slowly went away and eventually resolved.. until i get flares..

thank yall so very much for your help!!!

Adalaide Mentor
Adalaide
Posted

If something made me sick a few times, I'd avoid it. I suppose it is possible it is something else bothering you. I suppose it is also possible that despite all their efforts it is gluten. At the end of the day, we can all only make these choices for ourselves. I personally go with the policy of if it makes me feel bad, I don't eat it, regardless of the reason it makes me feel bad.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Diner Sues Olive Garden After Gluten Mix-Up Leads to Medical Emergency (+Video)

    2. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    3. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    4. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    5. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,024
    • Most Online (within 30 mins)
      7,748
    Sunset Blue
    Newest Member
    Sunset Blue
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.