Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi All

bm1984

Recommended Posts

bm1984 Newbie
bm1984
Posted

Hi all,

My name is Ben, I'm 27 years of age.

Going back a couple of years now, I started to notice that I had a bout of diarrhea pretty much the moment I had finished eating my lunch at work. At first I put it down to some sort of sickness or - heaven forbid - simply signs of age! The diarrhea would never last (like when you get a proper illness) - it would pretty much vanish the moment I had been to the toilet.

Two years later I'm still experiencing it. I noticed that it was always after I had eaten my lunch. I also noticed that I didn't tend to get the same problems over the weekend (which I realised could possibly because I don't eat the things I eat on a weekday, over the weekend [i.e. sandwiches etc] as I tend to have cooked meals on the weekend).

Recently however, I have started having the same problem but in the morning - when I prepared my sandwiches/lunch for work!

I have no idea why it has taken me as long as it has to do anything about it, but this morning I decided to "Google it".

My first search bought up lactose intolerance. Reading that, some symptoms did make it sound a possibility. Then it had a link to IBS. This sounded less like my issue in all honesty. Finally I seen a link to Celiac Disease. By the time I had read the article I was 99% sure this is what I suffer from.

Going by the sypmtoms, I should probably consider myself quite lucky. My symptoms are literally limited to diarrhea. I don't get many headaches so those that I do get are unlikely (well, I think) to be as a direct result of Celiac Disease. I am however tired ALL the time - so I guess this could very well be a symptom related to it also.

However - and I'm not sure if this is possible - as I mentioned earlier, I've now started getting a bout of pretty much instant diarrhea the moment I even TOUCH bread!?!? For around the last 6 months (maybe a little longer) I get a bout come on the moment I start to prepare my sandwiches. I know it might sound insane, but I definitely don't eat anything when I'm preparing them so it's all that I can think of?! Is this known/common??

Given the above, do you think it sounds likely I suffer from Celiac Disease?

I guess I should probably still see a doctor just in case, but from what I've read I personally think it seems as though I am a sufferer.

I must admit, it's a fair daunting thought as it's pretty much a lifechanging condition. Obviously all of you will know exactly what it feels like but - yeh - did it feel this daunting to many of you?!

Thank you so much for taking the time to read. Hopefully I'll hear some of your replies shortly.

Many thanks,

Ben

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GottaSki Mentor
GottaSki
Posted

Welcome Ben!

You certainly could have Celiac Disease or Non-Celiac Gluten Intolerance.

It is VERY important to have your doctor order a full celiac blood panel BEFORE you remove gluten from your diet. The antibodies measured in these tests are produced in reaction to gluten ingestion.

Also a good idea to be tested for nutritional deficincies - celiac can cause malabsorption issues.

Hang in there - make sure all tests are completed and then remove ALL gluten for at least three monts as elimination is the only test for NCGI.

bm1984 Newbie
bm1984
Posted
  • Author

Welcome Ben!

You certainly could have Celiac Disease or Non-Celiac Gluten Intolerance.

It is VERY important to have your doctor order a full celiac blood panel BEFORE you remove gluten from your diet. The antibodies measured in these tests are produced in reaction to gluten ingestion.

Also a good idea to be tested for nutritional deficincies - celiac can cause malabsorption issues.

Hang in there - make sure all tests are completed and then remove ALL gluten for at least three monts as elimination is the only test for NCGI.

Thank you for the reply Lisa :)

I'll take your advice and get a doctors appointment asap! I will also continue with my current diet until I've see the doctor.

Thanks again!

ravenwoodglass Mentor
ravenwoodglass
Posted

Welcome to the board. I agree that getting tested is a good idea. It may not be the making of the sandwiches that is getting you every morning it may be the timing. There are some of us that will have D every morning on gluten, after any gluten meal, alternating C and D or even just C. Do give the diet a good strict try after all celiac related testing is done as false negatives are not uncommon.

1desperateladysaved Proficient
1desperateladysaved
Posted

Greetings Ben,

I sure hope you have discovered the solution to your problems before it got to bad. Please let us know what happens for your testing. I have reacted to having barley flour in the same room, so I don't think it is impossible to have problems when preparing sandwiches. After testing maybe you can bring a thermos full of warm food for lunches.

Get well,

Diana

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Yes, I found it daunting when I went through the list of symptoms! It explains 20 odd years of symptoms.

It does start to get manageable, and you have some time to read and prepare while you get testing done. Someone will be along with a good list for you soon...

The folks here are great for any wobbly moments as well as great advice.

Welcome and good luck with some answers

mushroom Proficient
mushroom
Posted

Here's the list of the celiac tests to be done:

Anti-Gliadin (AGA) IgA

Anti-Gliadin (AGA) IgG

Anti-Endomysial (EMA) IgA

Anti-Tissue Transglutaminase (tTG) IgA

Deamidated Gliadin Peptide (DGP) IgA and IgG

Total Serum IgA

Do get all of them (insist) because sometimes you end up positive on only one or two - but that's all it takes. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.