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Found Out I Now Have Lupus With Connective Tissue Disease

txplowgirl

By txplowgirl
in Related Issues & Disorders

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txplowgirl Enthusiast
txplowgirl
Posted

My Neuro diagnosed me after she checked to make sure I don't have Epilepsy and MS. She checked me for almost everything else.But it is Lupus for sure. But she said something that i'm confused about. She said I had a low positive ANA.

I'm going tomorrow to get my paperwork. I am so Chronically anemic I need a transfusion. I cant get the transfusion until I have an Ablation procedure because I have been doing some heavy bleeding. I have endometriosis.

Anyway in the next couple of weeks it's gonna be busy and tiring.

These are the results I have so far. Anybody have any info about these?

Test level Normal Level

Hemocrit, Blood 26.8 35-60

Hemoglobin 8.2 11-18

Ethrocytes 3.90 4.00-6.00

Mean Corpuscular Volume 68.8 80-99.9

Mean Corpuscular Hemoglobin, RBC 21.1 27-31

Protien, Total Serum 6.3 6.4-8.9

Albumin, Serum 3.9 3.5-5.7

Alanine AminoTransferase Serum 9 U/L 7-52



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nvsmom Community Regular
nvsmom
Posted

Sorry to hear of your diagnosis. :(

ANA levels don't always indicate how active the rheumatic disease is, but it often does. A low positive ANA is probably a 1:80 or 1:160 titre.

Have your platelet levels been checked recently? I ask because thrombocytopenia (platelets are attacked so you can't clot) can be a symptom of lupus. I had a severe form of it 20 years ago and I had heavy bleeding to the point of needing a blood transfusion too. I have heard (could be way off on this) that the medical community tends to avoid transfusions with lupus patients because it can encourage more autoimmune attacks... if the endometriosis is not the cause of the bleeding, but rather thrombocytopenia, a transfusion may not help as much as it could.

Best wishes to you. I hope you feel better soon.

  • 1 month later...
CaliSparrow Collaborator
CaliSparrow
Posted

I hope you're hanging in there TxPlowGirl. Hugs.

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