Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mojo Returning?

Celiac Mindwarp

Recommended Posts

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Hey

I am so excited. I just had a NORMAL day!!!!!

I looked after both kids at home while one got over a bug, did 3 loads of washing, 2 runs of dishwasher, cooked meals, made Christmas decorations with kids, made calls, tidied up.

That might not sound impressive to everyone, but I have dragged myself through the last few weeks, 3 glutenings, tired, crabby, couldn't concentrate.

I have been gluten-free since September, and have generally improved. I had a couple of really good weeks in October, then better than pre gluten-free but struggling.

So far it is 1 day, but even if I only get the odd day like this, it is so good to feel like me. It makes it easier to keep going. My plantar fasciitis has gone again too, no more hobbling.

Wishing good healing to you all :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Adalaide Mentor
Adalaide
Posted

That is awesome. Psh... not impressive? Maybe to the rest of the world. To us? We totally get it. It starts with one day. Next thing you know it'll be two, then three and eventually you'll stop counting. They'll just be intermittent good/bad days. (That is where I am.) Congratz on being normal! :D

mushroom Proficient
mushroom
Posted

I am very happy at the return of your mojo :) Long may it remain!

GFinDC Veteran
GFinDC
Posted

That's great MW! Nice to feel like a person again eh? Keep up whatever you are doing and the good days should get more frequent. :) Turning it around so the bad days are the unusual days is a definite possibility Congrats!.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted
  • Author

Thanks everyone

Hoping for another good day. Apart from anything else I need my brain to sort out paperwork and get the house sorted. Maybe I will get my Christmas cards done too :)

designerstubble Enthusiast
designerstubble
Posted

You guys are brilliant. You are all so on my planet! Nobody else gets it... Nobody else understands.

That one normal day... Bliss! I had one last week, actually no, I had 2! (I thought I was doing well until they said my intestines are still damaged)...

May your days of normality stretch into a lifetime!

myquest7846 Newbie
myquest7846
Posted

I was amazed at how good I felt when I decided to go on the Medifast gluten-free diet. At first I thought it was the new influx of protein in my diet. And then I thought it was the pounds finally coming off, but now I do truly think it is the lack of gluten I am taking in.

I keep reading as to how folks are feeling better once going truly gluten-free, and now I think I am finally joining the crowd!

I have never had the outward symptoms most others have had, have always been anemic, have been plagued with migraines for the past 10 yrs., and osteoporosis has made me have both knees replaced at 53. But now I am truly feeling like actually moving around, exercise is not the torture that it had been. And I find that I am accomplishing things in my days that I never thought I'd be able to complete. So if this is gluten free - I am willing and able to continue with the new lifestyle.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted
  • Author

Myquest it is great to hear things are improving so well for you.

I wish all the best for the holidays, and hope you continue to improve next year :-)

IrishHeart Veteran
IrishHeart
Posted

I just saw this thread (sorry to be so late) and wanted to say WHOOHOO! to getting your mojo .....and your groove.... back, MW.

(sorry you have the flu right now, but that is just a crappy part of life and soon you will be "good mojo-ing" once more.)

Addy will make fun of me now for making up another word.

I "get" why those days of feeling "like yourself" once again are cause for celebration. Hope you see many more of them in the coming weeks.

1090076-Clipart-Smiley-Emoticon-Celebrating-Royalty-Free-Vector-Illustration.webp

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted
  • Author

Thanks Irish :-)

I have picked up now, Mr Mw did the shopping and life is good. I knew I could count on you for a celebration.

Now, if only I can get emoticons to work since my phone upgrade, I am set for a fantastic 2013

:-) B-) :-* :-D O:-) :-P <3

IrishHeart Veteran
IrishHeart
Posted

I am set for a fantastic 2013

:-) B-) :-* :-D O:-) :-P <3

;) it's coming to you! believe it.

DavinaRN Explorer
DavinaRN
Posted

So fully understand. I sometimes think we are the only ones who understand each other. Here's to an awesome 2013

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lil-oly
      - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye.
    2. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thanks so much!
    3. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
    4. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician? Have you been checked for nutritional deficiencies? Osteoporosis? Thyroid? Anemia? Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the...
    5. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      @JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748
    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • lil-oly
      Gluten tester

      By lil-oly · Posted

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.