Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Stiff And Achy Is This Just Part Of It?


GFreeMO

Recommended Posts

GFreeMO Proficient

My gosh here lately, I am so so stiff and achy. I feel like I have the flu but I am not sick. I went to the dr. for this and was tested for lupus, RA, MS, Thyroid came back ok and arthritis and the blood work all came back ok except for elevated liver enzymes that I assume will straighten out after some time on the diet.

I am so tired of being stiff and achy. Any ideas?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular

Massage?

kareng Grand Master

I have been feeling like that. I started taking a beginner yoga for people with physical challenges. And I have been exercising more and my joint pain and stiffness seems to be going away.

shadowicewolf Proficient

weather?

gatita Enthusiast

I had horrible joint pain along with my GI stuff when all this started last year. I am sooo happy to say that after 6 months gluten-free all the pain and stiffness are gone.

Maybe it's a matter of time??

NorthernElf Enthusiast

I hear you. I have run the whole gamut of tests like you as well - everything is 'normal' except for the fact that I hurt ! The rheumy said I likely just have tendonitis......in my hands, wrists, elbows....runners knees....why do my ankles & feet hurt ? Neck pain and stiffness ? He doesn't know. Fatigue ? Doesn't know.

Guess I will just wait & see if anything develops. Cold weather is definitely worse...and I make sure I get enough rest. Sometimes that's just sitting down with a coffee or tea and relaxing here & there. Sometimes bloodwork doesn't show some conditions right away or at all. It is very frustrating.

I am very carefully gluten-free so I don't relate it to gluten at all.....only so far as celiac being an autoimmune and a chance of other autoimmune things developing.

dreacakes Rookie

I had these issues too. Joint pain, stiff, achy, easily got tendinitis, even had muscle spasms and other issues. All other autoimmune disorders tested negative, and no swelling at the sites of the pain. They told me I had "fibromyalgia" and just tried to give me pain pills. I declined!

What healed me was going on a totally grain free Paleo diet, and cutting out nightshade plants as well. The pain is due to inflammation from leaky gut, which won't heal on a regular gluten-free diet, and also from nutrient deficiencies due to the gut damage.

I also take sub-lingual B12 supplements and fermented cod liver oil (a great source of vitamin D, low levels of this nutrient are linked to pain. This is the best brand: Open Original Shared Link) Make sure you're eating foods with cholesterol in them as well, as it is actually essential to proper vitamin D absorption.

This condition is super common, I actually saw a doctor in Berkeley who knew exactly what it was and how to treat it, he was the one who got me on this diet in the first place.

The diet is really limiting, but totally worth it, I promise. If you need more info feel free to message me. :)

If you have a Kindle or reader, this book is helpful too: Open Original Shared Link

I hope you feel better soon!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Pegleg84 Collaborator

I also get the achiness, definitely after being glutened (for a couple days at least), but often without any link to something I might have eaten. I usually think it's sitting around too long at work or at home, but then why are my arms all achy and tingly?

They are right now, actually, and I know I have not eaten anything that could have been ccd with gluten/dairy/soy in over a week, but it started after I had a banana earlier this morning. So I don't get it.

I haven't been tested for arthritis or anything like that (maybe should? it runs in my family, but gad! I hope I'm too young for that to kick in now!), but it could be my vitamin levels or that "mild gastritis" still hasn't healed. I don't know!

GFreeMO, do you feel kind of jittery/tingly/unsteady as well?

It could just be that it's the middle of the winter and that's bad enough (depending on where you live).

Hope you figure it out!

Good to hear the Paleo diet is working for you, Dreacakes. I'm kind of too chicken to try it out. Yet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    2. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    5. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    VerafromNJ
    Newest Member
    VerafromNJ
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.