Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Loose Bowels, Again...

alesusy

Recommended Posts

alesusy Explorer
alesusy
Posted

Hello everybody

I have been dx last week (biopsy positive, 3b Marsh) and I've been gluten-free since December 2nd. I'm looking for reassurance, really... the first weeks of gluten-free diet went great, I felt better, my bowel movements were back to once a day and normal. Now since 5 days ago, the big D is back with me and today worse than in the last few days. Actually it's not really diarrhoea (sorry) more like very loose stools (sorry again) coming every two/three hours. Just like "before".

Is this normal? I am sure I have not been glutened: that did happen, round New Year's eve but it should be in the past.

On the other hand I

1)am not feeling really well, slight sore throat, coudl either be a virus OR be part of celiac

2) have been eating too many silly things: lots of Coke (I never do, I had a sort of weird craving), lots of sugary stuff including chocolate and gluten-free biscuits made by me and not made by me (possibly with milk or butter, which I cannot have), and to make up, lots of vegetable soup with beans in it.

so it is possible that my bowels are reacting angrily again. Did anybody else experience this in the first months? It's so discouraging... today I'm confining myself to rice, chicken and apples. We'll see. Please advise...

(my thyroid values are normal but I still have not had all the other check tests)

alessandra

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

If you change your diet, even for the good, it can take a while for a healthy gut to adjust. Your gut isn't healthy so it may be less resilent. You may not have been getting enough fiber, too much sugar, too much fiber, beans can be hard to digest, etc.

alesusy Explorer
alesusy
Posted
  • Author

Hello everybody

I have been dx last week (biopsy positive, 3b Marsh) and I've been gluten-free since December 2nd. I'm looking for reassurance, really... the first weeks of gluten-free diet went great, I felt better, my bowel movements were back to once a day and normal. Now since 5 days ago, the big D is back with me and today worse than in the last few days. Actually it's not really diarrhoea (sorry) more like very loose stools (sorry again) coming every two/three hours. Just like "before".

Is this normal? I am sure I have not been glutened: that did happen, round New Year's eve but it should be in the past.

On the other hand I

1)am not feeling really well, slight sore throat, coudl either be a virus OR be part of celiac

2) have been eating too many silly things: lots of Coke (I never do, I had a sort of weird craving), lots of sugary stuff including chocolate and gluten-free biscuits made by me and not made by me (possibly with milk or butter, which I cannot have), and to make up, lots of vegetable soup with beans in it.

so it is possible that my bowels are reacting angrily again. Did anybody else experience this in the first months? It's so discouraging... today I'm confining myself to rice, chicken and apples. We'll see. Please advise...

(my thyroid values are normal but I still have not had all the other check tests)

alessandra

I've been reading around. Hot American coffee in the morning And afternoon, ample doses of Coke and chocolate are NOT a good idea when your bowels need to heal. I'm going to stop the Coke and the choc completely, but also the coffee which I drink a lot, and we'll see what happens. comments are welcome anyway - a.

Lima Bean Newbie
Lima Bean
Posted

Coffee and coke, while wonderful inventions, are pretty acidic. Probably a good idea to cut back on them and try to eat a more "normal" diet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,807
    • Most Online (within 30 mins)
      7,748
    CeceNV
    Newest Member
    CeceNV
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Russ H
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Russ H · Posted

      The anti-endomysial antibody test is an old test that is generally reported as positive or negative - a lab technician looks down a microscope to check for fluorescence of the sample. It is less sensitive but more specific for coeliac disease than IgA tTG2. Hence, it is not "barely positive" - it is positive. People diagnosed in childhood recover much more quickly than adults.  I would look at testing all 1st degree relatives - parents, siblings.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What about digestive enzymes that I hear help? I take align 5x probiotics daily.
    • Samanthaeileen1
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Samanthaeileen1 · Posted

      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By Wheatwacked · Posted

      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      Thoughts? Non-endoscopic Celiac diagnosis in two year old

      By RMJ · Posted

      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.