Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Supplements To Help Heal A Damaged Leaky Gut?


LFitts

Recommended Posts

LFitts Apprentice

My daughter, diagnosed celiac in November, so gluten free nearly two months now, is having a hard time no matter what she eats. She has a tremendous amount of damage - seen on her endoscopy / colonoscopy - and her GI told us that it will take 6 months to a year for her body to heal.

My question is what have are you taking to promote healing? I would like to add digestive enzymes, more probiotics (currently she eats yogurt and drinks kefir), and maybe Vitamin C in addition to the multivitamins she takes. What has worked for you? I can't stand watching her suffer after eating for a year! I know that we probably need to cut out the dairy, but she is very resistant to this. For those of you who have cut out milk, do you have an easier time with cheeses? I am open to suggestions and trying to learn -- all of this is still quite new to us.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

I would honestly suggest cutting out dairy just for a while. Sorry she has to forego cheese for a bit, but temporary lactose intolerance is quite common with celiac and as the villi regrow and her gut heals, she'll likely get that easy digestion of dairy back. If not, she could take LactAid pills.

You can substitute in So Delicious coconut milk and coconut ice cream products.

They taste great!

Jules Shephard a celiac who is also a gluten-free/DF baker and chef has many suggestions for those who need to be both

Open Original Shared Link

Probiotics and digestive enzymes can help until your daughter's digestive tract heals more.

My hunch is the dairy may be causing the problem..

Honestly, raw kefir can be difficult for her gut right now as it can cause diarrhea.

Just some thoughts.

Hope she feels better soon!

Seifer Rookie

I have heard that bone broth/gelatin is good for healing digestive tract, it contains lots of the amino acids glycine and proline utilized in mucus membranes and such

nvsmom Community Regular

L-glutamine is supposed to be good for healing. Before I was dignosed, I used to take it around really tough weight workouts and it really improved my healing time and next day stiffness. Many around here say it helps the gut too.

Nettle (I think it is) is supposed to be good for reducing inflammation as well.

Papaya enzymes are supposed to aid digestion and may help.

Otherwise, the others gave what I consider to be good advice. :)

strkngfang Newbie

I agree, that the dairy has to go. There is also Almond milk, that is lactose free and tastes good. If you decide to try the glutamine, be careful, because it will cause nausea in some people. I've tried two different products containing it for healing and I couldn't stomach either one. Apparently this happens to more people than you would think. Best of luck to you.

LFitts Apprentice

Here's our action plan so far.

Remove dairy / replace with almond milk or rice milk.

Drastically reduce sugar - we have replaced it with local honey, but trying to continue to cut out more.

Add daily tablet form acidophilous, kefir smoothie (says its over 99% lactose free), and water kefir for probiotics.

(I had not heard that kefir can cause problems -- she seems to handle the smoothies really well)

Broth daily, even if it's just a little, and pineapple for the enzymes.

Coconut oil and milk in place of vegetable oils and milk in recipes.

Multivitamin plus additional Vitamin C, B complex.

As much whole food as possible.

She's currently also taking a daily prilosec to keep stomach acid down, and bentyl for stomach cramping / pain as needed.

Oh, and aloe juice? Are any of you taking aloe juice? I love aloe so much for external injuries that I feel drawn to using it for her internal healing as well. From reading about it, it seems that a lot of people are using it for digestive health.

JNBunnie1 Community Regular

It is likely with this diet change that the prilosec will become unnecessary,

just something to keep in mind. Sounds like you are on the right track!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1desperateladysaved Proficient

It may be a good thing to test nutrient levels. Then you can give only the needed nutrients. I did a nutra-val test for mine.

ClayD Newbie

My humble opinion is: Forget the suplements right now, and focus on finding a good diet that she (and you!) can both enjoy together.

Being gluten-free & Dairy-free can be difficult at first, until your find a trusty arsenal of your favorite meals and snacks that you can prepare or pick up. Look at all the Blogs, talk to your GI doc., and consult a nutritionist if you can afford it.

I would also recommend looking into the "Paleo Diet"...aka The paleolithic Diet. It's a grain free, Dairy free way of eating that generally satifies everyone in the family: Lots of meat, broths, vegetables, fruits and whole foods, that can really be delicious.

I wish you well! You're a great mother for doing your best!

C.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      Rectal pain

    2. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Guinness, can you drink it?

    3. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      6

      Related issues

    4. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Brain fog

    5. - Clear2me replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Gluten free nuts


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,276
    • Most Online (within 30 mins)
      7,748

    Sandra Hawn
    Newest Member
    Sandra Hawn
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this.  I am not a medical person but it seemed like the extra pressure down there perhaps added pressure to already sensitised pelvic and rectal muscles. Coeliacs can suffer from bloating when they are first diagnosed due to the inability to digest food properly.  Lactose for me caused a lot of bloating and when I came off it temporarily after diagnosis it helped reduce bloating.  Iron supplements and the timing of taking them also caused discomfort and I had to experiment a bit with type and timing before my gut felt comfortable.   Maybe something to think about?   Some coeliacs suffer from constipation - again, just a thought, but perhaps if you had issues with that it might be a contributor.
    • Rogol72
      At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
    • Mari
      Hi jmartes, I brought up doTerra's website and see that they do have many supplements, offer  support and help. And using their organic products has been helpful. and yet you are not able to work enough to support yourself when, if you were healtht, you could work for another 20 years. It does not seem that they offer a program to follow and instead are offering supplements for your symptoms. This has helped you but you are not able to work very much.  The Programs I have seen  online usually have 3 parts. The first is a Parasite cleanse. The 2nd is the Kidney cleanse and the  3rd is a Liver cleanse and gallbladder cleanse. You need to doall these cleanses to have your whole body functioning well. I can only reccommend the program I gave you because that is the one I used and still do. (drclark.net)  When I see a newprovider and tell I have Celiacs and they look skeptical I tell them that when I am gluttoned the reaction happens 8 or more hours later with intestinal painful cramping followed by diarrhea. Providers are willing to accept tha I probably have Celiacs and are more likely order tests such as vitamin levels. Is this what happens if you eat only a small amount of Gluten? You mentioned going to Mayors. 20 years ago many Dr.s wanted to include a celiac screening as a standard test so that more people eould diagnosed and not become disabled. It did not happen but the Federal levgislature did pass a law so that Celiacs could claim deductions for the gluten free food they bought. What were you going to ask the Mayors to do?
    • Colleen H
      How bad can this get ?? Does it go away??  How long ? Thank you 
    • Clear2me
      Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat.  I am going to keep checking. Thank you. The Azure Market looks promising 😁 Take care S
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.