Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reacting To Wheat Vodka? Is That Even Possible?


ButterflyChaser

Recommended Posts

ButterflyChaser Enthusiast

Hi all!

I have spent some time back home (Italy) and generally didn't have much problems eating out, because servers and sometimes even cooks go out of their way to give you a dish similar to what everyone else is having but without gluten and grains; nor had I problems staying home, because my mother had secured different nonstick pans for me, and my family is beginning to like my grainless cooking.

Then one day I went to a lovely fish restaurant. Everything was fine till dessert (usually my reactions, especially edema and swelling, come rather quickly, 20 minutes or so), which consisted just of fruit, pineapple, dates, oranges, berries et cetera, each soaked in different spirits, cognac, grappa, and wheat vodka.

By the time I got into the car I started feeling awful, my tummy swell a lot, my legs swelled, and I started having first some kind of anxiety and then lethargy as I would get before going gluten-free.

Could it have been vodka? But isn't vodka supposed to be a safe drink? I know I can drink cognac and grappa just fine, and I customarily eat those fruits, too, with no problem. I never had problems with the kind of fish I had, before or after the event. They seemed very careful about cross contamination.

Has anyone here had problems with vodka?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

I drank vodka for some time during my early gluten-free days - eventually I was unable to. I switched to potato vodka but reacted to that as well. I think it is more about alcohol being tough on a damaged digestive system than the grain involved - as the distillling process removes the gluten proteins - from what I understand.

Another possibility is something you ate at the restaurant was cross contaminated in the kitchen.

Try drinking plain vodka to check for a reaction - I certainly miss my cosmos and raspberry martinis and did not give them up without much contemplation ;)

ButterflyChaser Enthusiast

Thanks! I think I won't try the vodka-challenge for a while though. I swelled for over 8 lbs for, like, less than half a shot, and that has not gone off yet.

dilettantesteph Collaborator

I have reacted to wheat vodka, but I can drink alcohol in another form. I am very sensitive, however and eat very few processed foods.

hoggja Newbie

I have also reacted to wheat derived vodka and I am super sensitive. I know drink potato vodka with no problems.

Good luck!

ravenwoodglass Mentor

I do react to wheat based distilled spirits. Not many of us do but it is possible. I have no issues at all with potato based vodkas or other non-gluten grain derived alcohols.

Hala Apprentice

I've had problems with tolerating any alcohol since my first coeliac symptoms started to arise....I completely skip the drunk stage and go straight to an awful sick/hangover stage....anyone else find alcohol a problem? Does this go away as we recover? I'm only recently diagnosed...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lady Eowyn Apprentice

Hi

I was lucky enough to have a beautiful cocktail at a posh hotel just before Christmas - totally yum - totally glutened! :angry: . I was so cross - only have one of these a year and now it's off the list.

Apart from this I only drink wine - a glass here and there. Since gluten free I have a job drinking it - have a small glass (yum again!) but feel it after a couple of mouthfuls and by the time I get to the bottom of the glass feel like I have drunk most of a bottle :blink: . Good value I suppose but I don't think my stomach likes it.

Celiac Mindwarp Community Regular

I have reacted to vodka since my 20s, with vomiting and instant skin rashes. I gave up in the end. I gave up all alcohol in the end 15 years later. Flavored vodkas were the worst (and the worst times were in Italy, as it happens). I have NCGI.

ButterflyChaser Enthusiast

I have reacted to vodka since my 20s, with vomiting and instant skin rashes. I gave up in the end. I gave up all alcohol in the end 15 years later. Flavored vodkas were the worst (and the worst times were in Italy, as it happens). I have NCGI.

Ouch, I knew our flavoured vodka were awful, but didn't know they were also bad for you :P . I am lucky that I consider the flavored ones totally revolting. I get shivers at the simple thought of the infamous canteloupe vodka.

I feel less weird now. It is so interesting that many of us cannot stomach alcohol. I have always been a very light drinker also for that reason: my drunk state kicks in after two glasses of wine, and it feels horrible: lethargy, headache, weakness in my joints, severe grumpiness, et cetera. Not exactly my idea of fun.

~**caselynn**~ Enthusiast

Twenty2 vodka is gluten free, labeled and everything. It's also made in my hometown in Maine! www.twent2vodka.com check it out!

Celiac Mindwarp Community Regular

Hahaha - melon vodka was the worst!! I broke out all over my face and body in 2 minutes. I always had a reputation as a lightweight, now I know why :)

ButterflyChaser Enthusiast

Hahaha - melon vodka was the worst!! I broke out all over my face and body in 2 minutes. I always had a reputation as a lightweight, now I know why :)

My respect to you for having the guts to drink the abominable melon vodka.

No, wait...

:lol:

Celiac Mindwarp Community Regular

It was a memorable night :)

Well, I say memorable...

GottaSki Mentor

Funny....someone knew my love of mixing fun vodka martinis -- this was long before diagnosis -- brought me Grey Goose Vanilla -- I mixed up something we decided tasted like Juicy Fruit Gum -- yes it was a great, fun night -- I woke in the middle of the night -- hubby thought I might be getting sick from too much al-key-hall -- no I was a rash from head to toe -- too bad I dismissed many of these one off clues over the years.

Celiac Mindwarp Community Regular

Me too, could have saved over 20 years....

Oh well, maybe someone reading this will have the penny drop :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,025
    • Most Online (within 30 mins)
      7,748

    Amari Love
    Newest Member
    Amari Love
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.