Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Reacting To Wheat Vodka? Is That Even Possible?


ButterflyChaser

Recommended Posts

ButterflyChaser Enthusiast

Hi all!

I have spent some time back home (Italy) and generally didn't have much problems eating out, because servers and sometimes even cooks go out of their way to give you a dish similar to what everyone else is having but without gluten and grains; nor had I problems staying home, because my mother had secured different nonstick pans for me, and my family is beginning to like my grainless cooking.

Then one day I went to a lovely fish restaurant. Everything was fine till dessert (usually my reactions, especially edema and swelling, come rather quickly, 20 minutes or so), which consisted just of fruit, pineapple, dates, oranges, berries et cetera, each soaked in different spirits, cognac, grappa, and wheat vodka.

By the time I got into the car I started feeling awful, my tummy swell a lot, my legs swelled, and I started having first some kind of anxiety and then lethargy as I would get before going gluten-free.

Could it have been vodka? But isn't vodka supposed to be a safe drink? I know I can drink cognac and grappa just fine, and I customarily eat those fruits, too, with no problem. I never had problems with the kind of fish I had, before or after the event. They seemed very careful about cross contamination.

Has anyone here had problems with vodka?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

I drank vodka for some time during my early gluten-free days - eventually I was unable to. I switched to potato vodka but reacted to that as well. I think it is more about alcohol being tough on a damaged digestive system than the grain involved - as the distillling process removes the gluten proteins - from what I understand.

Another possibility is something you ate at the restaurant was cross contaminated in the kitchen.

Try drinking plain vodka to check for a reaction - I certainly miss my cosmos and raspberry martinis and did not give them up without much contemplation ;)

ButterflyChaser Enthusiast

Thanks! I think I won't try the vodka-challenge for a while though. I swelled for over 8 lbs for, like, less than half a shot, and that has not gone off yet.

dilettantesteph Collaborator

I have reacted to wheat vodka, but I can drink alcohol in another form. I am very sensitive, however and eat very few processed foods.

hoggja Newbie

I have also reacted to wheat derived vodka and I am super sensitive. I know drink potato vodka with no problems.

Good luck!

ravenwoodglass Mentor

I do react to wheat based distilled spirits. Not many of us do but it is possible. I have no issues at all with potato based vodkas or other non-gluten grain derived alcohols.

Hala Apprentice

I've had problems with tolerating any alcohol since my first coeliac symptoms started to arise....I completely skip the drunk stage and go straight to an awful sick/hangover stage....anyone else find alcohol a problem? Does this go away as we recover? I'm only recently diagnosed...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lady Eowyn Apprentice

Hi

I was lucky enough to have a beautiful cocktail at a posh hotel just before Christmas - totally yum - totally glutened! :angry: . I was so cross - only have one of these a year and now it's off the list.

Apart from this I only drink wine - a glass here and there. Since gluten free I have a job drinking it - have a small glass (yum again!) but feel it after a couple of mouthfuls and by the time I get to the bottom of the glass feel like I have drunk most of a bottle :blink: . Good value I suppose but I don't think my stomach likes it.

Celiac Mindwarp Community Regular

I have reacted to vodka since my 20s, with vomiting and instant skin rashes. I gave up in the end. I gave up all alcohol in the end 15 years later. Flavored vodkas were the worst (and the worst times were in Italy, as it happens). I have NCGI.

ButterflyChaser Enthusiast

I have reacted to vodka since my 20s, with vomiting and instant skin rashes. I gave up in the end. I gave up all alcohol in the end 15 years later. Flavored vodkas were the worst (and the worst times were in Italy, as it happens). I have NCGI.

Ouch, I knew our flavoured vodka were awful, but didn't know they were also bad for you :P . I am lucky that I consider the flavored ones totally revolting. I get shivers at the simple thought of the infamous canteloupe vodka.

I feel less weird now. It is so interesting that many of us cannot stomach alcohol. I have always been a very light drinker also for that reason: my drunk state kicks in after two glasses of wine, and it feels horrible: lethargy, headache, weakness in my joints, severe grumpiness, et cetera. Not exactly my idea of fun.

~**caselynn**~ Enthusiast

Twenty2 vodka is gluten free, labeled and everything. It's also made in my hometown in Maine! www.twent2vodka.com check it out!

Celiac Mindwarp Community Regular

Hahaha - melon vodka was the worst!! I broke out all over my face and body in 2 minutes. I always had a reputation as a lightweight, now I know why :)

ButterflyChaser Enthusiast

Hahaha - melon vodka was the worst!! I broke out all over my face and body in 2 minutes. I always had a reputation as a lightweight, now I know why :)

My respect to you for having the guts to drink the abominable melon vodka.

No, wait...

:lol:

Celiac Mindwarp Community Regular

It was a memorable night :)

Well, I say memorable...

GottaSki Mentor

Funny....someone knew my love of mixing fun vodka martinis -- this was long before diagnosis -- brought me Grey Goose Vanilla -- I mixed up something we decided tasted like Juicy Fruit Gum -- yes it was a great, fun night -- I woke in the middle of the night -- hubby thought I might be getting sick from too much al-key-hall -- no I was a rash from head to toe -- too bad I dismissed many of these one off clues over the years.

Celiac Mindwarp Community Regular

Me too, could have saved over 20 years....

Oh well, maybe someone reading this will have the penny drop :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    4. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    5. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.