Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Don't I Get Sick Right When I Eat Gluten?

gancan

By gancan
in Coping with Celiac Disease

Recommended Posts

gancan Apprentice
gancan
Posted

I have always noticed that I usually don't feel sick for an hour or sometimes hours after I have eaten something that contained gluten.. I have been reading a lot of posts and it seems like a lot of people feel the effects almost immediately.. For example if I eat dinner.. I may feel fine the rest of the night and think I have successfully avoided gluten, but then I find myself awake at 1am covered in sweat and rolling around in bed with horrible stomach pains..

Is there a reason that it doesn't hit me right away? There are times when I start feeling sick within an hour and then I know i'll be stuck on the couch the rest of the night but more often it hits me later.. i'm just curious

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CommonTater Contributor
CommonTater
Posted

I have no idea why. When we went out to eat recently I got sick as soon as we got home and stayed in the bathroom for a LONG time that night. My tummy was torn up bad! It took about a week before my stomach pains ended. Last night I think it was the chili we ate on a hotdog and that didn't effect me till this morning.

Today I'm rolling in the bed, I hate when I don't check something good enough and pay for it!

shadowicewolf Proficient
shadowicewolf
Posted

Everyone is different. :)

who knows really :) it could be something to do with how you personally matabolize things.

flowerqueen Community Regular
flowerqueen
Posted

I think it's because we are all individual and not everything effects us all in the same way. It may also be different on each occasion we get glutened too.

Celiac Mindwarp Community Regular
Celiac Mindwarp
Posted

Sometimes takes a couple of days before I am sick after glutening. I get tired on the first day and anxious, migraine the second day, then sickness and D the next day. It takes about a week to get over it usually.

gluten-is-kryptonite Apprentice
gluten-is-kryptonite
Posted

Same thing happens to me. Seems to take a few hours and sometimes my stomach doesnt hurt until the next meal. This makes it really hard to figure out what it was that you got glutened from.

flowerqueen Community Regular
flowerqueen
Posted

Sometimes takes a couple of days before I am sick after glutening. I get tired on the first day and anxious, migraine the second day, then sickness and D the next day. It takes about a week to get over it usually.

That's very interesting. I had a migraine yesterday (and part of the previous day) about midnight last night I started with nausea and stomach cramping and constant visits to the bathroom. I may re-commence my food diary, to see if it sheds any light on my situation.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kate79 Apprentice
Kate79
Posted

Could be the amount of gluten you're getting. I can only think of a couple of times when I had an immediate reaction (D) and I'm pretty sure it was due to the large amount of gluten the food was contaminated with. My usual reaction to a small amount of contamination is a migraine the next afternoon, with bloating, gas and other stomach issues coming the day after that.

flowerqueen Community Regular
flowerqueen
Posted

I've noticed a lot of people on here getting migraine after been contaminated with gluten.

gfreejz Rookie
gfreejz
Posted

It takes 4-8 hours for me to get a reaction also. I think that my body is ok until the gluten hits my intestines. Then its the D. Usually this is about 1-2 am and I wake up and have to go. For me I have in the past always gotten CC'd at dinner time- at a restaurant or others' house. When I get immediately sick, its a CC combo of gluten and dairy. When I used to drink caffeine, my reactions were a little faster, say 2-4 hours. I think its the speed of your digestion and when the gluten hits the part of your guts that trips the trigger.

I suggest 2-3 doses of probiotics right away to help. That much probiotics usually is pretty hard on my stomach but after CC, it helps shorten the duration to under a day. - I picture the probiotics in my guts as trigger happy marines. They go in shoot up the place then burn it down. Its not peaceful, but they get er done. :)

gancan Apprentice
gancan
Posted
  • Author

Wow this was really helpful.. I always thought it was strange that it didn't hit me right away.. now I feel much better!! :D Thanks everyone for your responses!

Framefunnyfarm Newbie
Framefunnyfarm
Posted

It takes me 1-2 days to react most of the time. The previous poster's thought of it being a more minor CC that takes a couple days to show up is my thought as well. I am careful not to consume direct gluten, but suck at being lax and eating out and taking the chance of CC. It is hard that it takes a couple days to show up, it makes it harder for me to pin point what made me sick.

chip Newbie
chip
Posted

It takes me 1-2 days to react most of the time. The previous poster's thought of it being a more minor CC that takes a couple days to show up is my thought as well. I am careful not to consume direct gluten, but suck at being lax and eating out and taking the chance of CC. It is hard that it takes a couple days to show up, it makes it harder for me to pin point what made me sick.

I think it varies from person to person.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Lkg5
      - Lkg5 replied to Charlie1946's topic in Related Issues & Disorders
      44

      Severe severe mouth pain

      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    2. Lkg5
      - Lkg5 commented on Scott Adams's article in Diagnosis, Testing & Treatment
      1

      Rapid Diagnosis of Celiac Disease Using Blood-Based Infrared Spectroscopy and Deep Learning

      Wow!!! 😂
    3. Charlie1946
      - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      44

      Severe severe mouth pain

      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor. I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle
    4. Aretaeus Cappadocia
      - Aretaeus Cappadocia posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods re...
    5. Scott Adams
      - Scott Adams replied to wellthatsfun's topic in Gluten-Free Recipes & Cooking Tips
      1

      heaps of hope!

      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to bui...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,097
    • Most Online (within 30 mins)
      7,748
    Hana B
    Newest Member
    Hana B
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Lkg5
      Severe severe mouth pain

      By Lkg5 · Posted

      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      Severe severe mouth pain

      By Charlie1946 · Posted

      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
    • Aretaeus Cappadocia
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Aretaeus Cappadocia · Posted

      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods regarding their product "Organic Brown Rice Vinegar" (product of Japan) to ask how their product is made. They gave me a clear answer that they >do< use rice and they >do not< use wheat or barley in preparing their koji. FWIW, the product itself does not contain any labeling about gluten, gluten risk, or gluten safety. Based on Eden's statement, I am going to trust that this product is gluten safe and use it.
    • Scott Adams
      heaps of hope!

      By Scott Adams · Posted

      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to build kitchen skills, eat more whole foods, and actually enjoy the process. Your point that the basics—knife skills, food safety, and experimenting with spices—are all you really need is solid, helpful advice. It’s a good reminder that the diagnosis, while a pain, doesn’t have to stop you from eating well or having fun with food.
    • Scott Adams
      Fruits & Veggies

      By Scott Adams · Posted

      You are experiencing a remarkable recovery by addressing core nutrient deficiencies, yet you've uncovered a deeper, lifelong intolerance to fruits and vegetables that appears to be a distinct issue from celiac disease. Your experience points strongly toward a separate condition, likely Oral Allergy Syndrome (OAS) or a non-IgE food intolerance, such as salicylate or histamine intolerance. The instant burning, heart palpitations, and anxiety you describe are classic systemic reactions to food chemicals, not typical celiac reactions. It makes perfect sense that your body rejected these foods from birth; the gagging was likely a neurological reflex to a perceived toxin. Now that your gut has healed, you're feeling the inflammatory response internally instead. The path forward involves targeted elimination: try cooking fruits and vegetables (which often breaks down the problematic proteins/chemicals), focus on low-histamine and low-salicylate options (e.g., peeled pears, zucchini), and consider working with an allergist or dietitian specializing in food chemical intolerances. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.