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Pain! Help!

Lanimo

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Lanimo Rookie
Lanimo
Posted

I have a previous post with more info, but right now I need advice in pain management. I ended up in the ER last night for abdominal pain. I had level 10 pain down my left side front and back while trying to go to the bathroom. For 3 hours I was at a level 8 pain in lower back and gut, both sides. They ended up giving me pain meds, but these always cause constipation which equals more pain.

I have endoscopy colonoscopy for march 5th so I can't stop eating gluten until then.

Any suggestions?

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JessF Rookie
JessF
Posted

So sorry you are going through that! I am also waiting on the endoscocpy while glutening myself, UGH! I have done some research and alot of people say to drink tons of water, make ginger tea, eat healthy foods (fruits and veggies), eat healthy fats like olive oil, avacodos all to help with the glutening and to flush the toxins out of your body. I have my endoscopy in three days so I only have to torture myself a little bit longer. I bought some ginger chews and eat those after I eat gluten which I am only doing 1 time a day, the bare minimum. Good luck! I am sure others whom have more experience than me will chime in.I am totally new to this whole celiac/gluten free life:) Just wanted to let you know that you are not alone!

pricklypear1971 Community Regular
pricklypear1971
Posted

Perhaps a good masseuse (acupressure) and/or acupuncture until you can get off gluten? That may allow you take less pain meds?

I swear this dx process is barbaric. They've got to find another testing method.

Lanimo Rookie
Lanimo
Posted
  • Author

Thanks for they replies. Even though i wouldn't wish this on anyone, it is comforting to know i'm not alone. I actually have a really bad reaction to avocado even though my allergy test came back negative. another weird stomach thing, and the same thing happens when i eat eggs.

I actually got a massage yesterday, and it was amazing. I would recommend it to anyone currently dealing with pain... or even people with out it.

Since my trip to the ER, I've gotten bumped to "emergency status" so I will get to have my scopy's this week. There definitely has to be something better than a month wait for diagnosis.

gatita Enthusiast
gatita
Posted

Oh how awful for you! My GI actually called off my pre-endo gluten challenge after two days because he didn't like my reaction. I didn't argue!

I feel bad for you having to tough through so much agony.

Glad to hear they moved the scopes up sooner though! And the massage sounds heavenly.....

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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