Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This Advice Helped

VAGuy

Recommended Posts

VAGuy Apprentice
VAGuy
Posted

I was really having a rough time trying to get ready to send off to Enterolab and I went back and re-read the info my dietician had given me. This part really helped.

"If you have persistent diarrhea, it will be necessary to follow a very strict diet, eliminating all milk and milk products prepared without Lactaid; fatty foods; and high-residue foods, such as raw fruits and vegatables, nuts and seeds. Cocoa, chocolate, citrus juice, cold or carbonated drinks, and alcohol need also to be excluded temporarily. Lean meats, skinned chicken and turkey, and fish will be your main sources of protein."

High residue foods equates for me to just about any fiber at all - two sources of fiber at one meal can be a problem, sauted green peppers are bad, laso dried skinned fruits.

Fatty foods - means well cooked bacon or 50% reduced fat sausage in AM does not work for me, UTZ Cheese Curls between meals is bad, dinner sausage is bad.

Chocolate chip cookies with no fiber really set me back.

gluten-free yogurt seemed to bother yesterday.

Minimizing anything sweet seems to help, and juices are out.

So whats good?

Bananas are backI've missed them so much and they do not bother.

Smucker's jellies and preserves are gluten-free, and since a tablespoon has 12g sugar, I probably only get 6g on a slice of toast which does not bother - and lots of flavors.

Mandarin oranges and crushed pineapple are low in fiber.

Successfully made a loaf of edible bread (previously - 2 abject failures, 1 flop, and one pathetic cake, I can do cookies).

This really has helped me, makes life more predictable/enjoyable.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gf4life Enthusiast
gf4life
Posted
I was really having a rough time trying to get ready to send off to Enterolab

Hi VAGuy,

What are you waiting for? :huh: You can do the tests on any diet you are on. If you have diarrhea, it does not matter. They are testing the levels of antibodies in your stool and the amount of fat that would indicate malabsorbtion. You do not have to be gluten-free or dairy-free. You do not have to wait until the diarrhea subsides, or anything like that. If you are gluten-free, that is okay too. If you are on a reduced gluten diet, that is okay. Anything works. I hope you send them off soon.

If you are also doing the gene test, it does not matter what you are eating for that one.

God bless,

Mariann

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,665
    • Most Online (within 30 mins)
      7,748
    Christa Cook
    Newest Member
    Christa Cook
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.