Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Im Newbie And A Oldy


Stubborn red head

Recommended Posts

Stubborn red head Apprentice

My mother diagnosed me and herself ten years ago. I didn't believe it. I had been sick for so long, and didn't know what to believe anymore. I was 16 years old but I was exhausted of doctors and tests and being poked and prodded.

As far as I know I am not celiac, I am Intolerant to the Gluten grain. I can have it but at times I am unable to process, over the years I have found that my system does better with small amounts of complex carbs (bread, pasta etc..) Here lately I have been having really bad stomach issues. So I have now been on the diet for two weeks and I am feeling better physically, mentally my whole system is better, My temper is calmed down, my head is more clear. It has made such a difference to my body in the last week.

I know that I am gonna have to stay on this diet for a while but I am having issues following the diet, helping my husband understand why I am doing this, figuring out what is safe and not safe.

Do I got 100% gluten free or do I just avoid the complex carbs like breads, pastas, cakes, cookies, anything that has wheat flour in it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Welcome!

The effects you are describing are consistent with celiac disease. It has many symptoms, which vary from individual case to case. Have you actually been tested for celiac disease? Your mother "diagnosed" you--how?

If indeed you do have celiac disease, you must completely avoid wheat, rye and barley. You will not heal and recover on "gluten light."

You will find help and support here. At first, it seems overwhelming, but it is not. There are so many things that you CAN eat safely. Focus on them.

Fresh from the butcher meats; plain fruits and vegetables; eggs; many foods by Kraft, ConAgra, General Mills and Unilever (they will clearly disclose gluten grains in their ingredient lists).

Come here with your questions. Someone here will know the answer.

IrishHeart Veteran

Peter has given you the best advice and I agree totally.

You can check out my thread "Newbie Info 101" in the coping section for some tips on avoiding gluten, etc.including safe foods, cross contamination issues, etc.

See if anything there helps? :)

Best wishes and welcome!

Stubborn red head Apprentice

I found out today that I really need to be fully Gluten free I had a wonder teriyaki tilapia dish that was wonderful. But within 10 minutes I felt like I had to go to the bath room and now, with no end in site for two hours. My Stomach was in real bad shape.

My mother Decided that I had Celiac was 16 by taking my health history, and all of my symptoms, talked to the team of doctors that was over seeing my care in the hospital about the possibility it could be celiac (she found it online). They said that there was a real possibility that I am. They did a few tests all coming back negative. They informed us that this was the first real lead to what was causing me to be as sick as I was.

** Back history Kidney failure, Gallbladder removed at 15 and on 3 different antacids to help with Acid Reflux and a brain deformity, week tendons, and joints, just to skim the surface.

Even with the test being negative the doctors said that it was a good idea to put her and I on the diet to see if it improved our health. I got better but I didn't quite get it and rebelled against it for years. She has been gluten-free for 10 years and at the peak of health.

mushroom Proficient

Sounds like if you want to feel better you are going to have to be a stubbornly gluten-free redhead :) Drink plenty of water and I hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

    2. - Russ H replied to Ginger38's topic in Related Issues & Disorders
      27

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - GFhappygirl commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

    4. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

    5. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,715
    • Most Online (within 30 mins)
      7,748

    Diane G
    Newest Member
    Diane G
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
    • knitty kitty
      @Heatherisle, You have good reason to worry.   Ask the doctors to do an Erythrocyte Transketolace Activity Assay to test for Thiamine B1 deficiency.  Thiamine deficiency is frequently found in B12 deficiency.  Deficiencies in all the B vitamins are common with malabsorption due to Celiac disease.  Thiamine can run out in as little as three days.   Thiamine deficiency symptoms can be mistaken for other diseases such as MS and Guillian-Barre Syndrome.  Thiamine deficiency symptoms include pain in legs and abdominal pain as well as depression and gastrointestinal symptoms. Thiamine B1, Pyridoxine B6 and Cobalamine B 12 together relieve nerve pain. References and Interesting Reading: Wernicke’s encephalopathy mimicking multiple sclerosis in a young female patient post-bariatric gastric sleeve surgery https://pmc.ncbi.nlm.nih.gov/articles/PMC8462913/ Thiamine Deficiency Masquerading As Guillain-Barré Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11872742/ Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke’s Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC6429982/ Is there a Link between Vitamin B and Multiple Sclerosis? https://pubmed.ncbi.nlm.nih.gov/28875857/ Thiamine Deficiency and Neurological Symptoms in Patients with Hematological Cancer Receiving Chemotherapy: A Retrospective Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC8559079/ The Effects of Vitamin B in Depression https://pubmed.ncbi.nlm.nih.gov/27655070/ Thiamine Deficiency Neuropathy in a Patient with Malnutrition due to Melancholic Depression https://pmc.ncbi.nlm.nih.gov/articles/PMC10942818/ Myopathy in thiamine deficiency: analysis of a case https://pubmed.ncbi.nlm.nih.gov/16920153/ Neurologic complications of thiamine (B1) deficiency following bariatric surgery in adolescents https://pubmed.ncbi.nlm.nih.gov/38705013/ B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pubmed.ncbi.nlm.nih.gov/31490017/ Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults https://pmc.ncbi.nlm.nih.gov/articles/PMC6459027/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Update on Safety Profiles of Vitamins B1, B6, and B12: A Narrative Review https://pmc.ncbi.nlm.nih.gov/articles/PMC7764703/  
    • Heatherisle
      Hi  There’s been no mention of her adrenal glands as far as I know
    • Theresa2407
      Have they checked her Adrenal glands.    
    • Heatherisle
      Just an update on my daughter. She is still in hospital and getting quite depressed about everything. She had a CT scan of head and chest to rule out stroke in view of her symptoms. Thankfully there is no evidence of that so they now want to do an MRI to rule out MS so this is freaking her out and it’s not doing me much good either!!!They’re also going to do further blood tests to check vitamin levels. My husband and I are trying to reassure her the best we can that hopefully it’s just her body’s reaction to having the Vitamin B medication and it’s affecting her nervous system etc. Think the tingling has subsided but still having some lower back and pelvic pain and some leg pain. Thanks for reading and my apologies if I sound paranoid.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.