Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Im Newbie And A Oldy


Stubborn red head

Recommended Posts

Stubborn red head Apprentice

My mother diagnosed me and herself ten years ago. I didn't believe it. I had been sick for so long, and didn't know what to believe anymore. I was 16 years old but I was exhausted of doctors and tests and being poked and prodded.

As far as I know I am not celiac, I am Intolerant to the Gluten grain. I can have it but at times I am unable to process, over the years I have found that my system does better with small amounts of complex carbs (bread, pasta etc..) Here lately I have been having really bad stomach issues. So I have now been on the diet for two weeks and I am feeling better physically, mentally my whole system is better, My temper is calmed down, my head is more clear. It has made such a difference to my body in the last week.

I know that I am gonna have to stay on this diet for a while but I am having issues following the diet, helping my husband understand why I am doing this, figuring out what is safe and not safe.

Do I got 100% gluten free or do I just avoid the complex carbs like breads, pastas, cakes, cookies, anything that has wheat flour in it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

Welcome!

The effects you are describing are consistent with celiac disease. It has many symptoms, which vary from individual case to case. Have you actually been tested for celiac disease? Your mother "diagnosed" you--how?

If indeed you do have celiac disease, you must completely avoid wheat, rye and barley. You will not heal and recover on "gluten light."

You will find help and support here. At first, it seems overwhelming, but it is not. There are so many things that you CAN eat safely. Focus on them.

Fresh from the butcher meats; plain fruits and vegetables; eggs; many foods by Kraft, ConAgra, General Mills and Unilever (they will clearly disclose gluten grains in their ingredient lists).

Come here with your questions. Someone here will know the answer.

IrishHeart Veteran

Peter has given you the best advice and I agree totally.

You can check out my thread "Newbie Info 101" in the coping section for some tips on avoiding gluten, etc.including safe foods, cross contamination issues, etc.

See if anything there helps? :)

Best wishes and welcome!

Stubborn red head Apprentice

I found out today that I really need to be fully Gluten free I had a wonder teriyaki tilapia dish that was wonderful. But within 10 minutes I felt like I had to go to the bath room and now, with no end in site for two hours. My Stomach was in real bad shape.

My mother Decided that I had Celiac was 16 by taking my health history, and all of my symptoms, talked to the team of doctors that was over seeing my care in the hospital about the possibility it could be celiac (she found it online). They said that there was a real possibility that I am. They did a few tests all coming back negative. They informed us that this was the first real lead to what was causing me to be as sick as I was.

** Back history Kidney failure, Gallbladder removed at 15 and on 3 different antacids to help with Acid Reflux and a brain deformity, week tendons, and joints, just to skim the surface.

Even with the test being negative the doctors said that it was a good idea to put her and I on the diet to see if it improved our health. I got better but I didn't quite get it and rebelled against it for years. She has been gluten-free for 10 years and at the peak of health.

mushroom Proficient

Sounds like if you want to feel better you are going to have to be a stubbornly gluten-free redhead :) Drink plenty of water and I hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    2. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    3. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,902
    • Most Online (within 30 mins)
      7,748

    WOLINM
    Newest Member
    WOLINM
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.