Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did You Know?

StephanieL

Recommended Posts

StephanieL Enthusiast
StephanieL
Posted

I'll start with this: My DS was dx 2 years ago. Been gluten-free since. I am a perpetual researcher and have figured out things that the Dr's didn't. I think I know my way around Celiac.

So my DH's Aunt was over yesterday. She was recently dx...via saliva...with a long list of issues. So she is now off soy, gluten and a host of other things including beans, spinach, all nuts all seeds (she is vegan and has been for a long time). They told her to eat sprouts for protein...at 4 grams pre cup. I don't even want to know how many sprouts she was eating.

So she decided to school me in Celiac and gluten-free :blink:

Did you know:

It isn't genetic?

There is gluten in envelopes? (I know this is a common urban legend)

Corn gluten is the same as wheat, rye and barley gluten.

If it's whole grain, it's wheat.

She had a few others (her pharmacist said since DS is allergic to bananas he MUST be allergic to latex. I know this IS true for some but it is reverse. If you are allergic to latex you are often allergic to bananas, if you're allergic to bananas you MAYbe allergic to latex.) She was arguing with me about this saying "MY PHARMACIST SAID IT'S TRUE!" to which I reply "My ALLERGIST said it is NOT and I tend to think HE has a little more knowledge about ALLERGIES!"

I was so frustrated at the end of this visit. Never mine the metric ton of crappy plastic junk toys she came with!

Thanks for letting me vent!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

Giggle giggle snort. :blink::lol: Glad the visit went well. LOL Oh my...

mommida Enthusiast
mommida
Posted

Oh crap! no wonder so many people completely flip out when they are first diagnosed :rolleyes:. (Myself included) :ph34r: :ph34r:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,376
    • Most Online (within 30 mins)
      7,748
    Maria1984
    Newest Member
    Maria1984
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Katerific
      Lymphocytic Colitis with Celiac

      By Katerific · Posted

      I was diagnosed with microscopic colitis and celiac a couple of years ago.  The GI doctor prescribed a course of budesonide, which moderately helped until I tapered off.    After a lot of ups and downs over the course of 2 years, I am finally in microscopic colitis remission.  Since I am also diabetic, I was started on metformin and Jardiance.  Metformin by itself helped moderately.  I added Jardiance and I was much better.  I stopped the metformin and relapsed and when I added it back, I regained remission.  I think metformin and Jardiance helped my colitis because they reduce inflammation in the gut.  Metformin is known to favorably modulate the gut microbiome and reduce inflammatory cytokines.  Similarly, emerging evidence supports the anti-inflammatory properties of SGLT2 inhibitors like Jardiance.  Once I was on both, the diarrhea stopped completely, even though nothing else ever worked long-term.  There is a Facebook group that can be very informative and helpful.  Look for "Microscopic Colitis and Lymphocytic Colitis Support Group.  You will find that members of the Facebook group identify other pathways to remission of microscopic colitis.
    • knitty kitty
      Cartilage and rib pain.

      By knitty kitty · Posted

      Hello, @Mrs Wolfe, I crushed three vertebrae moving a chest of drawers.  I take a combination of Thiamine Vitamin B1, Vitamin B12, and Pyridoxine B6.  Together these vitamins have an analgesic effect.  I think it works better than OTC pain relievers.   I also like  "Takeda ALINAMIN EX Plus Vitamin B1 B6 B12 Health Supplementary from Japan 120 Tablets" .   It's all three vitamins together in one pill.  Works wonderfully!
    • knitty kitty
      Progesterone pills - are they gluten free??

      By knitty kitty · Posted

      It's the Potassium Iodide in the HRT pills that is triggering Dermatitis Herpetiformis and the increased IGG levels.   The thyroid is stimulated by the Potassium Iodide, which stimulates immune cells to make more IGG antibodies.   Thiamine Vitamin B1 helps the thyroid function.  I like Benfotiamine and TTFD Thiamax.  
    • Mettedkny
      Progesterone pills - are they gluten free??

      By Mettedkny · Posted

      @Scott Adams Xiromed is one of the generic manufacturers of Progesterone pills.
    • Scott Adams
      Lymphocytic Colitis with Celiac

      By Scott Adams · Posted

      The topic has come up in the forum a lot: https://www.celiac.com/search/?q=lymphocytic colitis&quick=1&type=forums_topic and here are discussions with "colitis": https://www.celiac.com/search/?&q=colitis&type=forums_topic&quick=1&search_and_or=and&sortby=relevancy
×
×
  • Create New...