Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did You Know?


StephanieL

Recommended Posts

StephanieL Enthusiast

I'll start with this: My DS was dx 2 years ago. Been gluten-free since. I am a perpetual researcher and have figured out things that the Dr's didn't. I think I know my way around Celiac.

So my DH's Aunt was over yesterday. She was recently dx...via saliva...with a long list of issues. So she is now off soy, gluten and a host of other things including beans, spinach, all nuts all seeds (she is vegan and has been for a long time). They told her to eat sprouts for protein...at 4 grams pre cup. I don't even want to know how many sprouts she was eating.

So she decided to school me in Celiac and gluten-free :blink:

Did you know:

It isn't genetic?

There is gluten in envelopes? (I know this is a common urban legend)

Corn gluten is the same as wheat, rye and barley gluten.

If it's whole grain, it's wheat.

She had a few others (her pharmacist said since DS is allergic to bananas he MUST be allergic to latex. I know this IS true for some but it is reverse. If you are allergic to latex you are often allergic to bananas, if you're allergic to bananas you MAYbe allergic to latex.) She was arguing with me about this saying "MY PHARMACIST SAID IT'S TRUE!" to which I reply "My ALLERGIST said it is NOT and I tend to think HE has a little more knowledge about ALLERGIES!"

I was so frustrated at the end of this visit. Never mine the metric ton of crappy plastic junk toys she came with!

Thanks for letting me vent!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

Giggle giggle snort. :blink::lol: Glad the visit went well. LOL Oh my...

mommida Enthusiast

Oh crap! no wonder so many people completely flip out when they are first diagnosed :rolleyes:. (Myself included) :ph34r: :ph34r:

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,760
    • Most Online (within 30 mins)
      7,748

    Colleen H
    Newest Member
    Colleen H
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • stephaniekl
      My college age daughter has been having pain. She has had reflux and ulcers, as well as celiac.  She has been gluten-free for 14 years.  She found a new gastro in her college town and he scheduled an endoscopy with biopsies.  He told her she must eat gluten every day for a week prior to biopsy. I am stumped by this.  We know she has celiac.  She had a biopsy and it was positive. She has all the genes, etc.  Why is he saying she needs to eat gluten?  She will be so sick? Is normal?  We have never had this before.  
    • trents
      Start by reading the ingredient label for wheat, barely or rye or anything that might be derived from them. I would also call the manufacturer and ask that question. Usually, the thing that they cannot guarantee is that there is no cross contamination from equipment the ingredients are processed on but unless you are a super sensitive celiac that may not be an issue.
    • trents
      Tammy, who is saying they aren't safe for celiacs? Are you saying that is stated on the product packaging itself or that you are reading where people on forums like this one are claiming they aren't safe? Who is "they"?
    • Scott Adams
      If a product is labelled "gluten-free" it is considered to be safe for people with celiac disease (in the USA they need to test below 20 ppm). Some people prefer to eat only foods that are certified gluten-free, which are supposed to test below 10 ppm, however, they don't always test this low.
    • Tammy Pedler
      Why are so many gluten free items not safe for celiacs. I read labels all the time. I don’t know how many times they say that and are not safe for people who have celiacs. So confused. Help….
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.