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Showing content with the highest reputation since 02/01/2025 in Article Comments

  1. Purpletie3
    I told my Doctors this years ago and they sent me for a sleep study and hormone tests. Even a mild cross contamination had me in a brain fog, losing my place in a conversation, inability to concentrate- at all, even messed with my walking and sometimes my eye sight and even speech. Definitely a dull version of myself. I was 30 years mis-diagnosed so there...
    3 points
  2. cristiana
    I went to France about five years after my diagnosis and at that time found I was reacting a lot to food that made no mention of gluten in the ingredients, and my antibodies were raised after my visit as I had my annual review just after the trip. I felt that food labelling wasn't as reliable as the UK, and cross contamination a more marked problem...
    3 points
  3. Kagemusha
    I would say the server was in the wrong in this case if it weren't for the guy clearly lying. He was drinking beer with gluten. The man needs shamed for lying about a serious disease.
    3 points
  4. Adeling
    What's missing, for me, from this article, is a timeline for implementation in countries. Western countries are often quite slow to implement, and some countries I've been to have no labelling whatsoever...
    2 points
  5. Threecents
    I did not realize there is an HLA type that is associated with Celiac. I google it and found that while 90% of people with Celiac carry that marker, so do about 25% of the general population.
    2 points
  6. Flash1970
    Good article. Everyone expects healing within a few weeks. I remember not feeling good until 4 months into the gluten free diet. In fact, the first month was horrible. I felt way worse. This is due to a large part of addiction to wheat. It feels like withdrawal symptoms. Your body wants the gluten no matter what. At 4 months, I remember waking up one...
    2 points
  7. imdoodah331
    I'll be adding my wheat based snack plates to the donation box.
    2 points
  8. Flash1970
    Great article. When I first saw these, I thought oh great another gluten product.
    2 points
  9. DebJ14
    And let's not forget that we have to beware of paper straws. Those strips of paper are often glued into straws with wheat paste. I ran into this on a cruise when they stopped using plastic straws. I was sick within 30 minutes of having a Mojito. The person taking care of my food allergies pulled a box from a bar and sure enough "Contains Wheat" was written...
    2 points
  10. Flash1970
    Very interesting. If it proves to be accurate, could explain why people with celiac that follow gluten free diet still have symptoms.
    2 points
  11. KelleyJo
    When I was diagnosed in 2016, I was told I had probably had it at least 30 years. I also have lactose intolerance and IBS, so I'm not certain which symptoms were which in the early stages. I have osteopenia because of it. I have issues with inflammation. I was only diagnosed with the IGA blood test. But there was such a marked difference when I went very...
    2 points
  12. chrisinpa
    I'm 77 and since I was diagnosed with Celiac approx. two years ago my doctor recommended a bone scan. It didn't surprise me that the results showed some bone loss. I had gone on a gluten free regimen and hopefully healing has occurred. The doctor prescribed Fosamax and before I got the Fosamax I did a study and found the bad side effects of Fosamax to...
    2 points
  13. chrisinpa
    I guess I must ask...are some people actually addicted to gluten or not? From what I have concluded it's not the gluten that I miss since gluten free substitutes are fine with me. It's what I put on the bread..(.jelly) etc.....or what is on the pizza that makes the difference. It seems to me the problem is what gluten was doing to me. Hopefully that...
    2 points
  14. Juliach
    I used to drink those and I always had a reaction to it not understanding why. Thinking yogurt is good for me, what on earth could be wrong. That's another thing to put on my list to avoid. Thank you for that information!
    2 points
  15. Anne65
    I have recently moved, and am back to finding new places that sell gluten free foods, new gluten free friends, plus more people in my life that don't know what it is. As far as addictive, it is like other things that are addictive that I shouldn't have, only even worse. Am I willing to spend 3 days on the porcelain throne?
    2 points
  16. chrisinpa
    The only best thing I do is try to find gluten free substitutes.....example....gluten free pizza etc.
    2 points
  17. trents
    I think sometimes it is the case when people are diagnosed later in life that the actual onset was years earlier but was not of an acute nature. As it gradually took it's toll on the small bowel lining and other body systems it got to a point where symptoms were noticeable enough to finally prompt investigation and diagnosis. Then people look back in time...
    2 points
  18. chrisinpa
    When I think of it when I was young I remember my mother seeing a gastroenterologist in the 50s and I doubt that they ever knew what was causing her problem/problems at that time.
    2 points
  19. chrisinpa
    I avoid Gluten as much as possible and I seem to be doing ok. Whether Gluten intolerance or Celiac I tell everyone that Gluten isn't good for anyone. Hard to digest. I'm sure we all wonder how many people out there have a problem and have no idea it's the gluten that is causing the problem,.
    2 points
  20. ShariW
    I recently went on a long-awaited trip to Portugal and Spain. The tour company and guide informed hotel kitchens that I need a strict gluten-free diet, but there were several occasions when we were eating out on our own. I did take translated celiac information cards and presented them to waiters. I took Gliadin-X before nearly every meal. The one and only...
    2 points
  21. trents
    But still, I'm not sure any of this is helpful from a practical standpoint when you are already doing everything you know what to do to avoid gluten since it is merely reporting what has already happened. Perhaps it would give guidance of things to avoid that you mistakenly thought were safe, that is if you could pin down what exactly was the offender from...
    2 points
  22. Jerry Aldridge
    Also, magnesium low levels must be included in general health for celiac disease. This includes bone health plus many other problems.
    2 points
  23. trents
    @alltheceliacquestions, 20ppm, even 10ppm will still cause reactions in the more sensitive subset of celiacs.
    2 points
  24. Sarah Porter
    More like this. Self-sourced sustainability is a key component of supporting indigenous peoples in other countries.
    2 points
  25. CBird
    My sister has celiacs, I have gluten sensitivity along with my daughter. I suffered from depression, anxiety, and panic attacks until 62 years old. All that stopped when I went gluten free. Yes I know how much gluten can affect gut health and in turn brain health and I don't have celiac.
    2 points
  26. KennaH
    Interesting article. I am diagnosed celiac with anxiety and migraines. Also diagnosed with IBS-mixed prior to celiac confirmation. Moderate to severe villi blunting. I have no problem with gluten-free diet but FODMAP is overwhelming. Only self research, especially on this site, has helped more than any gastroenterologist. I believe I do report severe symptoms...
    2 points
  27. trents
    This is truly a breakthrough in the diagnostic realm! Hopefully, this technology will become widely available sooner than later and save a lot of people a lot of misery in the process of trying to get a diagnosis.
    2 points
  28. Ginger38
    I have extreme sleepiness when I am eating gluten, especially regularly , like for the gluten challenge
    2 points
  29. Pippa White
    Depression after being glutened is definitely a problem. I have struggled with alcohol abuse in the past and being glutened was the worst and fastest trigger. I never go to pubs now, not because I don't drink, but because every time I went I lost a week due to cross-contamination. My father died of non=Hodgkins Celiac related disease. My daughter is...
    2 points
  30. AButtiglieri
    Thank you! This is the first article I’ve read about the non-physical effects of being glutened. It validates everything I have experienced, but never had any scientific proof of. I would like to see more studies on the inability to concentrate, depression, and memory issues.
    2 points
  31. chrish42
    This research and development sounds promising but I'm 77 and didn't even know I had a problem until the age of 75. I have done the best I can to avoid gluten for the past two years. Testing previously showed Celiac disease. I seemed to surmise that if the testing is accurate I can say I had minimal symptoms and other that possible malabsorption and weight...
    2 points
  32. Celiac Tooth
    Where is the list of the medications that failed the test? It would be nice to know what we need to avoid.
    2 points
  33. trents
    We all would but that one is a pipe dream. There just isn't enough demand from a business standpoint to justify a whole fast food chain converting operations to comply with GFCO standards.
    2 points
  34. markpadgett8245
    It does seem the customer here was looking for a fight. Best to state your needs at the beginning when dining out--be it a person with Celiac or with gluten sensitivity. I have never seen or heard of someone with Celiac who can drink regular beer. All that being said, a little civility goes a long way but if you are going to claim you are allergic to gluten...
    2 points
  35. cam6
    A tip I have learned when placing an order using the app is to use this name on my bowl instead of my actual name: Gluten Allergy
    2 points
  36. Scott Adams
    Even if the customer did have celiac disease, the way that they come across in this video is completely rude, and mean, which will make it harder for any subsequent celiacs who happen to visit this establishment in the future.
    2 points
  37. Kelsey Gratiot
    This is not true. The part is missing where the guy claims he has Celiacs but he's drinking a beer, eats half a sandwich and fries and then tells the girl he has Celiac's Disease and is not going to pay. This is actually someone pretending to have our disease and using it to get out of paying for his food. If he has Celiac's pretty sure the waitress would...
    2 points
  38. RobinGroenevelt
    I live in France and recently assisted a colloquium on Celiac and there were two French experts (doctors) there. They said that with a good diet the risk of increased cancer is pretty much no different than non-celiac people, which was a big relief for me to hear. They were more concerned about bones and said that even that can be “normal” with a good die...
    2 points
  39. Beverage
    Morton & Bassett spices are labeled gluten free. I've been using them for years, no problems. I order direct from them as the selection at my grocery is very limited. They have a newsletter with regular discounts and specials: https://mortonbassett.com/ Spicely another good gluten free brand, CERTIFIED gluten-free, but not widely available where...
    2 points
  40. marzian
    This is very exciting news. The research lends itself to preventing the immune system in other autoimmune disorders from getting out of sorts. As someone with a compendium of autoimmune disorders I feel a bit of hope.
    1 point
  41. Kimmy88
    Thanks this is helpful!
    1 point
  42. JettaGirl
    I was 27 in 2007 when lab tests didn’t pick up Celiac disease. An endoscopic biopsy shows I have it very much so. To this day lab tests still shows I’m not. Just curious if anyone else has had the same results.
    1 point
  43. Jmartes71
    I was listening until I saw Standford, I was diagnosed in 1994 before any foods eliminated from my diet and diagnosed celiac by Kaiser. I was medically gaslight and continuing and so I went to Standford this year so I can get the medical help and the documentation for disability since my body is literally falling apart but per pcp Im fine because blood looks...
    1 point
  44. ShariW
    Forgot to add: I asked my gastroenterologist why this happened at such a late age for me. He said people can develop celiac disease or gluten sensitivity at any age.
    1 point
  45. Karen B.
    Some people with Celiac make it harder for the rest of us with Celiac to be taken seriously. After this situation, the next person the server encounters with celiac will have to work twice as hard to be taken seriously.
    1 point
  46. trents
    "When comparing gluten-free oat-only products with general gluten-free foods and ordinary oat products, the study found that gluten-free oat-only products had the highest contamination rate. For instance, gluten-free foods in general had contamination rates of around 18 percent, while oat-only products labeled gluten-free had rates nearing 73 percent. Ordinary...
    1 point
  47. Awol cast iron stomach
    Glad to read they made a test that won't require a gluten challenge. It does sound like it maybe quite sometime before it is readily available. This is a good first step. I was unable to finish my gluten challenge, and would have preferred not to have even attempted if this test had been available to me. I am glad it sounds it maybe available for others with...
    1 point
  48. Scott Adams
    @Marie A. I recommend that you create a thread in the forum for this topic.
    1 point
  49. Janseybabe
    Dunkin has egg bites too
    1 point
  50. Russ H
    That's the thing - about 1% of the population have coeliac disease: if it were 10%, the social burden would be so high that gluten would be removed from general consumption.
    1 point

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    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
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