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Showing content with the highest reputation since 12/17/2024 in Article Comments

  1. Purpletie3
    I told my Doctors this years ago and they sent me for a sleep study and hormone tests. Even a mild cross contamination had me in a brain fog, losing my place in a conversation, inability to concentrate- at all, even messed with my walking and sometimes my eye sight and even speech. Definitely a dull version of myself. I was 30 years mis-diagnosed so there...
    3 points
  2. cristiana
    I went to France about five years after my diagnosis and at that time found I was reacting a lot to food that made no mention of gluten in the ingredients, and my antibodies were raised after my visit as I had my annual review just after the trip. I felt that food labelling wasn't as reliable as the UK, and cross contamination a more marked problem...
    3 points
  3. Kagemusha
    I would say the server was in the wrong in this case if it weren't for the guy clearly lying. He was drinking beer with gluten. The man needs shamed for lying about a serious disease.
    3 points
  4. Helen Vajk
    Amen. Even worse than the food labeling is the near-complete absence of medication labeling.
    3 points
  5. imdoodah331
    I'll be adding my wheat based snack plates to the donation box.
    2 points
  6. Flash1970
    Great article. When I first saw these, I thought oh great another gluten product.
    2 points
  7. DebJ14
    And let's not forget that we have to beware of paper straws. Those strips of paper are often glued into straws with wheat paste. I ran into this on a cruise when they stopped using plastic straws. I was sick within 30 minutes of having a Mojito. The person taking care of my food allergies pulled a box from a bar and sure enough "Contains Wheat" was written...
    2 points
  8. Flash1970
    Very interesting. If it proves to be accurate, could explain why people with celiac that follow gluten free diet still have symptoms.
    2 points
  9. KelleyJo
    When I was diagnosed in 2016, I was told I had probably had it at least 30 years. I also have lactose intolerance and IBS, so I'm not certain which symptoms were which in the early stages. I have osteopenia because of it. I have issues with inflammation. I was only diagnosed with the IGA blood test. But there was such a marked difference when I went very...
    2 points
  10. chrisinpa
    I'm 77 and since I was diagnosed with Celiac approx. two years ago my doctor recommended a bone scan. It didn't surprise me that the results showed some bone loss. I had gone on a gluten free regimen and hopefully healing has occurred. The doctor prescribed Fosamax and before I got the Fosamax I did a study and found the bad side effects of Fosamax to...
    2 points
  11. chrisinpa
    I guess I must ask...are some people actually addicted to gluten or not? From what I have concluded it's not the gluten that I miss since gluten free substitutes are fine with me. It's what I put on the bread..(.jelly) etc.....or what is on the pizza that makes the difference. It seems to me the problem is what gluten was doing to me. Hopefully that...
    2 points
  12. Juliach
    I used to drink those and I always had a reaction to it not understanding why. Thinking yogurt is good for me, what on earth could be wrong. That's another thing to put on my list to avoid. Thank you for that information!
    2 points
  13. Anne65
    I have recently moved, and am back to finding new places that sell gluten free foods, new gluten free friends, plus more people in my life that don't know what it is. As far as addictive, it is like other things that are addictive that I shouldn't have, only even worse. Am I willing to spend 3 days on the porcelain throne?
    2 points
  14. chrisinpa
    The only best thing I do is try to find gluten free substitutes.....example....gluten free pizza etc.
    2 points
  15. trents
    I think sometimes it is the case when people are diagnosed later in life that the actual onset was years earlier but was not of an acute nature. As it gradually took it's toll on the small bowel lining and other body systems it got to a point where symptoms were noticeable enough to finally prompt investigation and diagnosis. Then people look back in time...
    2 points
  16. chrisinpa
    When I think of it when I was young I remember my mother seeing a gastroenterologist in the 50s and I doubt that they ever knew what was causing her problem/problems at that time.
    2 points
  17. chrisinpa
    I avoid Gluten as much as possible and I seem to be doing ok. Whether Gluten intolerance or Celiac I tell everyone that Gluten isn't good for anyone. Hard to digest. I'm sure we all wonder how many people out there have a problem and have no idea it's the gluten that is causing the problem,.
    2 points
  18. ShariW
    I recently went on a long-awaited trip to Portugal and Spain. The tour company and guide informed hotel kitchens that I need a strict gluten-free diet, but there were several occasions when we were eating out on our own. I did take translated celiac information cards and presented them to waiters. I took Gliadin-X before nearly every meal. The one and only...
    2 points
  19. trents
    But still, I'm not sure any of this is helpful from a practical standpoint when you are already doing everything you know what to do to avoid gluten since it is merely reporting what has already happened. Perhaps it would give guidance of things to avoid that you mistakenly thought were safe, that is if you could pin down what exactly was the offender from...
    2 points
  20. Jerry Aldridge
    Also, magnesium low levels must be included in general health for celiac disease. This includes bone health plus many other problems.
    2 points
  21. trents
    @alltheceliacquestions, 20ppm, even 10ppm will still cause reactions in the more sensitive subset of celiacs.
    2 points
  22. Sarah Porter
    More like this. Self-sourced sustainability is a key component of supporting indigenous peoples in other countries.
    2 points
  23. CBird
    My sister has celiacs, I have gluten sensitivity along with my daughter. I suffered from depression, anxiety, and panic attacks until 62 years old. All that stopped when I went gluten free. Yes I know how much gluten can affect gut health and in turn brain health and I don't have celiac.
    2 points
  24. KennaH
    Interesting article. I am diagnosed celiac with anxiety and migraines. Also diagnosed with IBS-mixed prior to celiac confirmation. Moderate to severe villi blunting. I have no problem with gluten-free diet but FODMAP is overwhelming. Only self research, especially on this site, has helped more than any gastroenterologist. I believe I do report severe symptoms...
    2 points
  25. trents
    This is truly a breakthrough in the diagnostic realm! Hopefully, this technology will become widely available sooner than later and save a lot of people a lot of misery in the process of trying to get a diagnosis.
    2 points
  26. Ginger38
    I have extreme sleepiness when I am eating gluten, especially regularly , like for the gluten challenge
    2 points
  27. Pippa White
    Depression after being glutened is definitely a problem. I have struggled with alcohol abuse in the past and being glutened was the worst and fastest trigger. I never go to pubs now, not because I don't drink, but because every time I went I lost a week due to cross-contamination. My father died of non=Hodgkins Celiac related disease. My daughter is...
    2 points
  28. AButtiglieri
    Thank you! This is the first article I’ve read about the non-physical effects of being glutened. It validates everything I have experienced, but never had any scientific proof of. I would like to see more studies on the inability to concentrate, depression, and memory issues.
    2 points
  29. chrish42
    This research and development sounds promising but I'm 77 and didn't even know I had a problem until the age of 75. I have done the best I can to avoid gluten for the past two years. Testing previously showed Celiac disease. I seemed to surmise that if the testing is accurate I can say I had minimal symptoms and other that possible malabsorption and weight...
    2 points
  30. Celiac Tooth
    Where is the list of the medications that failed the test? It would be nice to know what we need to avoid.
    2 points
  31. trents
    We all would but that one is a pipe dream. There just isn't enough demand from a business standpoint to justify a whole fast food chain converting operations to comply with GFCO standards.
    2 points
  32. markpadgett8245
    It does seem the customer here was looking for a fight. Best to state your needs at the beginning when dining out--be it a person with Celiac or with gluten sensitivity. I have never seen or heard of someone with Celiac who can drink regular beer. All that being said, a little civility goes a long way but if you are going to claim you are allergic to gluten...
    2 points
  33. cam6
    A tip I have learned when placing an order using the app is to use this name on my bowl instead of my actual name: Gluten Allergy
    2 points
  34. Scott Adams
    Even if the customer did have celiac disease, the way that they come across in this video is completely rude, and mean, which will make it harder for any subsequent celiacs who happen to visit this establishment in the future.
    2 points
  35. Kelsey Gratiot
    This is not true. The part is missing where the guy claims he has Celiacs but he's drinking a beer, eats half a sandwich and fries and then tells the girl he has Celiac's Disease and is not going to pay. This is actually someone pretending to have our disease and using it to get out of paying for his food. If he has Celiac's pretty sure the waitress would...
    2 points
  36. RobinGroenevelt
    I live in France and recently assisted a colloquium on Celiac and there were two French experts (doctors) there. They said that with a good diet the risk of increased cancer is pretty much no different than non-celiac people, which was a big relief for me to hear. They were more concerned about bones and said that even that can be “normal” with a good die...
    2 points
  37. Beverage
    Morton & Bassett spices are labeled gluten free. I've been using them for years, no problems. I order direct from them as the selection at my grocery is very limited. They have a newsletter with regular discounts and specials: https://mortonbassett.com/ Spicely another good gluten free brand, CERTIFIED gluten-free, but not widely available where...
    2 points
  38. trents
    @LoSmith, what would be helpful to you in this regard? If "Simply saying "You need to eat more vegetables" or handing over lists and recommending recipe books is not helpful when simply READING a recipe can cause someone to reject it entirely" doesn't work for you, what would be a better approach? What would that look like for you? You may need to take the...
    2 points
  39. Auldtwa
    Another strange failure of the FDA just happened to me. Like many, if I DO ingest gluten I experience massive projectile vomiting. This can be life threatening when it messes with my insulin/food balance. So my doctor has prescribed for years two anti nausea drugs. I don't, thank goodness, have to use them often. This time, my doctor apparently, when...
    2 points
  40. icarumba
    If there is anything I've learned in this long journey back to gluten free health, it's not to trust any food made by others that are not celiacs and careful themselves. Too many times have I got glutened by a well meaning friend or family member that doesn't realize gluten is hidden in many foods they use in recipes. I just now politely turn down their offering...
    2 points
  41. sc'Que?
    @Daura Damm: Can we get a gluten-free Imperial Oatmeal Stout, please? Please?!?
    1 point
  42. trents
    They put it in their yogurt because it has probiotic properties. "Probiotic", in case you haven't noticed, is the latest marketing silver bullet health guru buzz word.
    1 point
  43. Scott Adams
    Correct, the things listed in the article may mimic celiac-like or IBS-like symptoms, but would not cause the damage that gluten/gliadin does.
    1 point
  44. chrisinpa
    I should have studied it more , but there are food allergies and then there is an autoimmune response to gluten, but whether it is just considered an allergy or an autoimmune response or both, I would think peanut allergy can be one of the worst and be life threatening from what I've read
    1 point
  45. Scott Adams
    I like the idea of a dog trained to sniff out gluten better! It seems like a device could be made to do the same.
    1 point
  46. Scott Adams
    I think an important takeaway from this study is that contamination can happen during transportation, processing, etc., and not all companies that claim to sell "gluten-free" oats are checking into these potential issues in a thorough way. Many of these products could potentially be exported from Turkey to Europe and elsewhere, and they may still have "gluten...
    1 point
  47. chrish42
    When I think of it, in the later 50s my mother had problems with her digestive system and i remember her going to see some kind of internist and maybe at that time they may not have even known about what Gluten could do to some people?
    1 point
  48. pweidema
    When I ate at food stands in Italy (where apparently all food staff has training in celiac needs) I was always able to get gluten-free eggplant parm (yum!). I assume they got it pre-prepared and simply heated it up. Wish we could do the same here.
    1 point
  49. Scott Adams
    This has been the generally accepted idea, although there isn't enough research on the topic to be certain. Staying 100% gluten-free, thus lowering inflammation, should decrease cancer risk over time. The problem is that most celiacs are unable to be 100% gluten-free, and often get contamination in their diets.
    1 point
  50. Scott Adams
    Most inactive ingredients in toothpastes in the USA do not include gluten. If you have concerns I recommend that you contact the manufacturer directly, or find a toothpaste that has "gluten-free" on the label, for example: https://sprinjene.com
    1 point
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    • cristiana
      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
    • knitty kitty
      @xxnonamexx, There's labeling on those Trubar gluten free high fiber protein bars that say: "Manufactured in a facility that also processes peanuts, milk, soy, fish, WHEAT, sesame, and other tree nuts." You may want to avoid products made in shared facilities.   If you are trying to add more fiber to your diet to ease constipation, considering eating more leafy green vegetables and cruciferous vegetables.  Not only are these high in fiber, they also are good sources of magnesium.  Many newly diagnosed are low in magnesium and B vitamins and suffer with constipation.  Thiamine Vitamin B1 and magnesium work together.  Thiamine in the form Benfotiamine has been shown to improve intestinal health.  Thiamine and magnesium are important to gastrointestinal health and function.  
    • trents
      Welcome to celiac.com @sha1091a! Your experience is a very common one. Celiac disease is one the most underdiagnosed and misdiagnosed medical conditions out there. The reasons are numerous. One key one is that its symptoms mimic so many other diseases. Another is ignorance on the part of the medical community with regard to the range of symptoms that celiac disease can produce. Clinicians often are only looking for classic GI symptoms and are unaware of the many other subsystems in the body that can be damaged before classic GI symptoms manifest, if ever they do. Many celiacs are of the "silent" variety and have few if any GI symptoms while all along, damage is being done to their bodies. In my case, the original symptoms were elevated liver enzymes which I endured for 13 years before I was diagnosed with celiac disease. By the grace of God my liver was not destroyed. It is common for the onset of the disease to happen 10 years before you ever get a diagnosis. Thankfully, that is slowly changing as there has developed more awareness on the part of both the medical community and the public in the past 20 years or so. Blessings!
    • knitty kitty
      @EndlessSummer, You said you had an allergy to trees.  People with Birch Allergy can react to green beans (in the legume family) and other vegetables, as well as some fruits.  Look into Oral Allergy Syndrome which can occur at a higher rate in Celiac Disease.   Switching to a low histamine diet for a while can give your body time to rid itself of the extra histamine the body makes with Celiac disease and histamine consumed in the diet.   Vitamin C and the eight B vitamins are needed to help the body clear histamine.   Have you been checked for nutritional deficiencies?
    • sha1091a
      I found out the age of 68 that I am a celiac. When I was 16, I had my gallbladder removed when I was 24 I was put on a medication because I was told I had fibromyalgia.   going to Doctor’s over many years, not one of them thought to check me out for celiac disease. I am aware that it only started being tested by bloodwork I believe in the late 90s, but still I’m kind of confused why my gallbladder my joint pain flatulent that I complained of constantly was totally ignored. Is it not something that is taught to our medical system? It wasn’t a Doctor Who asked for the test to be done. I asked for it because of something I had read and my test came back positive. My number was quite high.Are there other people out here that had this kind of problems and they were ignored? 
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