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Showing content with the highest reputation since 10/14/2024 in Article Comments

  1. Purpletie3
    I told my Doctors this years ago and they sent me for a sleep study and hormone tests. Even a mild cross contamination had me in a brain fog, losing my place in a conversation, inability to concentrate- at all, even messed with my walking and sometimes my eye sight and even speech. Definitely a dull version of myself. I was 30 years mis-diagnosed so there...
    3 points
  2. cristiana
    I went to France about five years after my diagnosis and at that time found I was reacting a lot to food that made no mention of gluten in the ingredients, and my antibodies were raised after my visit as I had my annual review just after the trip. I felt that food labelling wasn't as reliable as the UK, and cross contamination a more marked problem...
    3 points
  3. Kagemusha
    I would say the server was in the wrong in this case if it weren't for the guy clearly lying. He was drinking beer with gluten. The man needs shamed for lying about a serious disease.
    3 points
  4. Helen Vajk
    Amen. Even worse than the food labeling is the near-complete absence of medication labeling.
    3 points
  5. trents
    I think sometimes it is the case when people are diagnosed later in life that the actual onset was years earlier but was not of an acute nature. As it gradually took it's toll on the small bowel lining and other body systems it got to a point where symptoms were noticeable enough to finally prompt investigation and diagnosis. Then people look back in time...
    2 points
  6. chrisinpa
    When I think of it when I was young I remember my mother seeing a gastroenterologist in the 50s and I doubt that they ever knew what was causing her problem/problems at that time.
    2 points
  7. chrisinpa
    I avoid Gluten as much as possible and I seem to be doing ok. Whether Gluten intolerance or Celiac I tell everyone that Gluten isn't good for anyone. Hard to digest. I'm sure we all wonder how many people out there have a problem and have no idea it's the gluten that is causing the problem,.
    2 points
  8. ShariW
    I recently went on a long-awaited trip to Portugal and Spain. The tour company and guide informed hotel kitchens that I need a strict gluten-free diet, but there were several occasions when we were eating out on our own. I did take translated celiac information cards and presented them to waiters. I took Gliadin-X before nearly every meal. The one and only...
    2 points
  9. trents
    But still, I'm not sure any of this is helpful from a practical standpoint when you are already doing everything you know what to do to avoid gluten since it is merely reporting what has already happened. Perhaps it would give guidance of things to avoid that you mistakenly thought were safe, that is if you could pin down what exactly was the offender from...
    2 points
  10. Jerry Aldridge
    Also, magnesium low levels must be included in general health for celiac disease. This includes bone health plus many other problems.
    2 points
  11. trents
    @alltheceliacquestions, 20ppm, even 10ppm will still cause reactions in the more sensitive subset of celiacs.
    2 points
  12. Sarah Porter
    More like this. Self-sourced sustainability is a key component of supporting indigenous peoples in other countries.
    2 points
  13. CBird
    My sister has celiacs, I have gluten sensitivity along with my daughter. I suffered from depression, anxiety, and panic attacks until 62 years old. All that stopped when I went gluten free. Yes I know how much gluten can affect gut health and in turn brain health and I don't have celiac.
    2 points
  14. KennaH
    Interesting article. I am diagnosed celiac with anxiety and migraines. Also diagnosed with IBS-mixed prior to celiac confirmation. Moderate to severe villi blunting. I have no problem with gluten-free diet but FODMAP is overwhelming. Only self research, especially on this site, has helped more than any gastroenterologist. I believe I do report severe symptoms...
    2 points
  15. trents
    This is truly a breakthrough in the diagnostic realm! Hopefully, this technology will become widely available sooner than later and save a lot of people a lot of misery in the process of trying to get a diagnosis.
    2 points
  16. Ginger38
    I have extreme sleepiness when I am eating gluten, especially regularly , like for the gluten challenge
    2 points
  17. Pippa White
    Depression after being glutened is definitely a problem. I have struggled with alcohol abuse in the past and being glutened was the worst and fastest trigger. I never go to pubs now, not because I don't drink, but because every time I went I lost a week due to cross-contamination. My father died of non=Hodgkins Celiac related disease. My daughter is...
    2 points
  18. AButtiglieri
    Thank you! This is the first article I’ve read about the non-physical effects of being glutened. It validates everything I have experienced, but never had any scientific proof of. I would like to see more studies on the inability to concentrate, depression, and memory issues.
    2 points
  19. chrish42
    This research and development sounds promising but I'm 77 and didn't even know I had a problem until the age of 75. I have done the best I can to avoid gluten for the past two years. Testing previously showed Celiac disease. I seemed to surmise that if the testing is accurate I can say I had minimal symptoms and other that possible malabsorption and weight...
    2 points
  20. Celiac Tooth
    Where is the list of the medications that failed the test? It would be nice to know what we need to avoid.
    2 points
  21. trents
    We all would but that one is a pipe dream. There just isn't enough demand from a business standpoint to justify a whole fast food chain converting operations to comply with GFCO standards.
    2 points
  22. markpadgett8245
    It does seem the customer here was looking for a fight. Best to state your needs at the beginning when dining out--be it a person with Celiac or with gluten sensitivity. I have never seen or heard of someone with Celiac who can drink regular beer. All that being said, a little civility goes a long way but if you are going to claim you are allergic to gluten...
    2 points
  23. cam6
    A tip I have learned when placing an order using the app is to use this name on my bowl instead of my actual name: Gluten Allergy
    2 points
  24. Scott Adams
    Even if the customer did have celiac disease, the way that they come across in this video is completely rude, and mean, which will make it harder for any subsequent celiacs who happen to visit this establishment in the future.
    2 points
  25. Kelsey Gratiot
    This is not true. The part is missing where the guy claims he has Celiacs but he's drinking a beer, eats half a sandwich and fries and then tells the girl he has Celiac's Disease and is not going to pay. This is actually someone pretending to have our disease and using it to get out of paying for his food. If he has Celiac's pretty sure the waitress would...
    2 points
  26. RobinGroenevelt
    I live in France and recently assisted a colloquium on Celiac and there were two French experts (doctors) there. They said that with a good diet the risk of increased cancer is pretty much no different than non-celiac people, which was a big relief for me to hear. They were more concerned about bones and said that even that can be “normal” with a good die...
    2 points
  27. Beverage
    Morton & Bassett spices are labeled gluten free. I've been using them for years, no problems. I order direct from them as the selection at my grocery is very limited. They have a newsletter with regular discounts and specials: https://mortonbassett.com/ Spicely another good gluten free brand, CERTIFIED gluten-free, but not widely available where...
    2 points
  28. trents
    @LoSmith, what would be helpful to you in this regard? If "Simply saying "You need to eat more vegetables" or handing over lists and recommending recipe books is not helpful when simply READING a recipe can cause someone to reject it entirely" doesn't work for you, what would be a better approach? What would that look like for you? You may need to take the...
    2 points
  29. Auldtwa
    Another strange failure of the FDA just happened to me. Like many, if I DO ingest gluten I experience massive projectile vomiting. This can be life threatening when it messes with my insulin/food balance. So my doctor has prescribed for years two anti nausea drugs. I don't, thank goodness, have to use them often. This time, my doctor apparently, when...
    2 points
  30. icarumba
    If there is anything I've learned in this long journey back to gluten free health, it's not to trust any food made by others that are not celiacs and careful themselves. Too many times have I got glutened by a well meaning friend or family member that doesn't realize gluten is hidden in many foods they use in recipes. I just now politely turn down their offering...
    2 points
  31. trents
    No, it can't be the real cause of celiac disease because celiac disease existed long before genetic modification technology existed. There is historical evidence of the existence of celiac disease from ancient times. Please provide links to support your claims and ideas about GMO wheat pollen "contaminating the entire Global wheat Supply" and being "the real...
    2 points
  32. imdoodah331
    I was diagnosed with Fibromyalgia in 1996, after years of unexplained symptoms. It took five years of many negative test results before I was finally referred to a rheumatologist in Pittsburg who diagnosed Fibromyalgia. Treatments for that were minimally successful. Although I understood Fibro is not a "progressive" illness, I experienced constant new...
    2 points
  33. DonnaNM
    Thank you for your responses (especially your detailed article on all the supplements, so helpful.). I take a lot of supplements as well. I will check them.
    1 point
  34. Jim Chris
    Wow! A lot of good information that explains a lot of what has happened to me and I didn't know why. Although I always carefully read ingredients labels, I will pay more attention to what was explained in this article. Thank you!!
    1 point
  35. Mrs. Cedrone
    I agree great information. I was diagnosed in my 20s with Celiac Disease and remain on a very strict diet. I have found recently that some "Gluten Free" items have those ingredients and I have suffered for that. Thank you.
    1 point
  36. trents
    @Anne65, yes, presently, in order to diagnose celiac disease, a person must be actively consuming regular amounts of gluten. The first stage of testing is designed to detect antibodies produced by an inflammatory autoimmune reaction to gluten in the villous lining of the small bowel. When you remove gluten from the diet, the inflammation begins to subside...
    1 point
  37. chrisinpa
    Maybe the only way to confirm that possibility would be to do (beneficial?) tests on all young children for gluten antibodies which might avoid any and all damage for years before they really get bad?
    1 point
  38. chrisinpa
    Excellent article. That very same thing happened to me at 75.
    1 point
  39. Scott Adams
    The white matter changes seen in celiac disease in the referenced study are likely multifactorial: Possibly linked to chronic inflammation, autoimmune activity, nutrient malabsorption, and brain hypoperfusion. Thiamine deficiency may contribute, especially in those with long-standing untreated celiac or poor dietary intake, but it's not the...
    1 point
  40. John Philp
    This explains a lot. Dianosed at age 75 Now 96.
    1 point
  41. Zuma888
    I am so sorry to hear that. I hope you get complete relief soon. Thank you so much for your help. You have helped me a lot.
    1 point
  42. Scott Adams
    You're absolutely right to stand firm on this issue. The idea that introducing small amounts of gluten could "cure" celiac disease is completely false and dangerous. Celiac disease is an autoimmune condition, not a food intolerance, and even tiny amounts of gluten can trigger damage to the small intestine. Research has shown that exposure to gluten, even...
    1 point
  43. trents
    @Oriol, I am jealous!
    1 point
  44. Helen Vajk
    Reared a gluten-free kid who is now doing great in his 40s. Some stress in earlier childhood, but by mid-high school had it all figured out. I heard a comment back then that gave me hope. "By the time a celiac kid reaches college age, he or she has developed a hundred ways to say 'No, thank you' and make it stick." The celiac kids end up knowing that...
    1 point
  45. KIM BURTSFIELD
    I have had fibromyalgia for years, and thanks to my certified massage therapist and delayed food sensitivity testing, my fibromyalgia symptoms decreased dramatically after finding out I have gluten sensitivities. Even for those of us who are not celiac, a gluten free diet can change our lives for the better.
    1 point
  46. Ty Cummins
    Malt-O-Meal Fruity Dyno Bites and Cocoa Dyno Bites. I have eaten theses 2 products about 15 times since finding out I have Celiac Disease (EXTREME SENSITIVE) and every single time I found I was getting sick around that. I just recently after months tried again staying free and clear of any gluten sources and got sick AGAIN. I decided to start digging...
    1 point
  47. Ginger38
    Me too! I can’t make it past a few days. The fatigue and brain fog as well as just weakness and gastrointestinal issues
    1 point
  48. Ginger38
    And the antibodies are what cause the damage to the intestines correct? I don’t think I could back on gluten to do the challenge and have the biopsy. I can’t imagine eating that much gluten every day for weeks. So if gluten doesn’t build up and is excreted out, I guess I don’t understand why sometimes gluten causes huge reactions and makes me real...
    1 point
  49. Ginger38
    So it only takes 3 grams to start an immune response- but no idea what 3 grams would be eating?
    1 point
  50. trents
    Book, chapter and verse please. Your quote comes from Hippocrates, The Greek physician who is considered to be the father of medicine.
    1 point

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    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Hi Theresa,  A few of my friends have your same story. You may be right about barley, etc.  18 years ago at a football game while clapping, suddenly my 4th finger was in agony.  It looked like a vein had burst. It was blue for a couple hours, then disappeared.  Finally realized it happened every time when drinking beer.  It's occurred several times over the years when opening a jar, lifting something that was a bit heavy, holding on to tight to something.  Immediate icing stops the pain and discoloration.  Now avoiding wheat in the US, it rarely happens.  Thanks for the reminder.  Will have Entero Labs run another test. Unfortunately they've relocated to Switzerland/Greece.
    • Russ H
      Blood results

      By Russ H · Posted

      The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific but less sensitive. Transient rises in tTG2 can be caused by e.g. viral infections and inflammation. Very high levels of anti-tTG2 (>x10 standard range) are almost certainly coeliac disease but moderately raised levels can have several causes apart from coeliac disease. Other food allergies can cause villi blunting but that is much rarer than coeliac disease or other non-coeliac causes. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Possible celiac - need advice

      By Scott Adams · Posted

      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
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