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Gemini

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Everything posted by Gemini

  1. Gemini
    Cynthia.....I know how it feels to be dying slowly and losing weight to the point where you seriously wonder if you'll make it. When I hit the wall with Celiac, I lost 7 pounds in 5 days. That will get your attention! You are correct...everything is geared towards overweight and the obese so people have very little understanding of what it's like to...
  2. Gemini
    But I think if you are talking about someone just diagnosed with full blown Celiac, taking supplements orally will not be effective, if they are not absorbing well or at all.
  3. Gemini
    It's nice to see someone actually take the advice given to get themsleves on the road to real recovery! Good job, moosemalibu. You will be back to your usual hard work-outs down the road, have no fear!
  4. Gemini
    Cynthia.......I was in the same boat as you 9 years ago. I was down to 94 pounds at 5' 4" and suffering from advanced malnutrition. It is going to take a long time for you to heal and feel better but a few tips to help you get on the road to recovery........stop taking all supplements, except the probiotics and then add some digestive enzymes to the mix...
  5. Gemini
    You can also take sublingual supplements or have shots, which would bypass the gut and solve the absorption problem.
  6. Gemini
    I agree with Irish on this one. That is not a celiac panel and actually, I am not sure what those tests are for. Do not base a Celiac diagnosis on that. You need to have a full celiac panel and most MD's should know what that is. If after having the correct testing, and it comes out positive, then you have a diagnosis. You can opt on for a biopsy, if...
  7. Gemini
    Just rinse the dishes well before putting in the dishwasher and you are good to go! Sounds like you are doing a good job.
  8. Gemini
    Laura.......blood testing in children that young is notoriously unreliable partly because it can take years for antibodies to build up to the point where it shows in blood work. An 18 month old is still too new on the planet for a definitive diagnosis. It can happen but many parents of young children struggle to get a proper diagnosis. Here is what...
  9. Gemini
    Yeah...your doctor is uninformed about the amount of time it takes for tTg to come down. For it to come down from over 100 to just over 30 since this summer is remarkable and I would say you are doing a great job. When it comes to healing, doctors are dopes.
  10. Gemini
    I think this falls into the same category as Codex wheat starch in Europe. It is not really gluten free but is supposedly below the threshold where most people react. I do not eat Codex wheat starch when traveling and I personally would not use hydrolyzed wheat starch in food. They sell bags of it at Whole Foods and vegetarians use it. I would not eat it...
  11. Gemini
    You can relax.....you cannot be glutened by a fly, a doorknob or a lightswitch. Unless all three contain gluten and you eat them directly, you are safe!
  12. Gemini
    What does happen with enzymes is that they are produced in the pancreas and released as needed when you eat. How they get that "message" is from the small intestine. When the villi are blunted/damaged, they can no longer send messages to the pancreas to release enzymes that are needed for digestion. So, food is harder to digest, which is not something...
  13. Gemini
    Just to clarify things....you are taking the digestive enzymes with meals, aren't you? Yes, that does sound like a stupid question but it's important. I still have trouble if I drink too many protein shakes. I have stopped for awhile because milky things bother me.....even if they are lactose free. My body just does not like too much milky anything...
  14. Gemini
    You are right that we should always have a good sense of humor about many things, Celiac included, but really......who cares what Ellen thinks? She stopped being funny a long time ago, when her sitcom was canceled. I think she had one of the funniest shows on TV but as a talk show host? Not so much. She's no different than all the rest of them today....
  15. Gemini
    If you are used to eating oatmeal and it didn't bother you before diagnosis, it probably isn't the oats. However, there have been complaints about BRM oats and I do not use them myself. There are other companies that only grow and process gluten-free oats and I stick with those. Cream Hill Estates are one good brand. I would guess that if you take psyllium...
  16. Gemini
    Total IgA only checks to see if you make enough IgA antibody for the Celiac testing to be accurate/reliable. It is not a diagnostic test for Celiac. The DGP and tTg/IgA and tTg/ IgG are the ones that are used for an actual diagnosis. Those who make sufficient IgA for testing will have a normal range that the IgA falls in between and that should be listed...
  17. Gemini
    Low total IgA means that you do not have enough for the tests to be valid. IgA (antibody) is made in the mucosal lining of the intestines, which is a very large part of the immune system. When you have active Celiac, your body will be pumping out IgA like crazy. It's the antibody reaction that they are looking for. So.......the blood test for Celiac won...
  18. Gemini
    Just say no to that pituitary problem, Nicole! Actually......with all your other health problems ( and I KNOW that feeling myself), if you do have a pituitary adenoma, I'm sure you will kick butt. I did the same thing. Diagnosed all my health problems and had the MD confirm them. There is something terribly wrong with that picture but it makes you...
  19. Gemini
    i would also add both tests for thyroid antibodies because that will show whether or not you may have Hashi's. The full thyroid panel will include all the tests you need. No...fasting is not necessary for thyroid testing. It's not the same as blood sugar testing. if your thyroid is off, it doesn't matter whether you eat or not.......it will be off. ...
  20. Gemini
    Anything metabolic is thyroid related. If you are working out that much and eating small meals often (which helps to boost metabolism, as you already know), and that isn't helping, have your thyroid screened with a FULL THYROID PANEL. That could be key to your problems. I don't mind your talk of exercise. I love weight training and it's good to hear...
  21. Gemini
    I had nausea for years and it completely resolved on the gluten-free diet. Never came back, unless I am accidentally glutened but that is a rare occasion at this point. It's not surprising that the kids in a Type 1 study might be positive for Celiac. Type 1 diabetes, Hashi's thyroid disease and Rheumatoid Arthritis are the 3 BIG autoimmune diseases...
  22. Gemini
    This is one of the best posts in a long time! I know everyone is entitled to their pity party when first diagnosed but Celiac is not something to worry about or fret that you'll be dealing with this everyday for the rest of your life. It's just food and there is plenty of great gluten-free food out there so no one should feel deprived. This from a certified...
  23. Gemini
    You do not need to replace pot and pans unless they are old and scratched......like Teflon or any non-stick. Stainless are fine as stainless is a very hard metal and they generally do not scratch like non-stick ones. Cast iron need to go unless they are coated and in good shape. Anything with nooks and crannies or a porous surface needs to be replaced. ...
  24. Gemini
    The DQ-2 gene for Celiac is also the gene for Type 1 diabetes so your daughter may never trip for diabetes fi she remains strictly gluten-free. Many people do not know this but the doctors should have. I am totally blown away that you were advised to keep her on a gluten diet with her history and these idiots are guilty of malpractice. Unbelievable. ...
  25. Gemini
    So.....it would seem that when people do not agree with your question, you find them fairly rude? Celiac blood tests are pretty damn accurate for advanced Celiac Disease. However, not everyone will test positive in the presence of true Celiac for a number of reasons, such as low or deficient Iga, going gluten free prior to testing, or having an inexperienced...
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