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Gemini

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Everything posted by Gemini

  1. Gemini
    I am suffering from Olympic fatigue......I am glued to the set and need this to end so I can get some sleep! I love it all but I have to admit China did a better job with the opening ceremonies. I love London and the UK but it was more like a Hollywood production and soon got boring. You just cannot beat what China did with the movement all of those...
  2. Gemini
    Please post the actual product that you think has a barley additive as I have never come across this in the 7 years I have been gluten free. I want you to know I am not trying to be argumentative but I think your problem has more to do with the learning curve and understanding what is feasible for a company to do. Once you educate yourself to the intricacies...
  3. Gemini
    Marie....yes, Celiac can cause early menopause. Every female in my family went into full blown menopause by 45 years of age. I started having hormonal swings and hot flashes at 38 and everything stopped at age 45. I was diagnosed with celiac disease at 46. If you are not sure if you have had a hot flash, then you haven't had one. Trust me, you would remember...
  4. Gemini
    There really is nothing you can take to avoid CC or a gluten hit while traveling. The best you can do is eat as plain as possible and do your best to avoid that scenario. I usually do very well on trips but yes, I have been glutened overseas before. My symptoms are different so the remedy would be different than what you experience. You should not take...
  5. Gemini
    You know.....water retention, thinning hair and dry skin are all symptoms of low thyroid. I have Hashi's and treat it well...not the way most doctors treat it and my hair is thick, I have never retained water and my skin isn't horribly dry but drier than it was in my youth. I really think that many women are hypo-thyroid later in life and it's not the menopause...
  6. Gemini
    Hot flashes are horrible. You feel like an incendiary device. You pour sweat from all pores until the flash is over, then you are freezing because all your pores are open and you are wet with sweat. I mean, freezing afterwards. I used to have horrible cycles, with excruciating pain and that was not as bad as hot flashes are. Be careful what you wish for...
  7. Gemini
    Cheer up, ladies! Menopause will come and then you won't have those problems....just hot flashes and trouble sleeping for awhile!
  8. Gemini
    I love snow...really. My favorite time of year is winter. It does wonders for the hot flashes. I also love gourmet cooking and eating. I would be willing to shovel for some of the menus you have posted here! I also would love to visit that part of Canada.
  9. Gemini
    Joy...I think as you heal, you are going to be blown away by the number of symptoms that start to go away and are, indeed, connected and caused by Celiac. You are malnourished, don't forget that, and that can really mess up a body good! Lymphoma and MM are diseases that are common to undiagnosed Celiac. The risk factor for Celiac's for these 2 are...
  10. Gemini
    They are not as healthy as whole foods, which doesn't even need explaining, but there is no reason to exclude them totally from your diet if everything is eaten in moderation. The key is knowing what moderation is because that is lost on many people. I am a very sensitive, diagnosed Celiac who does not take unnecessary risks and I have healed very well...
  11. Gemini
    I hear what you are saying but what you expect or want to happen just may not be totally feasible. It all revolves around money and to have the major companies all provide dedicated lines for Celiacs costs money, which in turn would drive up the price of food and make the rest of the population without Celiac pay a lot more for their food......which isn't...
  12. Gemini
    I am so happy that your platelet levels are good now! My co-worker is the one who has it and his platelets got down to 2,000. He has had IVIG and Retuxin treatments but his platelets still bounce around a lot and he eats enough crappy wheat to kill a horse. I have tried to put the idea into his head that he may have Celiac (his family are loaded with...
  13. Gemini
    Your low cholesterol is most likely from Celiac....you aren't absorbing fats well so the cholesterol stays low. Mine was always 125 and I always ate whatever I wanted. Post diagnosis, the last time I checked, it was only 149, and that's not fasting either! It's the one benefit of Celiac, in a weird sort of way. It's kind of hard to know what normal is...
  14. Gemini
    A couple of quick thoughts as I don't have much time to write now......I have Hashi's thyroid and Celiac, plus Sjogren's Syndrome and Reynaud's Syndrome, so I know what the "too many AI diseases" feels like! I am doing pretty good for someone with multiples and you will too, once you have healed your gut. I am very familiar with ITP also as a close friend...
  15. Gemini
    What jumped out at me, Joy, was the statement you made about losing 1 pound per day. That was me, at the end, and I ended up being diagnosed when I hit 97 pounds. So, I really can relate to this and how scary it is. Being patient is of the utmost importance and it may very well take a year before you notice marked improvement but it will happen. I do not...
  16. Gemini
    This is one of the highest ranking comments I hear from people all the time! I had this experience also, except for the very smart hematologist lady who spoke with me in depth about Celiac and other AI diseases and what it does to blood work. I actually connected the dots with regards to Celiac for her and it was the first time I ever heard a doctor say...
  17. Gemini
    Joy.....an elevated ANA is not specific to any one disease, it just means there is a lot of general inflammation in your body. It can come from having long term, undiagnosed Celiac. I have 4 AI diseases and my ANA is always elevated. I mean, it was so high, it was scary. Since going gluten free 7 years ago, mine has steadily been coming down. The longer...
  18. Gemini
    Now this is a shining example of someone who has done their homework! I think you have earned your doctor badge! I still have trouble with pancreatic insufficiency and take a digestive enzyme with meals, which helps tremendously. That, coupled with probiotics every morning, keeps me normal. All of your suggestions are spot on!
  19. Gemini
    You are very observant for someone who hasn't been here long.....
  20. Gemini
    Well said, GFreeMO! People do get passionate about Celiac when they nearly die from it. I know that road well. It's time people realize they do not have to live and die by what a doctor says. If you wait around for a diagnosis to come, you may end up so sick, recovery won't happen. There are huge limitations with the medical community when it comes to chronic...
  21. Gemini
    The Celiac State! Brilliant! It has to have good food and hiking trails.....and a Whole Foods! Think of the gluten-free parties we could have....
  22. Gemini
    My brother-in-law lives in Fort Collins. I could easily live there but my husband wants to stay in New England. We'll see what happens when we go to retire......New England is expensive and that can be an issue on retirement income. I fit in much better in Colorado than I do here in Mass and I've lived here my entire life. The people are just so nice and...
  23. Gemini
    Well, Tom....let me enlighten you on why some people would refuse an endo. When I was diagnosed, I was so violently ill, I could not hold food down and was beyond nauseous so doing any tests that would involve putting a scope down your throat was really not an option. I also have Sjogren's Syndrome and have severe dry mouth and throat. That can make doing...
  24. Gemini
    Ttg can be elevated from other autoimmune diseases and that is why you never try to diagnose Celiac from a Ttg test alone. It is NOT the most effective test because it can indicate other problems besides Celiac. So...what have they done about her elevated Ttg...there is a reason it's elevated.
  25. Gemini
    And this is why Colorado is one the healthiest states in the good ole US of A! They aren't food obsessed....which doesn't mean they are not into food either. I loved Colorado, for the freedom it's citizens enjoy and the fact they are into fitness and are so damn friendly. I think it's because they are so healthy, they are so happy and nice. I did...
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