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spunky

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Latest Celiac Disease News & Research:

Everything posted by spunky

  1. spunky
    I haven't had the chance to read all of the replies, but would just like to add my experience in case it's helpful at all... I went gluten free in Feb of 06... by the summer of 06, began having these symptoms... felt like the sphincter of my esophagus was messed up or something... like felt like it wouldn't open up to let swallowed food in, and wouldn...
  2. spunky
    Sounds horrible... how would it help anything to make yourself even sicker?????
  3. spunky
    This is something I've been trying to figure out forever... or it seems like it, actually, it's only been just under 3 years I've been trying to understand this. Seems my problems were triggered by the vegan diet... or possibly, when I think back, some subtle symptoms when I was a vegetarian (eggs, cheese, and some fish) for a few years before turning...
  4. spunky
    Good luck! This is why I didn't go to a doctor, but just limped and grappeld my way through my own diagnosis... I CANNOT go long without food before I get sick. And purposely causing diahrrea... I just can't do that. That's why I'll never have a real diagnosis... it's just too brutal... too barbaric... they ask too much of people who are already down...
  5. spunky
    Is that the ONLY symptom??? Sounds like either blood sugar problems, blood pressure related (low pressure and getting up too fast), or could even be something like a heart murmur. It's always possible celiac could be ultimately behind the problem... I guess... but it sounds like something else might be immediately responsible.
  6. spunky
    I just take two loaves of Tapioca Loaf, cut them into cubes, toast them on a cookie sheet, and then stir them around in a big pan with olive oil and spices... sage, rosemary, thyme, salt, then dice up onions, mushrooms and carrots, add broth and bake in a covered casserole dish. In other words... I took a stuffing recipe from a cookbook that was as close...
  7. spunky
    This is very bad. I hope the new administration straightens out our FDA so that people can KNOW what they are buying/eating/ingesting. I heard a doctor somehwere, on some interview, talking about celiac... someone asked if it was okay to eat something gluten free that was made in a facility that processes wheat products, or on machinery that does.....
  8. spunky
    Wishing you the best! All I can say is be patient... it took me the first 6 months gluten free to feel that I'd begun making real strides in better health... 2 years was a major turning point too... maybe you'll have success quicker, like some people here report...but be patient; it might take some time. It's well worth the efforts once good things start...
  9. spunky
    Well I read your story and have to say I'm sorry you've been through so many confusing things without answers!!! I think most people here could relate! As far as advice... I don't have much. I am undiagnosed, because doctors just exasperate me with all the round and round useless tests and wrong meds, etc. So I diagnosed myself. All I can say is...
  10. spunky
    I have no diagnosis but I'm 101% sure I have celiac disease. Something in our heads tells us it's wrong to know what's wrong without a doctor's stamp of approval on it... sometimes I wonder and catch myself thinking ,"But there's no diagnosis so maybe I don't have it." But then all I have to do is remember back how my life used to be, all of my symptoms...
  11. spunky
    Very touching. I'm so happy for you... congratulations on 5 years, excellent health, and celiac becoming no big deal!!!!
  12. spunky
    WOW! Very cool thought... how much cheaper would that be than some high-tech, chemistry once-per-use food testing kit!!!!! Plus, have a companion to boot! If you can figure out how to train 'em... I'm SURE people will want them!!!!! Maybe you could start with wheat vs. rice, (like make homemade doggie biscuits), then kamut, barley, etc., and then...
  13. spunky
    I've read repeatedly that wheat-fed/grain fed animals do not have gluten or other allergic components in their flesh. They might fattier and for that reason not the lean and healthy varieties that would be ideal, but I don't think it would be common to have an immune response to whatever they ate. And yes, I'm totally turned off whenever I see bread crumbs...
  14. spunky
    Technically, they say the gluten protein complex is found only in the grain... but I wouldn't want to even attempt to ingest wheat grass or barley grass, myself... whatever they say technically, it just sounds kinda scary to me personally, and I can't imagine any nutrients available in those grasses that wouldn't be found in other young greens or sprouts...
  15. spunky
    We have eaten Panda Puffs before... I'm wondering if you were looking at a box of Panda Puffs (gluten free) but inadvertently picked up this, apparently brand new product, Penguin Puffs, and then read the ingredients on that one, which includes kamut... seems the two could easily get confused if things aren't in the right spot on the store shelf or if they...
  16. spunky
    I don't blame you for wanting to avoid having that tube down your throat. I was never diagnosed, so I have no idea what doctors would have told me... I have feared doctors after a lifetime of horrid MISDIAGNOSES and wrong treatment my entire life... I just don't trust them. I had strange symptoms for 12 years, tried this and that, while the symptoms got...
  17. spunky
    Yes, I've also read of the Wheat Council and other such proponents of wheat growers seeking new ways to use their products and leftover stuff from their products. I've read that the Wheat Council is slowly trying to get the Asian Market less interested in rice and rice products, and more interested in breads, wheat noodles, etc. This might be true, since...
  18. spunky
    well that's not a happy thought! I would hope if, after this study, IF they ever did begin extending shelf-life of fruits with a gluten coating they would indicate so for the consumer. I guess buying frozen fruits/veggies might be an alternative if this ever does get to be a concern... that, or the best possible thing: find local producers and buy...
  19. spunky
    Did you try looking it up on glutenfreedrugs.com I don't know if the link will work, since it's a pdf file, Open Original Shared Link If that doesn't work, you can find the Walgreen's list on the gluten free drugs site Open Original Shared Link
  20. spunky
    Is eating out something you have to do for work, etc.? Sometimes when I have to go to a restaurant with others, I eat in advance and then just have a cup of coffee at the place with the others... this might seem extreme, but there aren't many restaurants that I know of around here that I would trust...plus, once I tried going gluten lite, back in 2001...
  21. spunky
    It's possible that if you stay 100% gluten free (maybe 100% dairy free too, or at least for the first year or two), you might find your leaky gut and allergy symptoms gradually resolving over time... lots of time... you might have to avoid lots of different foods at first, but for some people, if celiac / gluten was the big problem, they eventually get to...
  22. spunky
    Somewhere along the way I've seen celiac disease/risk compared to smoking and risks. For example, some people smoke and hack and cough, some smoke and don't, or some get emphasema, others never get it... some get lung cancer, others never do, some get heart disease, others don't, some die young because of smoking, some live long anyway, etc., etc., etc...
  23. spunky
    I agree recovery can be stepwise, back and forth. For me it has been. There were times when I seemed to be going backwards, but once I started forward again, I could see the improvement overall, over a larger period of time. My big steps forward seem to happen every six months... now at 2 1/2 years, seems to still be improvement slowly taking place....
  24. spunky
    In Asian cultures they ferment veggies right and left... In Japan they pickle all sorts of veggies in rice bran, in Korea they make kimchi, there's all sorts of other ways they do that. You can make sauerkraut or even deli pickles just in salt water; you can ferment just about any veggie you want in salt water...I even know of a guy from Russia who keeps...
  25. spunky
    I don't know what could be wrong, but I'm just throwing this idea out there for whatever it's worth. I used to host a monthly radio show and one time we had Cori Brackett as our guest... in a nutshell, becuase of her own struggles to try to overcome MS, she'd done a huge investigation and made a documentary film on how artificial sweeteners, especially...
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