spunky
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Latest Celiac Disease News & Research:
Everything posted by spunky
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ARCHIVED Any Gluten Free Vegaterians?
spunky replied to Violinist's topic in Gluten-Free Recipes & Cooking Tips
If you're the type of vegetarian that includes eggs and seafood, you can probably just continue on. I was vegan when I had to stop eating gluten, and while I've heard of others who manage this, I couldn't do it. I added seafood and attempted to add back eggs, but now they make me sick. So I added the chickens instead... I wish I could be vegan, and maybe... -
ARCHIVED When Did You Start To Notice?
spunky replied to radgirl's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Looking back, it's hard to say. I had constant ear infections growing up and terrible teeth. Enamel erosion since my permanent teeth started coming in. But I think I was healthy other than that... I often had diarrhea bouts in college and beyond, but figured everybody just did... do they????? They weren't terrible, they'd just come and go sometimes... -
ARCHIVED Introducing Myself, After 4 Years Of Fighting, I Can Now Say
spunky replied to Breila's topic in Parents, Friends and Loved Ones of Celiacs
From both what I've personally experienced and seen on this and other message boards, it seems almost everyone who eventually discovers s/he cannot eat gluten, regardless of age, has been through the blame game, hypochondriac game, the you-need-a-psychiatrist game, and most of all the denial game. I think a certain amount of anger automatically comes with... -
It's hard to know, especially at only 2 1/2 weeks gluten free. In my own experience, I saw CHANGES (not sure I'd call them improvement, but changes from my ordinary pattern of symptoms I'd had for years up to that time) in my symptoms after the first two weeks of 100% gluten free. Back in 2000, I went what I thought was gluten free and saw no difference...
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ARCHIVED Has Anyone Tried Digestive Advantage
spunky replied to Bets's topic in Gluten-Free Foods, Products, Shopping & Medications
I've used the Digestive Advantage for IBS with very good results. For me, after getting the gluten out, it took months for the gas to clear up. But I've noticed since then there is a new product out called Digestive Advantage for Gas... I think it would certainly be worth a try... their products are fairly cheap and the one I used really helped me with... -
ARCHIVED Can You Actively Heal Villi? Okra Or Wine?
spunky replied to cs789's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks, I'll try soaking my rice next time. Discovering my gluten problem pretty much ended veganism for me. I tried raw and I also just tried eating something like Eat-to-Live, where you eat mostly just fruits, veggies and nuts, some cooked and some raw. On both of those, I've been so hungry I just can't stand it. I've been extremely hungry my whole... -
ARCHIVED Can You Actively Heal Villi? Okra Or Wine?
spunky replied to cs789's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well, this is all very interesting! I never thought of it before, but it does seem the big bread and pasta cultures are very big wine drinkers...so maybe that helps turn the digestion into something similar that ruminents would normally have, if one follows Dogtor J's "glue food" idea and how ruminents allow alcohols to form in their multiple stomachs... -
ARCHIVED Trader Joe's
spunky replied to MissySue's topic in Gluten-Free Foods, Products, Shopping & Medications
I just recently discovered their online gluten-free list! Of course, we ran to Trader Joe's immediately and I stuffed the freezer with frozen meals... not that I was ever a big eater of frozen dinners and entrees, but, wow, it's so great to KNOW I have that convenience when I don't have it together to pack much of a lunch to take to work. I LOVE the... -
ARCHIVED Can You Actively Heal Villi? Okra Or Wine?
spunky replied to cs789's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well, Curious One and others... I do believe, both from reading and especially from how things worked out for me, that the probiotic, or good bacteria environment of our intestines is definitely screwed up in certain situations... gluten intolerance might be one of them or even the promotor of getting the bacteria all off balance in the first place... I don... -
ARCHIVED Controlling Cc In My Kitchen
spunky replied to dbmamaz's topic in Coping with Celiac Disease
It would certainly be preferable to do it the other way around, the gluteny stuff in one little area and the rest of the kitchen totally gluten free... but since you have a pretty-good sized family, I thought maybe it might work out more to everyone's likeing if the gluten area was the smaller area. I think even if a person were a neat and tidy housekeeper... -
ARCHIVED Controlling Cc In My Kitchen
spunky replied to dbmamaz's topic in Coping with Celiac Disease
I don't know if this would be possible, but, imagining myself in your situation (I live only with my husband and he just eats whatever I make)... I would find a room somewhere in the house, if possible, that was for my food only. I would try to have a little dorm-type frige, microwave, maybe even hot plate, and cupboard, handful of utensils, etc., and... -
ARCHIVED Can You Actively Heal Villi? Okra Or Wine?
spunky replied to cs789's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well, there's a lot of interesting theories out there, and I truly do believe that everyone is a little different, and needs to find their own way, etc. I was already dairy-free before I cut out the gluten...I was vegan, and started getting sicker and sicker and sicker, then after searching for WHY for 5 or 6 years, found gluten was my answer. Being vegan... -
ARCHIVED Can You Actively Heal Villi? Okra Or Wine?
spunky replied to cs789's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yes, I'm with Curious ONe... Dogtor J has said that other foods that have glue-like proteins, dairy proteins, soy, and corn to a lesser extent, can retard the healing of the villi. So the best thing might be to avoid soy, dairy, and possibly corn at least for the first year or so. I'm not sure I'll ever add those back to my diet, except I do eat corn... -
Give it a couple of years. In the meantime, if you buy a good probiotic, like Digestive Advantage for Irritable Bowel... that stuff helped me quite a bit... I just recently got to the point where I could stop taking the stuff... (just over 2 years gluten free... 54 years old)... it didn't make it all well, but it helped a whole lot. I tried Culturelle...
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ARCHIVED Baking Soda
spunky replied to AMQmom's topic in Gluten-Free Foods, Products, Shopping & Medications
Where did you read this? Because baking powder is often marked "gluten-free" on the label, but consists of bicarbonate of soda and something acidic to make it work, plus cornstarch or something to carry it. I think if your baking soda is just bicarbonate of soda, and no fillers or anything else added, it should be okay... I've never heard of baking... -
ARCHIVED Stamp Glue
spunky replied to Lisa's topic in Gluten-Free Foods, Products, Shopping & Medications
I remember reading that most paper glues are more likely to be corn-based...but still, from seeing too many people say they were glutened from liking envelopes, stamps, etc., I don't think it's worth taking a chance. -
ARCHIVED My Wonderful Milestone
spunky replied to blueeyedmanda's topic in Coping with Celiac Disease
Congratulations!!! Thanks for the encouragement and inspiration! I'm right on your heels, with 2 years and 2 months gluten free... I can still tell my body is healing. -
ARCHIVED Dogtorj's Take On Celiac...gluten/lectins/viruses/etc
spunky replied to CuriousOne's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It is amazing to spend time on his website. That man has thought and thought, researched and observed things in his pet patients and himself and other people, etc., and has a lot of stuff worthy of consideration. He's a very smart dude! Nice guy too! -
ARCHIVED How Long Till Villi Heal
spunky replied to holdthegluten's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Dogtor J is a vet, has experience treating animals, and also has celiac disease himself, and so he's very aware of how animals are fed and the consequences. His belief is that most meat and eggs should not have gluten effects on people or animals who are sensitive and eat them, but he did say that some chickens are now fed with a special high-sodium type... -
ARCHIVED Biopsy Or Not?
spunky replied to luciasmom's topic in Parents, Friends and Loved Ones of Celiacs
Would having a diagnosis from Enterolab be possible for you? Non-invasive, no need to eat gluten to take the test, but it is expensive and some doctors don't accept his results. He is a gastroenterologist, but has not published his findings. Open Original Shared Link I have no personal experience with this myself, but have read favorable things... -
ARCHIVED How Long Till Villi Heal
spunky replied to holdthegluten's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I think it can vary, but seems I remember reading somewhere that 2 years is a general ballpark figure to shoot for. I was never tested, etc., just figured out my problems on my own and went gluten free (got 100% of my info and HELP in doing all of that by lots of lurking here)... and have been gluten free for 2 years and 2 months. I felt somewhat better... -
ARCHIVED Kroger's New Labeling
spunky replied to almostnrn's topic in Gluten-Free Foods, Products, Shopping & Medications
Just be careful, though! My Kroger has little tags on shelves stating certain items are gluten free, and they have a few specifically gluten free items, cookies, and breads and stuff. But... I have gone in there and found the gluten free tag under ginger snaps, and then went to grab the box of ginger snaps, just like I'd done a few weeks before, but stopped... -
ARCHIVED Calling All Vegetarians!
spunky replied to Nyxie63's topic in Gluten-Free Foods, Products, Shopping & Medications
I used to be a vegan and when i first had to get off the gluten, I found Tofu Pups to be the ONLY gluten free veggie hot dog that I could find anywhere. We liked them... unfortunately, several months into gluten free I began having problems with soy and had to give up that, too. Now I eat wild fish and free range meat.... got too hungry remaining vegan... -
ARCHIVED Homemade Biscuits
spunky replied to MyMississippi's topic in Gluten-Free Recipes & Cooking Tips
I make them pretty much the same way I always did but with sorghum flour instead of white flour, but use either coconut or palm oil instead of lard, and use something in place of milk... but using real lard and real milk would probably make them better... I add a little bit of lemon juice to the milk (sub) to give it the buttermilk taste because I don't do... -
Cheri, did you click on the express order form? Open Original Shared Link We always order through that order form, and then they just send an envelope with the bucket of flour so you pay for it by mail AFTER your shipment arrives...like the honors system. It's a very good company and they go to great measures to keep the flour totally gluten free....