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Budew

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Everything posted by Budew

  1. Budew
    Never heard of these connections, and proven connections are even harder to find. Celiac and related diseases have only been able to identify in our lifetime. I think I have Milk Soy Protein Intolerance, no test for that yet, so the doc will have to take my word. Trust your instinct, nothing is too weird to mention, ask questions! Welcome to the gluten...
  2. Budew
    I have been asking that question for 5-6 years. Finding things that helped some like B-12 injections, eliminating all grain, iodonized salt, eliminating nightshades, regulating sylicilates, but still quite ill. I am posting today because I have hope again. I think milk proteins are the culprit. The delayed reactions made it hard to see the connection,...
  3. Budew
    Thanks I'll give it a try.
  4. Budew
    I need a suppliment. Doc suggested Brewers Yeast, I checked it is not an option for celiacs. He is reluctant to give injections. I check food sources and because of other dietary limitation that won't be enough. Can we take pills? I don't do well with pills. Are ther capsules?
  5. Budew
    Ravenwood is right on target. I finally did a spectracell analysis to check for absorbtion. Not covered by insurance but only $75. Has really given me direction and peace of mind. Good luck.
  6. Budew
    I start the B-12 injections today. Sure hope this clears the fog and fatigue. Nice to see it makes a noticable difference in you folks. I as suprised that this treatment went on for years for some, and that folks seem to be looking for an oral alternative. Why not just do the shots?
  7. Budew
    Thanks for the article, very timely for me. Regular blood panels show everything is okay, but I did a spectracell ananysis a couple weeks ago. The doc called with the results yesterday, "No wonder you feel bad" I am unable to metabolize B-12, C, E, and selenium. I begin injections today. I hope this works because the pain and the mental deterioration is both...
  8. Budew
    For the last year I have had several suppliments suggested by my doctor. All except l-glutamine, coQ10, and probiotics have made me ill. A couple weeks ago I did a spectracell analysis. Doc says I am missing the trinsic factors that make the body able to utilize the vitamins and minerals. Normal blood tests showed adequate levels but when checked, the...
  9. Budew
    I am thinking of adding soy to my diet. The best tofu I have ever had I have always gotten at resturants. Puffed, commercially flash fried. I found it in a huge asian market in Austin TX. I can find it online but not a vendor. Anyone know where to get it?
  10. Budew
    Thanks for the support and information. I read the salicylate link and bought the celiac disease. I have cleaned up my environment and eat a very low salicylate diet. Its helped some of the pain and reduced flushing. I read about Lectins too. I cut back for several months. I am adding some legumes and seem to be tolerating them well. Being free of nightshades...
  11. Budew
    I am from the US. I am into my seventh year off suffering since becoming gluten free. Through elimination I feel I can correlate rice and corn to migraines. Now that I have been completely grain free for 6 months, the medical community now blames my suffering of diet defieciencies, they are encouraging me to add grains. I am full of fear, every grain I have...
  12. Budew

    ARCHIVED Need Help

    Budew replied to Jenny1972's topic in Coping with Celiac Disease

    Jenny- Bummer sometimes isn't it! Glad to hear you are a fighter! Me too! Really gets me when I start to lose the will to continue the fight, but everytime, someone comes along says the right thing and I am fighting again. I can identify with not wanting to eat. Watching the scale works for me. If I drop below 110 I push myself to increase calories...
  13. Budew
    I am so glad Rice Guy is attending to this thread. I have gotten some good advice from him lately. I do want to say get the info and post it. I was where your friend is. I felt too ill to help myself. I had lots of caring prople but had to really do this alone. For several years I was just to sick to care. Death became a focus. It had to be bettter than...
  14. Budew
    Sorry to hear about your friend. Most of us have had other problems as well. Do you know about what she eats? Tests done? Does she ever get relief? Tell us more. Hang in there! You are a good friend. Budew
  15. Budew
    Thanks for the sources. I'll check them out. Budew
  16. Budew
    Welcome both Jacey and Lynda. This board is great. I have been posting about a year and alays find it helpful. I agree with all that's been said. Good luck! Budew
  17. Budew
    I had a terrible problem too. I have eliminated many foods over the past year and when I cut all grains the sinus problems completely cleared up. I got relief from the saline but it only helped a bit. Down deep I think it is corn for me. Hope you figure it out. My heart goes out to you, it is miserable.
  18. Budew
    I had terrible sinus issues and when I completely cut out corn they cleared up. It was like a miracle. I also gave up rice shortly after. It took care of a low grade headache that seemed to linger for days. The corn reactions for me last about 3 days, so maybe your pinapple reaction was just lingering corn. Legumes are healthy but some people do have...
  19. Budew
    Henrietta- You are right, it takes time to heal. It depends a lot on how much damage gluten has done to your intenstines and if any related conditions have manifested. I am 7 years into healing and just beginning to show signs of healing. It turned out the damage was extensive and as a result I am sensitive to many things. All grains and legumes to name...
  20. Budew
    You guys always seem to have good advice. Here we go again. Burning mouth, that's it. Sometimes my face beads with sweat. You know how your mouth feels when you eat something REALLY spicey, lips feel swollen. The problem is this has become constant. Drinking milk, eating cheese and ice cream bring relief for a hour or so. Water helps but has no lasting...
  21. Budew
    Validation for so many things. That's what I get from this board. I have been gluten-free 7 years. I am still working on feeling great. I am much better the last year. I really began to cut out foods. I have been vegetarian 30 years. I can tolerate some dairy especially high fat low protien products. I have not had any grains for a few months now. I feel...
  22. Budew
    Congratulations! Budew
  23. Budew
    Sfm - Great answer. happygirl- I would suggest you have your children tested no matter what. If they are eating gluten now and have a blood test to see if they react why not do it. My mom has had celiac for 50 years, I was not tested until I was 40 years old. I never had the "typical symptoms" so I was never tested. My system was severely damaged because...
  24. Budew
    First of all Jenny great thread. We have more in common than you can imagine. I'll write you. Second Rice guy thanks so much for the great info on buckwheat. I have buckwheat in my frig but have been a bit nervous about trying it but a hot breakfast with apples sure sounds tempting : ) Right now I am on the elimination system in an adding back phase...
  25. Budew
    I eat all day sometimes. Mostly before bed. I just posted a not relating to your bumps on the belly. Not to be redundent but I wonder if it is a Nickel allery.
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