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Latest Celiac Disease News & Research:
Everything posted by GeoffCJ
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ARCHIVED I Guess I'm Official. Just Got My Enterolab Results.
GeoffCJ posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
backstory - Been having symptoms for 10-12 years. Mainly gastrointestinal in nature, cramping, bloating, gas, diarrhea, etc. Frequently needing to use the restroom soon after eating. This was variously diagnosed as Lactose Intolerance (not true, I went Lactose free for a long time, and it never helped) and Irritable Bowel Syndrome (generic Catchall... -
ARCHIVED Cereal Recommendations?
GeoffCJ replied to katrinamaria's topic in Introduce Yourself / Share Stuff
Old thread, but I found it with google? I just ate a big bowl of the Cinnamen flavor puffins. Damn. Is it the oat flour? Damn. G -
ARCHIVED Before Diagnosis
GeoffCJ replied to Kaycee's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I had symptoms for 10-12 years before figuring things out. In that time I'd be diagnosed with nutritional deficiencies, IBS, insomnia, lactose intolerance (not true, I tolerate it quite well), had nerve issues no one has solutions for, and I'm fairly certain at least two drs probably had the hypochondriacs in their notes about me. I'd never heard of... -
ARCHIVED Something New I've Noticed
GeoffCJ replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
i have serious issues with my hands and feet tingling. To the point where walking can be painful/difficult. Unfortunately, I've seen little improvement since going gluten free 5-6 weeks ago. Geoff -
ARCHIVED I Wish Enterolab Would Hurry Up! News From My Doctor-
GeoffCJ replied to GeoffCJ's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Oh, I also have fairly severe issues with my hands and feet going numb/tingly/painful for no apparent reason. -
ARCHIVED I Wish Enterolab Would Hurry Up! News From My Doctor-
GeoffCJ posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I want information! Here's the story, I've posted bits and pieces before. I've had stomach/GI issues for going on 12 years. Mostly Diarrhea and loose floaty, smelly, stools. Some cramping, lot's of gas. I've also had issues with periodic insomnia. I was pescatarian/vegetarian/vegan for various portions of that time period, and always a bit... -
ARCHIVED Gluten Free Sam's Rotisserie Chicken
GeoffCJ replied to Slackermommy's topic in Gluten-Free Foods, Products, Shopping & Medications
My wife and I have avoided WalMart and Sam's Club for years due to concerns about their business practices. But with their commitment to the enviroment, and their labelling of gluten-free foods, we've decided to check out the new Sam's club that just opened 5 minutes from our house. Thanks for posting this, I love Chicken! Geoff -
ARCHIVED Hi:new, Scared, Relieved
GeoffCJ replied to debster-cbus's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Scott, Welcome! I've recently figured out the gluten thing. I had the stomach issues, but also the pins and needles/numbness/pain in my hands and feet. It gets really bad sometimes, even making it hard to walk or type (which is important, since I work at the computer a lot). I also suffered insomnia for years, which I never even associated with the... -
ARCHIVED Rice Paper & Your Asian Market Shopping List
GeoffCJ replied to 2wheels4eyes's topic in Gluten-Free Foods, Products, Shopping & Medications
Spring Rolls! Vietnamese style, unfried, with Fish Sauce. You can put all kinds of things in there, my wife and I make a million variations. Love them, had them for dinner tonight. Most are "naturally" gluten free. Check the following for ideas - I didn't check them all for gluten-free, but they should be or easily made gluten free. Open Original... -
ARCHIVED Rice Paper & Your Asian Market Shopping List
GeoffCJ replied to 2wheels4eyes's topic in Gluten-Free Foods, Products, Shopping & Medications
I shop at chinese/vietnamese groceries a lot, but normally have my wife and/or mom-in-law along for help. I've found rice noodles and paper to be pretty safe. I'm pretty wary in general. I recently found some rice crackers, clearly covered in sesame seeds, that didn't list sesame seeds ANYwhere on the ingredients, so that makes me leery. But honestly... -
ARCHIVED Send Comments To Fda On New Labeling Guidelines
GeoffCJ replied to sunshinen's topic in Gluten-Free Foods, Products, Shopping & Medications
I agree that it would seem silly for say, a milk company or an egg company to label their stuff gluten free. But what about a spaghetti sauce? There is no reason it needs wheat, but I'd sure feel better if it was labeled. I guess I just feel that I'd like them to err on the side of too many labels. And having threatened companies with a "mislabeling... -
ARCHIVED Elizabeth Haselbeck Said She Has Celiac!
GeoffCJ replied to TBOX's topic in Publications & Publicity
thanks. It was short, but good. I thought it was a shame she never really said what any of the normal symptoms are. I know they aren't pretty, but she could have at least mentioned "intestinal distress" Geoff -
ARCHIVED Send Comments To Fda On New Labeling Guidelines
GeoffCJ replied to sunshinen's topic in Gluten-Free Foods, Products, Shopping & Medications
Awesome! Thanks! Sent in my comments. Looking at Open Original Shared Link It looks as if what we really want is " 5. Option Five: Take the Proposed Action, Except Delete Wording Requirements for Gluten-Free Claims on Foods That Inherently Do Not Contain Gluten" Thanks for posting that! Geoff -
ARCHIVED Pitfalls Of Self-diagnosis
GeoffCJ replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's exactly it. I agree it is a choice to not be sick. I disagree that it's a lifestyle choice. I do not think that that term accurately describes the situation we're in, nor gives it the appropriate level of seriousness. From Wikipedia - In sociology, a lifestyle is the way a person (or a group) lives. This includes patterns of social relations... -
ARCHIVED Elizabeth Haselbeck Said She Has Celiac!
GeoffCJ replied to TBOX's topic in Publications & Publicity
What time in the episode is it? Not sure I'll be able to sit through a whole episode... Geoff -
ARCHIVED Pitfalls Of Self-diagnosis
GeoffCJ replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
To me, that's like saying I have control over gravity. I choose not to jump off a building. That doesn't imply I control gravity, I'm simply forced to accept the reality of it's existence, and work with it. I feel the same way about Celiac. My worry is this, if other's beleive that it's a "lifestyle choice" will they really feel compelled to take it... -
ARCHIVED Pitfalls Of Self-diagnosis
GeoffCJ replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I think we'll have to agree to disagree, but I strongly disagree. There is an inherent difference between making a choice like vegetarianism, and choosing to treat a disease. It's like equating an appendectomy and an eye lift. Sure, both are surgery, and you can choose not to get an appendectomy when needed, but it'd be pretty dumb. In my book, those... -
ARCHIVED Pitfalls Of Self-diagnosis
GeoffCJ replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have to disagree with this. It's not a lifestyle choice. I'd never choose to give up beer and pizza with my buddies. I'm forced to, because I get sick if I don't. Would you call diabetes or a peanut allergy a "lifestyle" choice? Cause that's the way I feel about Celiac disease. I was vegan or vegetarian for 12 years. That was a lifestyle... -
ARCHIVED Is It A Red Head Thing?
GeoffCJ replied to Rook's Mommy's topic in Parents, Friends and Loved Ones of Celiacs
I think the first responder is correct. Celiac has the highest rates of incidence amongst people of Celtic descent (which includes Scots, not just Irish). These populations also have high rates of red hair. I'm not a redhead, but my mom and sister both are! (Scottish) Geoff -
ARCHIVED Dr. Says I Don't Have Celiac
GeoffCJ replied to Katerific's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
On what basis did you say he don't have Celiacs? I mean, why does he think you don't? -
ARCHIVED Which Are Possible Symptoms?
GeoffCJ replied to Peta's topic in Parents, Friends and Loved Ones of Celiacs
This is one I have struggled with. My only symptom other than the stomach./gi grossness. But its been bad. Sometimes I have a hard time doing normally day to day stuff, even walking. Luckily it's rare to be that bad, and it doesn''t last that long normally. -
ARCHIVED Good Cereals To Eat?
GeoffCJ replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
I wish Fruity Pebbles would go on sale. I've always bought cereal with coupons/sales - now my options are limited, and it seems like the few available just won't firggen go on sale at my local shop. I used to be a raisin bran, grape nuts, granola, kashi kind of guy (wonder why I was always sick?!) Puffed rice just doesn't float my boat. ... -
ARCHIVED I Need Pizza. Pizza Made By Someone Else. That Tastes Like Pizza.
GeoffCJ posted a topic in Gluten-Free Restaurants
Pizza! Ugh. That's the one that's killing me. Are there ANY places in California that serve Gluten free Pizza? I live in Sacramento, but travel to LA and San Fransisco Frequently. I'm a little sick today, must have missed some gluten, I'm fighting the temptation to eat pizza now since it won't change much. -
I've only been gluten free a few weeks, and not seeming to do a good job (or I have other food issues - ) Strangely enough, my nerve issues, painful "tingling" in my hands and feet, with numbness - How can it be painful and numb? I don't know, but it's the best description I can think of, it hurts, and tingles, but I can't feel other sensations - ...
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ARCHIVED What Are You Craving?
GeoffCJ replied to angel-jd1's topic in Gluten-Free Foods, Products, Shopping & Medications
I miss Pizza. I wish there was a place around here that sold tasty good pizza that was gluten free. I miss pizza. I'm not much of a baker, but I might have to learn to be. Geoff