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Latest Celiac Disease News & Research:
Everything posted by GeoffCJ
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ARCHIVED Progress Report
GeoffCJ replied to GeoffCJ's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Sorry to hear that you are not well, and that the enviroment isn't as supportive as it should be! On the Men vs. women thing, I don't know that I've seen a number for that. Any more experienced celiacs know? -
ARCHIVED Progress Report
GeoffCJ replied to GeoffCJ's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Seems like it might be happening, little by little, with the press and all. Even if for some people it starts as just a way to "lose weight", if they notice the big changes, then get sick on gluten again, maybe it'll help. I do worry about people not taking it seriously if "gluten-free" becomes the next South Beach diet. Geoff -
ARCHIVED Progress Report
GeoffCJ replied to GeoffCJ's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Momma Goose, I'll work on it. Between the language barriers and the fact that Po-Po (Grandma) speaks no english, Nor do I speak Chinese or Vietnamese, and Po-Po doesn't measure anything, or even know the english names for things, it gets tricky! But I'll work on it! She's good though, if she suspects ANYTHING, she asks my mother-in-law or wife... -
ARCHIVED Progress Report
GeoffCJ replied to GeoffCJ's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks you guys. This site has been a solid asset. I forgot one thing, and it's a big, big one, the pain and numbness in my hands and feet, while not gone, is certainly dramatically reduced in both frequency and severity. Woohoo! Geoff -
ARCHIVED Progress Report
GeoffCJ posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This is my JerryK style update. A brief history - For 11-12 years I've had symptoms. GI issues, then sleeping issues (light sleeper/insomnia), then my hands and feet going numb. Always felt tired. I tried to stay active, but hadn't had the energy I used to. Lots of stomach problems. I'd have frequent, sometimes painfull tingling/numbness in... -
If there is a Vietnamese place available (I don't know where you are in the UK) many Vietnamese places are more Celiac freindly. The sauce used primarily there is Fish Sauce, which is normally Gluten-free. Chinese food is tough. I used to eat out 4-5 days a week, between lunch and dinner. I will admit that with this diet, I've cut that back to only...
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ARCHIVED Dove Ice Cream Bars
GeoffCJ replied to wowzer's topic in Gluten-Free Foods, Products, Shopping & Medications
Those particular one's probably are, but I'm 99% sure my wife bought me a Dove flavor recently that wasn't. Had Malt Flavoring (often to thing to watch for in Ice cream and other sweets.) She is pretty careful when shopping, lucky me, so often I don't even double check if it makes it on my gluten free shelf, or the fridge (which is entirely gluten free... -
ARCHIVED Can Everyone Post Their Genes
GeoffCJ replied to confused's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Today - Old Navy. Normally - Levis But I'm working on switching the wardrobe to organic cotton. I don't know my Gene's despite paying for the test from Enterolab. I'd have to look. I was diagnosed both by biopsy, diet, and Enterolab. Having had so many wrong diagnosis-es over the years, there was really no way I was going to let any one test... -
Eh. I guess they don't want our business. Boo Applebees!
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ARCHIVED Hansen's Natural Soda
GeoffCJ replied to ginap73's topic in Gluten-Free Foods, Products, Shopping & Medications
Wow. It looks very real. Without the hand for scale, I wouldn't even have thought to wonder. But the scale was wrong. I thought it might be a real baby, but a photoshop trick. Geoff -
ARCHIVED Hansen's Natural Soda
GeoffCJ replied to ginap73's topic in Gluten-Free Foods, Products, Shopping & Medications
I think Hansens is Ok. Is that a real baby in your avatar? Looks impossibly small.... Geoff -
ARCHIVED Forgive Me For I've Been Bad
GeoffCJ replied to JerryK's topic in Coping with Celiac Disease
I think about cheating all the time, but my reactions are bad enough that I haven't done it. I've had a few miserable accidental glutenings. But if I had a once a month free pass, it sure wouldn't be Mc Donalds. I'd be at Woodstocks Pizza for the Pizza buffet. And a pitcher of beer! Geoff -
ARCHIVED Conflicting Test Results
GeoffCJ replied to bmpress's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Barry, If you have been strictly gluten free for 9 months, and are feeling good, it seems very likely that an endoscopy will show a healed system. So it'll look like you don't have Celiac. The blood test is known for having false negatives. I had a negative, but have had positive dietary response, clear damage on the endoscopy, and tested positive... -
"So, if he can eat cheese without any reaction, he is most likely lactose intolerant. But, if he has a reaction to cheese than he may be casein intolerant." What's the easiest way to tell reliably which I'm reacting too? Thanks, Geoff
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Wow. That's grim. I can sympathize a little, it took me 10-12 years to figure things out. Luckily my hardships weren't as bad as some. My suggestion would be that with your symptoms, you can save some money by not ordering any tests. You've mentioned that Dairy free has helped, has gluten free? I felt a pretty immediate improvement for a few...
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Kassandra, Good luck getting everything figured out. If you can afford it, I'd get the package that includes Casein and other sensitivities. I figure the more information the better! Have you had the blood test or a biopsy? Geoff
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ARCHIVED Gluten Free Brownies At Starbucks!
GeoffCJ replied to angel42's topic in Gluten-Free Restaurants
Before everyone gets too excited, a few notes about starbucks. I used to work there, and I have had a different job where I traveled extensively. SO I have observed SB's around the country. Starbucks uses two sources for bakery items. a few items are shipped from central shipping points, and you'll find the sme in most stores. The old Rugalach... -
ARCHIVED Do Other People's Comments Bother You?
GeoffCJ replied to NWLAX36Mom's topic in Coping with Celiac Disease
Funny story. My wife's family is Vietnamese/Chinese. Mom and Grandma and some of the Aunts (it's a BIG family) know about my diet. The big thing I have to watch for when eating with them is Soy Sauce (not with immediate family, but at gatherings). I guess that because of all the times it's asked (in chinese or Vietnamese), "Does this have Soy Sauce... -
ARCHIVED Do Other People's Comments Bother You?
GeoffCJ replied to NWLAX36Mom's topic in Coping with Celiac Disease
I had an interesting experience, I was a conference the last few days, and had lots of snack foods with me. Several people noticed I was eating the offered food. Some clearly noticed, but didn't comment. A few asked if I had "allergies". One had a celiac relative and noticed the gluten free labeling on something. Nobody seemed upset, or suprised, or... -
ARCHIVED Eating Fish Roe At Sushi Places....
GeoffCJ replied to eleep's topic in Gluten-Free Restaurants
Damn. Really? I hate this diet. The obvious stuff is bummer, but it's this stuff that makes this diet super, super hard. I need to order the triumph cards. Geoff -
ARCHIVED Maggiano's Restaurant In Phila... Boo... Hiss
GeoffCJ replied to luvs2eat's topic in Gluten-Free Restaurants
That is pretty surprising. In this day and age, you'd think they'd be a bit more forthcoming. -
ARCHIVED Enterolab--what's The Scoop?
GeoffCJ replied to woolwhippet's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I had a negative blood test, but tried a diet and saw dramatic improvement. 6-8 weeks later I did a endoscopy, which showed clear damage, but not clear Celiacs. I had been gluten free/lite for several months at that point, which I think explains the ambiguity. My silly Dr. didn't tell me I needed to eat gluten, and the first time I met the GI specialist... -
Salmon, Shrimp and the like should be fine for celiacs, though it is possible you have another allergy (seafood). What were they cooked in? Do be aware of processed fish cakes, or artificial crab, since those might contain wheat. G
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ARCHIVED Luna Bars
GeoffCJ replied to Samanthasmomma's topic in Gluten-Free Foods, Products, Shopping & Medications
and Lara Bars. I'll have to look for bumblebars. -
ARCHIVED 100% For Non-violent Reactors?
GeoffCJ replied to wusidi's topic in Coping with Celiac Disease
If it's authentic Vietnamese, it will use Fish Sauce, not Soy Sauce. You still need to be careful about the meats, but most are OK. fish Sauce does not contain wheat. If there is a lot of Soy Sauce, then it's not proper Vietnamese food! Geoff