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VioletBlue

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Everything posted by VioletBlue

  1. VioletBlue
    Yes, I suppose at 47 you could consider me middle aged, thanks by the way for that. HOWEVER, had one single freaking blind pig headed clueless medical professional figured out twenty years ago what was wrong with me I wouldn't have been middle aged when I first started bedeviling you at your restaurant for something, anything to eat that doesn't have wheat...
  2. VioletBlue
    I disagree. The difference is you can teach a dog not to steal off the counter. Humans, well, not so much, LOL. BAD HUMAN! It took some persistent work but I finally taught the puppy from hell that counter surfing was not acceptible. Now if I could just teach the kitten . . .
  3. VioletBlue
    If you're getting home at 9 at night I don't think a crock pot is going to work on those days, LOL. What ever you put in there in the morning is liable to be mush by 9pm. But, on those days when you do get home around four or five or so you could use one to do like a pork roast or a whole chicken and then you'll have left over meat for days after to throw...
  4. VioletBlue
    It's odd that you all picked up on testing as an issue with relation to health care reform. There are so many ways to cut expenses in the current health care "system" that have nothing to do with how many tests are run. It's kind of a non issue in reform. The real targets from what I've seen are excessive costs and the obscene profits most health care...
  5. VioletBlue
    If I remember right there are different tests for iron levels. One will meausre what is circulating in the blood, and the other test will measure what is stored in the body. The body stores quite a bit of iron for later release when iron in the blood gets low. Some doctors believe it is possible to have a healthy iron count in the blood without necessarily...
  6. VioletBlue
    There already is a cure; it's called a gluten free diet. That's all the "cure" I need or want.
  7. VioletBlue
    It could be you've answered your own question. If your breathing improves when you take the Xanax and if anxiety is an ongoing problem for you, the anxiety could be the issue. It helps to understand what happens when you breath. You breath in oxygen. The oxygen saturates the little air sacs in your lungs and the oxygen is difused through membranes in...
  8. VioletBlue
    I just had to say thank you to the chef at The Cork Bar in Los Angeles on Grand Ave. They have a great menu and he was so happy to talk with us for a bit about how he prepares the food to make sure it was going to be safe for me. Had the roasted duck breast on rice. It was heaven! As the name implies they also have a huge selection of wines. No gluten...
  9. VioletBlue
    Some people appear to be unable to tolerate oats, even certified gluten free ones. The protein in oats is very similar in structure to the protein or gluten in wheat rye and barley. Some people don't have a problem with oats and some people do. Your intolerance reaction to oats, if you had a problem with them, wouldn't be instant, it could take an hour...
  10. VioletBlue
    Have you been to a doctor and explained what is going on? I think it would be a really good idea to have some basic blood tests run. What you are describing sounds similar to what my father went through everytime he ate a meal with protein. He suffered from liver damage which did eventually kill him. When the liver is malfunctioning it has trouble processing...
  11. VioletBlue
    It sound like you've found a job that works for you. In today's job market that is a pretty amazing thing for anyone to be able to say. Heck just having a job is becoming more and more amazing. It also sounds like you have the opportunity to travel with this job. Another great perk. I'd love that myself. I'm currently trying to restructure my life and...
  12. VioletBlue
    Hmmm, well maybe supplemental vitamin B is good for EVERYONE and not just Celiacs? Now granted we tend to be deficient in it at diagnosis but then we tend to be deficient across the board at diagnosis. Who's to say once we've been on the diet awhile that we must be anymore deficient than someone without Celiacs or benefit anymore than a "normal" person...
  13. VioletBlue
    I know that research studies have shown that the HLA-DQB1*0602 gene is present in 90% of people with narcolepsy. This is also a gluten intolerant gene as well, and some research indicates that it is a marker for MS and Tourette's. That particular gene is one that relates to immune system function. They do now believe that narcolepsy is an auto immune disorder...
  14. VioletBlue
    If you're gong to follow that line of thinking than you will also have to give up eating chicken, pork, beef, turkey and pretty much any other meat product that might have been grain fed. Wouldn't it stand to follow that if milk is tainted the animal's meat would be as well? But most commercial milk cows are not fed wheat rye or barley grains anyway...
  15. VioletBlue
    I agree a food diary is the best way to figure out what is making you itch. It is most likely an allergic reaction. In the mean time there are a couple things that worked for me. Claritan stops the itching but it takes thirty or forty minutes from the time I take it. If it's an allergy it will respond to things like Claritan and Benedryl. There...
  16. VioletBlue
    A blood test that is meant to determine if you are allergic to some susbtance WILL NOT in all likelyhood catch a food intolerance. So if you're gluten intolerant, wheat will not neccesarily be an allergen for you. You could be intolerant of foods like nightshades and corn and lactose without being allergic to them. An allergic reaction is different from...
  17. VioletBlue
    From my perspective, having a diagnosis on your chart would just be one more pre-existing condition which insurance companies could use to later discriminate against you. Right now you can honestly answer the question "Have you ever been diagnosed by a doctor with Celiacs Disease or any other auto immune disorder" by saying NO.
  18. VioletBlue
    I don't believe Wishbone Italian salad dressing is gluten free if that was a question. My stomach says it's not and I believe other people here have had issues with Wishbone in general. Good Seasons Italian on the other hand is gluten-free. These days I tend to do a search here first to see if there is any info on a product I'm considering trying. Most...
  19. VioletBlue
    Hormel Aus Juis pork. According to their website it's gluten free. According to my stomach not so much.
  20. VioletBlue
    I stopped eating in restaurants after I went gluten-free. It's just too hard to order and way too easy for them to make mistakes. Instead i started planning out every meal and making sure I took care of my own needs. While I'm not saying your friends are annoyed with you because you are not eating gluten, I am saying that you need to take charge of...
  21. VioletBlue
    Everyone so far has given good advice. It does take time. I would add to be sure to read every label and become familiar with what you are looking for. Many canned soups for instance contain gluten as a thickening agent, not to mention those with noodles in them, which are of course wheat noodles.
  22. VioletBlue
    I understand your frustrations. Chocolate affects my mood, so I eat very little of it, small amounts once a week maybe. It doesn't matter what type, who the maker is; it messes with my brain chemistry in a bad way. Carob . . . well, it's brown. Also raw carob powder stinks to high heaven so keep it in an air tight container if you buy some. I've...
  23. VioletBlue
    For starters I'll try to be polite but I make no guarantees. The doctor referenced is not an MD, he has a doctorate in naturopathic medicine from Bastyr University. So I question automatically ANY medical theories he puts forth. TOTAL atrophy of the villi of the small intestine is not possible. You would be dead long before that happened. You have...
  24. VioletBlue
    The lower back pain I was having almost constantly went away after I went gluten-free. The sciatica problems I had before rarely appear now. For whatever reason going gluten-free helped me tremendously.
  25. VioletBlue
    You may also experience that gurgling sound if you're eating something else you're intolerant of. Additional intolerances are not uncommon among us here. The gurgling and gas happens to me too if I eat peppers or eggplants or too much tomato. For some reason potatos don't bother me. The best way to figure out what is bothering you is to keep a log of...
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