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hathor

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by hathor

  1. hathor

    ARCHIVED Introducing Myself

    hathor replied to a topic in Coping with Celiac Disease

    Starches not yet mentioned -- wild rice (not a rice, so you might tolerate it), millet, amaranth, teff, sorghum, lentils, split peas, peas (yes, the last three are legumes, but folks sometimes just think of beans and peanuts in this category), corn, winter squashes (butternut, acorn, Hubbard, banana, pumpkin, buttercup, turban squash), other root vegetables...
  2. hathor
    I would seem to be rare for people to have complete recovery in a week. At least that is the impression I get from comments on this forum. Perhaps those who immediately get completely better don't bother to post It often seems like one's body has to adjust to not having gluten anymore. I know my system was rather, er, manic depressive I'll call it, for...
  3. hathor
    You could try Enterolab testing. Their tests are supposed to pick up a problem with gluten prior to it showing up in blood testing. You could test for other food intolerances at the same time. Many have seen behavioral changes in children with a gluten free casein free diet. (I'm reporting what I've read, not from personal experience.) Of course, the...
  4. hathor
    Well, my first few months I was learning not to gluten myself. So there was that problem. Also it seemed like my intestines were manic depressive at times for no apparent reason. My theory is that they were detoxifying and getting used to not consuming gluten or soy. I know at week 3 I had an inexplicable bout of amazing diarrhea (my usual problem my...
  5. hathor
    thanks
  6. hathor

    ARCHIVED New Here

    hathor replied to leelee20's topic in Gluten-Free Restaurants

    Hmmm ... my understanding is that pickled ginger is made with rice vinegar. Have you run across anybody that has been definitely glutened by a grain vinegar? Like I said before, I thought that was an old fear that had been disproved. As far as safety is concerned, see: Open Original Shared Link https://www.celiac.com/st_prod.html?p_prodi......
  7. hathor
    The Glutino pasta I have is made with ground brown rice, rice bran & water. For some reason, the Glutino web site just calls them brown rice pastas and doesn't show the ingredients (leastways, I can't find where they do ...) But here is someone showing the ingredients: Open Original Shared Link
  8. hathor
    On another forum, we were having a discussion on this very topic. Someone was having difficulty using her manual tortilla press for gluten-free tortillas and someone else said that her electric press worked well. Now, I just have to find one. Katydid, what brand do you have?
  9. hathor
    JenKuz, thanks so much for the recipes. You saved me from doing the research I'm really scared about ordering falafel in a restaurant these days. Would they put wheat or a wheat-containing ingredient in there? Would they use a fryer that is also used for glutened items? I seem to be incapable of frying things without burning myself, so I'll...
  10. hathor
    There is a new book out entitled "The Gluten-Free Vegetarian Kitchen." This may help! There are certainly internet sites out there with recipes that are both vegetarian and gluten-free. Quite a few vegetarian recipes can be converted to gluten-free too. I usually start off with some starch to be the main point of the meal, then add veggies to...
  11. hathor
    My understanding is that one has to be consuming gluten for the blood testing to be accurate. I am surprised the doctor did not tell you this. NCGS, as I understand it, might or might not show up on blood testing. (If blood testing only gives positive results for celiacs, there would be no reason for endoscopy.) Or it could be that celiac, in the early...
  12. hathor

    ARCHIVED New Here

    hathor replied to leelee20's topic in Gluten-Free Restaurants

    I know about fake crabmeat. But, do you know something I don't about pickled ginger & wasabi? Why would they contain gluten? I have them all the time and don't react. I also haven't reacted to grain vinegar. It used to be folks said one had to stay away from that, but I thought that recommendation had been dropped with additional study (i.e.,...
  13. hathor
    Have you tried keeping a food diary? If the problem follows a particular food, you may discover another food intolerance or something that is cross-contaminated. With the elimination of dairy, did you also start making sure you don't eat anything to which casein or a caseinate has been added? It is possible to get casein in nondairy items. You...
  14. hathor
    If your doctor is just a pill pusher and doesn't believe in celiac (what, as a disorder or in you specifically, despite your history and symptoms?), why don't you get a different doctor? There is no risk in NOT eating gluten, just risk in doing so. One doesn't outgrow celiac. If you had it once you have it now. If you feel better, you have your answer...
  15. hathor
    I really like what someone else recommended on a different thread. (Sorry, I can't remember who, so I can't give the proper credit.) If offered something with "just a tiny bit" of gluten in it, say you will eat it if the offerer eats "just a tiny bit" of Ex Lax. Then you can share the experience
  16. hathor
    It wouldn't surprise me if some gluten-free bread on grocery shelves is old. Probably each newly diagnosed person buys it once and that's it. What does surprise me is that The Gluten-Free Bible claims that Holgrain crackers are good. I guess taste really IS personal.
  17. hathor
    I wasn't suggesting eating anything merely labeled wheat free. I said if it was labeled as both wheat AND gluten free, it should be fine. I haven't heard of any manufacturer labeling something as gluten free under mistaken notion that gluten only comes from wheat. Now restaurant personnel -- I wouldn't trust them to know. Some of them don't understand...
  18. hathor
    I've seen Bionaturae at Whole Foods & several other food coop/health food type places. I haven't seen it at a regular grocery store that I can recall. If you find it, be sure to check the label. They also make wheat pasta. I do rinse my Tinkyada -- doesn't seem to make any difference. Glutino has the same ingredients, I don't rinse that, and it...
  19. hathor
    Be sure your doctor runs the entire battery of tests you need for diagnosis. You can read up on this subject on this site. https://www.celiac.com/st_main.html?p_catid=2 Sometimes I've heard of doctors who really don't know much about celiac and they do NOT run all the necessary tests. Do you know what you are getting? Even if you test negative, with...
  20. hathor
    I've had a heck of a time with Tinkyada myself. I know there are folks who swear by it. Maybe it is a question of personal taste, the local water, or something. It seems to go from crunchy to mushy on me; sometimes it is both, depending on the shape. I can't get it al dente, even when I carefully follow directions, test constantly, etc. Other gluten...
  21. hathor
    It can take time. It seems to be rare for people to go off of gluten & casein and have all symptoms immediately clear up. I remember the first couple months being kind of rocky for me. That said, you may be getting glutened regularly by something. You've been told about kitchen items and personal care products. What about ... licking envelopes...
  22. hathor
    I don't know for sure about diagnosing a leaky gut, rather than inferring one. I've heard there are nice soy cheeses out there. They may have to be ordered online. I remember someone telling me once about one ... only this was right before I found out I can't have soy and so I've forgotten. I can't even remember what forum it was. You may have to...
  23. hathor
    Naturally, Fantastic Foods is the brand all the stores I go to seem to carry It's as if I forget the soy sauce -- or can't get my mind around it -- and so every couple months I'll pick it up, read the label, and say, "Oh, yeah." Maybe now I've mentioned it to someone else I'll remember Is there a recipe you like? I tried making falafel once from...
  24. hathor
    You've already been tested for casein and found intolerant. You haven't eliminated casein and still have symptoms. Before you do anything else, cut out the casein. Many people do it. I know you are new to all this and it is normal to go through a grieving process for the foods you can't have. I know I did; I still have some pangs of regret every so often...
  25. hathor
    I don't think you need to worry simply because it says wheat free (gluten free). I think that manufacturers say this because there are people who are allergic to wheat that probably don't have the foggiest notion what gluten is. I haven't had any problems with foods labeled this way ... I don't see why cosmetics would work differently.
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