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vbecton

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Everything posted by vbecton

  1. vbecton
    thanks myquest7846!! I will keep an eye out for this and maybe even offer myself up for trials! i'll also check to see if any trials are going on in my area. right now, 7010 are in preclinicals. exciting. and no worries gemini! my situation is different. the whole blood sugar thing is a problem. i find that 100x worse than celiac! then traveling...
  2. vbecton
    I would! Only because of my lifestyle. When I'm home in my own country eating gluten isn't necessary. When I'm overseas, it's sometimes unavoidable. And only because I have other medical conditions that further restrict my diet to a paleo type diet (but no fruit for me). When I'm in a 3rd world country and all that's available in a village are some...
  3. vbecton
    Thanks for your help Gemini. I guess my post came across as blase toward careful meal planning, but that's not the case. In some countries, we've even done gluten-free reconnaissance missions (ha!) where we know people on the ground where we are headed and they get the lay of the land (restaurants, health food stores, etc...). Another medical issue...
  4. vbecton
    Haven't been on here in a long time! In lieu of the article Celiac.com put out today about research furthering on a new "celiac" pill, which would be a lab created enzyme to break down the peptides. My brain is swirling. We travel overseas half the year. We are in anywhere from Europe to 3rd world countries. I always get contaminated as eating in some...
  5. vbecton
    Your situation sounds like mine. I eat nearly 4000 calories per day and feel (most of the time) like I'm being starved alive. I have good days, but even those I don't eat much less than 2500 calories. I've had low blood sugar problems my whole life. I went gluten free 4 months ago and they seemed to resolve. Now, it's coming back. My diet is clean...
  6. vbecton

    ARCHIVED Doctors In Houston?

    vbecton replied to sue1234's topic in Doctors

    Try looking at this site: Open Original Shared Link Scroll down to Medical Advisors. Janet (the leader of the Houston support group) is very knowledgable and I'm sure everyone on this list is highly recommended for Celiacs. Someone on that list is bound to accept BCBS. Good luck!
  7. vbecton
    Wow, I'm so happy to know Disneyworld considers intolerances/allergies! Very good info to know. I'm intolerant to all the above as well, but by far the worst was soy. I think it's because once you take out gluten, then dairy, anything left that is processed will be made with soy. So, I consider soy the worst Eating gluten & dairy free are...
  8. vbecton
    I'm with ravenwood. If someone says that comment on a bad day, I'll blow a gasket. In fact, last week I went to the hospital lab for my monthly blood work (vitamin levels, etc...) and the intake lady looked at my lab sheet and said, "oh, 'weight loss', that's a convenient problem...poor you!" And she was very sarcastic. I kindly replied, with a sweet...
  9. vbecton
    Good info! My doc did mention there was a qualitative and a quantitative test. There was so much information talked about during our meeting that I can't remember my head from my tail, but I do remember him saying he wanted a full 3 days of specimen to get an average of fat. But, I'll email him to make sure he's looking for both types of fat. Did...
  10. vbecton
    Thanks ravenwood, I guess we are on the right track with the stool testing. My GI said the blood testing was too non-specific to really give us anything to go on. He also said the pancreas isn't easy to diagnosis. There are lots of things to rule out first, unless it's an acute problem.
  11. vbecton
    Went back to the GI doctor yesterday for test results. I'm steadily getting worse. My bowels are in full-attack, military distress, calling all cars mode!!! Can't hardly leave the house for fear of "D" as I never know when it's going to strike. It's the sneak attack D, the kind without much warning. The doctor thinks my pancreas could be the problem...
  12. vbecton
    Hi Chakra2. Thanks for the nutritionist info. I would definitely take the advice of a nutritionist, or dietician. I was referred to a nutritionist, but her prices were astronomical just for a consultation....and 1 hour at that. I'll look her up. That's actually the area I used to live in. I *heart* Montrose!!! Thanks!
  13. vbecton
    Oh sweet baby jesus! I was actually holding my stomach while reading your story. I'm so sorry you had to go through all of that. And why is it that our husbands are always out of town during the good stuff? I know he must have been scared! And yes, mommies don't get days off. I was in bed all weekend and when I finally decided to peep out I saw...
  14. vbecton
    BTW, I love Australia. I have spent many a' months in that great country, on many trips. I tried to find an Aussie to marry me, but no such luck . Great idea about the stir fry's with noodles. I'll get the cookbook because I need help on the sauces. That seems to be my biggest cooking obstacle...finding sauces that I can use that won't make me...
  15. vbecton
    You are making my brain work...I like it!! I have been reading the Sue Shepherd information, as well as what comes from Monash. I never thought about a phone consult! Good idea. I've got the Patsy Catsos (IBS-Free at Last) book and it follows what comes from Sue and Monash. Although, I don't think the book is highly scientific, it gives the basics. ...
  16. vbecton
    Great minds think alike! I'm actually avoiding all FODMAP's at the moment. Which, is probably why I feel like I have no variety when you add that to the no dairy, soy, corn, legumes, etc... I'm still having issues despite no FODMAP's. My doctor doesn't do the breath testing for fructose malabsorption as it's unreliable. But, he said trying the diet...
  17. vbecton
    This is an interesting post! I'm currently 4 months into the gluten-free diet and have eliminated nearly everything. Everything I eat makes me sick. I'm a whole food eater, no grains at all except the odd 1/2 cup of rice. Nothing processed, blah blah blah. The problem is trying to identify the source of the problem because the diets can all be conflicting...
  18. vbecton
    Thanks for the spreadsheet by the way!!! It has helped me map out my food. You aren't feeling better either? How long have you been gluten-free? I feel like a big baby crying over this because I have the liberty of being a stay-at-home-mom. I couldn't imagine dealing with this with a real job....well, one who cares whether I do my job from the...
  19. vbecton
    Thanks guys for the good cheer! I'm going to mention to my GI about the microscopic colitis. In fact, that's the only test I haven't done lately...the rear shoot colonoscopy! So, that seems to definitely be a possibility. I know I'm positive for SIBO and that runs hand in hand with microscopic colitis. Hmmm. Thanks for the idea. dilettantesteph...
  20. vbecton
    I just need to vent. Probably, blow a gasket!! If you've read my posts before, you know that I don't lay around. EVEN, if I'm tired. I might take it slow, but I don't lay around. I have never felt worse in my life. I'm approaching month 4 on gluten free and I feel miserable. I'm pretty much anxious or scared to eat anything. I'm down to a few...
  21. vbecton
    I am immunue (knocking on wood just in case ) to poison oak/ivy. It's funny this topic even came up because about 2 weeks ago I was out running in the woods with my girlfriends. There was loads of "ivy" brush hanging down on the trail...it's not normally that overgrown. I can't tell the difference between oak, ivy, or regular ivy that grows on a house...
  22. vbecton

    ARCHIVED Angry

    vbecton replied to Googles's topic in Coping with Celiac Disease

    I totally agree with Skylark. You MUST report this to your disabilities office and get yourself set up with them. They will sort out your record. I deal with these same issues at my son's school and on a yearly basis...each school year we have to prep everyone and bring new teachers up to speed on his disability. I work with an advocacy agency in Houston...
  23. vbecton
    I was wondering the same thing. I can't tolerate whey at all. Not even whey isolate. Which is sad because because the better protein shakes have whey in them. I was thinking some Celiacs can bring dairy back once their intestines heal because the villi would be functioning properly to release lactase? But, that wouldn't help any of use who can...
  24. vbecton
    YEAH! I just ordered the IBS - Free at Last book!!! Patsy mentioned she only used the latest research from Australia to write the book, so I'm glad I picked this one. I was going to order the one from Sue Shepherd but she mentions that most of it is brand specific to Australia....but, I guess the fruits & veggies list would be accurate! I'm going...
  25. vbecton
    I was a vegetarian my entire life until last year (30+ yrs). I have NEVER drank milk either, other than my momma's . My only source of calcium was yogurt and cheese, both of which I loved, plus some random fruits. Yogurt is a good source of protein as long as it's not that sugary kid kind. Greek yogurt is the best for protein. Try giving him the greek...
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