confused
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Latest Celiac Disease News & Research:
Everything posted by confused
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ARCHIVED Just So Sick Of This Disease.
confused replied to ptkds's topic in Coping with Celiac Disease
I so know what you are goign threw, Last night i told hubby i just want to be normal. We were at the park and either people were having dominoes or sub sandwhiches from subway as family picnic. I was so depressed. Now that we know for sure what is going on with my ss, it is even more depressing. I am with you on the weight thing, I gained weight when... -
ARCHIVED Just Got Results And What's This Double Dq Thing You Talk About?
confused replied to LynneM's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Does your brother have the same genes as you? I am so glad i found someone with the same genes as him, and we can compare stuff. We always know when he has had gluten cause of the nosebleeds and canker sores, plus he gets really bad skin around his mouth. paula -
ARCHIVED Just Got Results And What's This Double Dq Thing You Talk About?
confused replied to LynneM's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
That is so intersting, his major sign was canker sores and nosebleeds, and major stomach pains, that the drs said was just gastritis. But I knew better after i researched celiac. ANd he was very moody, one moment he would be screaming the next he was crying. Plus he was very skinny, but his bio mom and his dad were skinny at that age, so everyone kept saying... -
ARCHIVED Can Celiacs Use Exlax?
confused replied to mandigirl1's topic in Coping with Celiac Disease
Do you still consume dairy. I know since i became dairy free. My bm;s have been better. I still get D when glutened, but i no longer have C. paula -
ARCHIVED How Does Oranges Affect You?
confused replied to T-Bird's topic in Coping with Celiac Disease
i cant eat oranges cause of my ulcer. Does your hubby have an ulcer? paula -
I am going to contact him this week. I am hoping he will diagnose ss with celiac from having high IgG levels and having the ceiliac gene and all the stomach problems that he has. I really hope he will see him, if not then we will just keep him gluten free and not worry about the official diagnosis. Cause i refuse to ever put him back on gluten. paula
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ARCHIVED Confused About Genetic Testing Results
confused replied to DebW's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Ok from the research I have done and conclusions I have made, it looks like your hubby needs to stay away from gluten all the time. Two DQ1 genes are linked to many neurological problems. Your husband may have symptoms that he is not aware of that are not Gi related. I am sure ohters will have more information. But i just wanted to respond with the little... -
ARCHIVED New To This...some Questions
confused replied to hillarylmt's topic in Related Issues & Disorders
I wanted to say thanks again for that list and thank you for adding info if it has dairy or not. I am printing this off again lol paula -
ARCHIVED Test Results Are In
confused replied to confused's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks everyone. I am happy that we now know. I am now trying to talk my husband into having the gene test done. I want to know if the celiac gene came from him or my ss mom. I am sure it came from the bio mom since the sister has celiac. But i want to be sure for the sake of the rest of the kids. But he is afraid to find out. So we shall see if i can make... -
ARCHIVED Test Results Are In
confused replied to confused's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Is anyone else this subtype Serologic equivalent: HLA-DQ 2,1 (Subtype 2,6) Im wondering if i should get him a thing here to talk to other teenagers. Does anyone else have their kids on here. paula -
ARCHIVED Test Results Are In
confused posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Well today I got the results back for my stepson, and all of them came back elevated, but the malabsorption. But he does carry one celiac gene and one gluten gene. So since he does not have malabsorption is that a good thing or bad, or was it cause he was already gluten free for a few weeks prior to testing. paula -
ARCHIVED Sugar & Dairy Ease ?
confused replied to Lisa Ann's topic in Gluten-Free Foods, Products, Shopping & Medications
Has anyone ever found out if dairy ease is gluten free. My husband wants to try it since it is lactose free, but i wasnt sure if it was gluten free. I couldnt find anything on their website. paula -
ARCHIVED Pediapops Gluten Free?
confused replied to sillyactsue's topic in Parents, Friends and Loved Ones of Celiacs
Im not sure either, but you could make popsicles with gatorade, if you are worried about getting electrolytes in your child. or even make them from 7-up. I have never done this but its an idea. paula -
ARCHIVED American Idol Fans?
confused replied to blueeyedmanda's topic in Introduce Yourself / Share Stuff
I had a feeling that no one was going to go home, when he kept saying tonights results are going to shock you, then when he just had then stand one by one, i was like nope no one is going to go home tonight. I actually even think the contestants knew this to. It will be sad to see 2 go home next week. I cried for most of the show to, it is so sad to... -
ARCHIVED Anyone Watch Dancing With The Stars?
confused replied to blueeyedmanda's topic in Introduce Yourself / Share Stuff
im hoping apollo wins, if not him then billy ray, then if not him then leila paula -
I was thinking of making an pot of beans and see what happens, then if I am fine with the fresh beans, then I will know if it is an additive. Then I can look at the cans on both and see what it has in common. The bush beans were the regular baked beans, so they are on the safe list. paula
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I know i have felt terrible after the bush beans, then last night i was in pain again after i ate refried beans. So I am not sure if its to all legumes or just beans right now. Or if i am getting glutened by other things. I am so afraid to eat anything, its almost 11 am and i havent ate anything. I have no idea what I should eat anymore. paula
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ARCHIVED Everything Happens For A Reason
confused replied to blueeyedmanda's topic in Introduce Yourself / Share Stuff
I am glad you were there for her. Maybe its a start of a nice friendship. Neighbors make the best of friends( i know i had the best neighbor). I have always felt the same as your mom, that everything happens for a reason. paula -
Ok it looks like a bean intolerance is a leguem intolerance, anyone else have this. paula
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Here is the post about them not being safe no more. paula
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ARCHIVED Coco Pebbles & Coco Dyno Bites
confused replied to Jo.R's topic in Gluten-Free Foods, Products, Shopping & Medications
I read it in another post, i cant seem to ccp it over here so I am just going to bump up the thread that someone seen it was no longer gluten free. paula -
ARCHIVED American Idol Fans?
confused replied to blueeyedmanda's topic in Introduce Yourself / Share Stuff
Phil did do an awesome job, I got goosebumps from his song also. I just wish they would lessen his eyebrows or dye them lighter, i think that would make him look better and not so scary looking at times lol paula -
ARCHIVED American Idol Fans?
confused replied to blueeyedmanda's topic in Introduce Yourself / Share Stuff
After last nights perfomance I have no idea who I want gone. I do think lakisha did an bad job on her song, only fantasia can do that song justice. I think jordin was amazing. Blake wasnt that great but he there was not much he could of done to that song anyway. It did give me goosebumps tho. I actually even voted last night, well when i could get threw... -
ARCHIVED Oddest Places That Have Gluten
confused posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Ok lately i have been reading about things that have gluten that i would have never thought of. So I was hoping we could start an list of things that most people do not think about that would have gluten. paula