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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    DH doesn't usually have pus unless it gets infected. It will sometimes have a clear fluid and for me that fluid would seem to burn the surrounding skin when my DH was at it's worst. You might want to see a derm and request a biopsy specifically for DH. Some derms are not familiar with the fact that you need to biopsy next to the lesion not the lesion itself...
  2. ravenwoodglass
    I am really close to Ithaca and wondering also.
  3. ravenwoodglass
    I take 'Super Enzymes' by NOW they are free of all you mentioned. I get them at my local health food store but I think you can order them on line, here is the website address. Open Original Shared Link
  4. ravenwoodglass
    Thanks for posting this. I think you have helped me solve a mystery that has gone on for years. I have been covered in pinpoint hemmorhages for many years now and even holding a grocery bag over my arm will cause bleeding under the skin. I haven't seen a doctor in a couple of years now but will be finding one soon. When I was seeing them I always had...
  5. ravenwoodglass
    Count me in for the dairy and soy. I seemed okay with soy for a while but think I really overdid it after I went gluten free. Not being able to have soy does make it tougher. It seems to be in so many gluten-free foods.
  6. ravenwoodglass
    DH can vary a bit in presentation and intensity. Mine was a lot like you describe at one point but at another I was covered almost like I had poison ivy. It is usually bilateral but not always. If he biopsied the bump he did do the biopsy wrong to find DH. This is the National Institute of Health has to say about how the biopsy is done. I would go...
  7. ravenwoodglass
    It took a long time but my hair did thicken up a bit. Of course with any glutening I lose a lot again for a month or so. If you haven't already checked them make sure all your haircare products are gluten free also. Sometimes the hairloss is part of the autoimmune reaction and sometimes it is a result of vitamin and mineral deficiencies and sometimes it...
  8. ravenwoodglass
    Me too. I actually came to the same conclusion you did, that it was the extreme length of time that I was ill that contributed to my high sensitivity. My other family members have done a lot better at being able to do shared equipment foods and restaurants and it is hard sometimes not to feel jealous and well...isolated. But then I also realize that they...
  9. ravenwoodglass
    You are in a tough spot. If you have been very ill for a long time I would go ahead and do the diet after I had blood work drawn for the celiac panel. Your regular doctor can order that. Then give the diet a shot. You could try adding gluten back in after 3 months, if your symptom resolution hasn't been what you thought it would be, and see how you react...
  10. ravenwoodglass
    You are describing my son's breath quite well. That is not normal. I would take him in to the doctors the next time you notice the odor and have him breathe in the doctors face. I would also get the celiac panel done as soon as you can along with other testing mentioned. I also got the 'he just doesn't want to go to school' routine and i got it for my...
  11. ravenwoodglass
    I think a lot of us become more sensitive but everyone is different. Were you diagnosed with bloodwork? If you were you could have the panel rerun and see how much your antibodies are dropping.
  12. ravenwoodglass
    That sounds like a good plan. You might want to slowly introduce one of the alternative milks. Maybe use a gluten-free rice milk (or other alternative) on cereal and in cooking to start. Then mix rice milk 1/2 and 1/2 with regular milk and slowly increase the amount of the rice until they are dairy free. When I first went dairy free I used vanilla hemp...
  13. ravenwoodglass
    Now you go back to the diet. Things will be up and down at first, there is after all a lot to doing the gluten free lifestyle. Give the diet a good 3 to 6 months before you decide for sure that gluten isn't an issue. Also make sure you get hard copies of the biopsy report. There often are changes that take place before total villi destruction and not...
  14. ravenwoodglass
    DH can pop up suddenly. Often there is a trigger for it. A severe illness or physical or mental stress are usually triggers. The biopsy for DH is done by biopsying the area next to the rash not the rash itself. If you have active lesions then the antibodies will be found in the adjacent skin. You should contact a Dermatologist and ask for the biopsy...
  15. ravenwoodglass
    I think that is a great idea. Does your church already have a food bank? If it does you could first go in and mark stuff that is safe. If not I would talk to 'the powers that be' at the church. If you get their permission then visit markets in your area and see if you can set up boxes for donations from the public to get started. Getting funding might...
  16. ravenwoodglass
    Have you tried an elimination diet? Have you replaced gluten with soy in many of your foods? Many of us are also reactive to soy, it took me a few years to figure that one out. What about casien or milk protein, that is a problem also for many. Do you regularly consume oats? For some of us they are safe but for many they are not. You should have seen...
  17. ravenwoodglass
    I weaned off all meds before I went through the elimination diet that made my diagnosis finally possible. I did consult with my doctor as I was on a handful of daily meds and there were some that I needed to wean from. I have never had to add any back in. I do still get an overwhelming depressive episode if I get glutened but it is limited and passes within...
  18. ravenwoodglass
    Is she looking at plain rice? Plain rice should be fine although I do rinse mine throughly before I cook it. Lundenberg makes some great rice mixtures with wild rice and brown. Plain white longcook rice should also be fine.
  19. ravenwoodglass
    Any illness or severe stress can trigger celiac so Lyme could definately do it. I would go ahead and ask for a celiac panel, you have nothing to lose and it might come back positive. There is no way to tell until you get the panel drawn. One other test they can do with neuro predominant celiac is an MRI of the brain. Often there will be something called...
  20. ravenwoodglass
    I am sure many of us can identify with this post. One thing you may want to look into is perhaps getting a medical leave of absence at work. If this is possible it would give you some time to heal. I wish I had some advice as to getting your new hubby to help but I can't get much help from my family either. So at least your not alone in that. I remember...
  21. ravenwoodglass
    DH is NOT an allergic reaction it is an antibody reaction. A lot goes with it other than the rash and it is the antibody reaction that causes DH. For the antibodies to be activated it takes very very little gluten and once the antibody reaction begins then they begin a cascade through the body causing many symptoms other than the rash. That is how we know...
  22. ravenwoodglass
    The actual number for false negatives according to the NIH is about 30%. It can take a while for the antibody reaction and the inflammation to leave the joints. It took about 3 months for me to really notice the difference in my arthritis and by 6 months it was in remission. The only time I have any flares now is with severe glutening. I have been able...
  23. ravenwoodglass
    Have they checked your levels of Vitamin K? If you have not injured your fingers those blood blisters could be a sign of something serious. Please go back to the doctor as soon as you can.
  24. ravenwoodglass
    Welcome. I am glad you are starting to feel better. It does take a bit to get the hang of things but it sounds like you are well on your way.
  25. ravenwoodglass
    Yes. Many of us will notice that symptoms become more severe after we have gone gluten free. The body really doesn't like it when we finally remove what has been poisoning us and then it gets another dose that starts the antibody reaction going again. You are doing the right thing by having the him follow the diet. Testing is often a false negative in...
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