Jump to content

ravenwoodglass

Advanced Members
 View Profile  See their activity

  • Posts

    14,675

  • Joined

  • Last visited

  • Days Won

    153

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by ravenwoodglass

  1. ravenwoodglass
    You might want to try their chili spice rather than the seasoning packet. They are really good at labeling, as you found and all their seasonings that have just the name of the spice are safe.
  2. ravenwoodglass
    I had an MRI about 5 years before I was finally diagnosed. The UBOs were clearly visable on the MRI. The report said they were not in the right spot to be demylinating lesions so not diagnostic of MS. What the report did not say was that they were diagnostic of celiac disease. Many US neuros consider them to just be a 'fluke' that 'lots of folks have...
  3. ravenwoodglass
    Gerri's post almost brings me to tears. That a doctor would continue a challenge when the person is being so severely impacted is in my opinion criminal. There can come a point where the damage to the nervous system does become permanent. In others repair can come at a very slow pace, meaning years. The impact on the liver is also very troubling to me...
  4. ravenwoodglass
    I am glad you are starting to feel better. Have you checked your shampoo and conditioner? They could be contibuting to the back itch especially if you have long hair. It is so wonderful when we start to feel good again and I hope you continue to improve.
  5. ravenwoodglass
    That really is a valid query when we are talking about hair loss. Yes many hair dyes do contain gluten. Your stylist may be able to give you the contact numbers for the dye that she is now using so you can check but if you want to switch to doing it at home there are some safe brands. I used to use Herbatint which is an herbal dye made in Italy that I...
  6. ravenwoodglass
    Yes. If you have others in your home who are not gluten-free if they share your goodies ask them to wash their hands first or to pour out their own portion into a bowl.
  7. ravenwoodglass
    The alcohol can allow more 'stuff' to get into the bloodstream more quickly and helps increase the permeability of the gut. Even more so if the alcohol has 'bubbles'. If your gut is already damaged this could result in a more severe reaction IMHO.
  8. ravenwoodglass
    Well your gluten challenge was postive. You were not on the diet long enough to really notice a day to day difference but you sure did notice what happened when you added gluten back in. Your choice to remain gluten-free is a good one. Be sure to look for all the hidden gluten sources and do be sure to check all meds. Your thoughts on challenging again...
  9. ravenwoodglass
    If you have had good results from the diet the need to biopsy is up to you. If you wait till next summer you will be facing at least 3 to 6 months of full glutenings to even have a chance at a positive result. I would take your return to health and just run with it but the choice of whether to do the long term challenge of course is yours alone.
  10. ravenwoodglass
    You have gotten a couple of good replies that I agree with whole heartedly. Do give yourself a good strict trial on the diet for at least 6 months. Welcome to the board and feel free to ask any questions you need to. IMHO you have found your answer to your issues. Time will tell, I know it did for me. I never expected to lose anything other than my constant...
  11. ravenwoodglass
    You have gotten some great advice. I would add a good high protein snack at bedtime also. That may help you sleep through the night. Your body is craving nutrition and the hunger attacks are IMHO it's way of begging you for it. More protein and good carbs should help alleviate that.
  12. ravenwoodglass
    I smoke an additive free cig called American Spirit. Since the change over I haven't had any of the blistering lips that I would get when I smoke most conventional brands. The additive list for cigs is a mile long and does include many gluten ingredients. I err on the side of caution and eliminate possibilities and then challenge and look for a reaction...
  13. ravenwoodglass
    Unfortunatly my son was not diagnosed until after I was. Although he could have been a poster child for celiac it was never even considered. He was 20 at diagnosis and unfortunately his growth plates had fused. Take a good look at your son in shorts and a sleeveless Tshirt. If his long bones in his upper arms and thighs seem out of proportion do try to...
  14. ravenwoodglass
    I also agree it is time to do a gluten-free trial. If he is symptomatic that is what I would do if you are not going to go the biopsy route. What you may want to do is keep a detailed log of what happens during the time that he is gluten-free. Note his starting symptoms and note his progress on the diet. Include behavioral and learning related symptoms...
  15. ravenwoodglass
    Some of us will lose hair due to nutritional deficiencies and some may have this as an autoimmune effect. Some will lose it in patches, that is alopecia areata which is definately immune mediated but the diffuse loss can be part of the autoimmune picture also. Whichever it is from it should be relieved after you have been gluten-free for a bit. I...
  16. ravenwoodglass
    You won't have time today but you should try some of the Gluten Free Pantries mixes. The chocolate cake is really good, I like to do cupcakes. Pamela's makes a good muffin mix and there are Food's by George brownies that are ready made and all you have to do is defrost. Chances are no one would even know any of these were gluten-free unless you tell them...
  17. ravenwoodglass
    This is normal and is your body telling you that you have made the right choice to be gluten free and it really, really doesn't like it when you add the toxin back in. Even tiny amounts are going to restart the antibody effect which is what you are seeing. I hope you recover from your glutening soon.
  18. ravenwoodglass
    You could try Ghee, it is clarified butter and is gluten and casien free. Do be aware that almost all butter subs do have casien. This applies to many that are termed dairy free so be sure to look for the word casien on the labels if you are avoiding milk protein.
  19. ravenwoodglass
    Just a word of caution for those of us who have DH. I was looking into these things out of curiosity and noticed that one of the cautions on the box is that folks who are allergic to iodine should not use these. If you have DH make sure you pick them up locally so that you can read the ingredients and look at the warnings. A DH breakout on the bottoms...
  20. ravenwoodglass
    Even though you are taking a good multi your body may not be able to use the B12 that is in it. You really need a sublingual B12 in addition to the multi. The same villi that are damaged by celiac are needed to make something called intrinsic factor which is what allows your body to absorb and actually use the B12. Until you heal you can not make that...
  21. ravenwoodglass
    Kinnickinnick makes some good breads. If you can't find them locally you can order them online also. The pizza crusts are good and I also like the donuts.
  22. ravenwoodglass
    Very wise move. What is the med he switched you to? Is it by any chance a generic? The binders can be risky so make sure you check for gluten in those with each refill. A name brand pill has to always use the same binder that they use when they patent the drug so those are often safer in the long run for us. Hopefully the longer you are gluten-free...
  23. ravenwoodglass
    Have your dentist check everything they use on you. Chances are the adhesives and such are okay but it is better to be safe than sorry. Celiac can also effect the strength of your tooth enamel so be sure to keep every cleaning appointment and do make sure that they check the pastes and such that they use when cleaning. I speak from past experience here...
  24. ravenwoodglass
    Yes. I use a respirator that will filter out small particulate matter and gloves. A regular dust mask may not be enough so looking like a bug is a safer alternative. Make certain that it seals well aroung your nose and mouth. If you have a small face, like I do, you may need to order one to get one in a small enough size. Be sure to get some extra filters...
  25. ravenwoodglass
    Their chips are really good. The multigrain one though does have oats if memory serves me so I haven't tried those but the olive ones are really good. I also really like the chocolate spread with cream cheese, yum.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.