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ravenwoodglass

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Everything posted by ravenwoodglass

  1. ravenwoodglass
    I find your comment about swaying very telling. I did this for years before I was diagnosed and it stopped within a couple of months gluten free, as did the tapping foot (I can't do the fast tap even if I try now but was never completely still since I was a child). I think you should make real sure you are gluten free for a while, I would go six months...
  2. ravenwoodglass
    The tests that you consider the most specific miss up to 30% of celiacs and many miss entirely the folks that are compromised neurologically or with skin issues but mild GI symptoms. Celiac is in reality a spectrum disease, it can effect many differently and can damage many more organs than just the gut. Enterolab checks for antibodies to gluten in the...
  3. ravenwoodglass
    I would ask my doctor for a panel, he can call in the order. Then after the blood is taken do a trial of the gluten free diet. Or you could go with Enterolab testing and try the diet. The Enterlab tests are more likely to be accurate than the blood draw. But regardless of the test results a gluten free trial will most likely give you the most accurate...
  4. ravenwoodglass
    Does your Mom belong to an organized religion where you could talk to her pastor or priest? Could they perhaps help you with this issue? Do you have any older relatives that she likes and respects? Could you get some assistance from or perhaps stay with them? Also does she have a doctor that you could contact and talk to? Are they aware of how ill she...
  5. ravenwoodglass
    Be sure you insist that it be gluten free. The clear stuff they used with me had just a bit of cranberry juice added for flavor and was as thin as water. It was not hard to get down at all. If you can't see through it it most likely is not safe.
  6. ravenwoodglass
    Hemp Milk has the most calcium and protein of any of the nondairy milks. You can also get it powdered to add to baking and smoothies.
  7. ravenwoodglass
    Are you gluten free? If so how long? Do you have any neurological involvement? Things like balance issues, pins and needles sensations in hands and feet, depression and anxiety or migraines? One thing you should for sure do is get a sublingual B12 supplement, gluten-free of course. One with magnesium is going to be the best. Also take a good gluten...
  8. ravenwoodglass
    I wouldn't be overly concerned about which side of the family she got it from. For one thing she most likely has people on both sides that carry the genes, there are now 9 known to cause some variety or another of gluten intolerance. By the way the person who has the rashes and had a negative blood test should try the diet anyway. Up to 30% of us show...
  9. ravenwoodglass
    I also agree that this is a strong possibility. Hopefully the time left in the situation will be brief.
  10. ravenwoodglass
    Yes you should both at least have a blood screening. In countries where they screen children routinely they do it at age 4 and again around puberty. Regardless of the blood testing you and your family may want to go gluten free for a couple of months and then just add it back in and see if unexpected results occur. My family was surprised how many things...
  11. ravenwoodglass
    Posts like these make me so sad. If folks have been gluten free for a time and seen improvement and then when they add gluten back in they get sick, that is diagnostic. Whether your villi are totally destroyed or not, and that is what they are trying to do in the challenge, you know your bodies are reacting. Whether you are a full blown, close to death...
  12. ravenwoodglass
    I agree that your Mom is most likely an undiagnosed celiac. She is showing a lot of symptoms of serious mental illness. You should get out of there for your own safety. I am going to suggest that you immediately contact your local womens shelter. Catholic Charities is also an organization that may be able to help and you don't need to be Catholic to get...
  13. ravenwoodglass
    That story is so sad. I do hope they both get the help they need and that they don't do something cruel like charge him with something....well unless she was chained to the sink.
  14. ravenwoodglass
  15. ravenwoodglass
    You could also have been reacting to a glutening that occured up to three days before. For some of us the gluten reaction is a delayed one. That is why when you do a challenge you need to add the substance for up to a week before you can be sure it isn't something you react to. It was a good point about the 'chalky' stuff they make you drink. If you are...
  16. ravenwoodglass
    Some of us will be fine with this, others like myself would not be. Do you react to grain alcohols? If you do you will be more likely to have a reaction. Sensitivity to gluten grained vinagers and alcohols vary greatly amongst us. I wish I had a conclusive answer for you other than to challenge it when you are eating nothing else risky and see if you...
  17. ravenwoodglass
    There is a definate link to infertility, lack of menstration and spontaneous abortion with women with celiac. For a long time they thought that nutritional deficiencies were the primary reason but they are now realising that more is at play than just that. There is a lot out of good articles out there, here are 3 to get you started. The first on may be...
  18. ravenwoodglass
    It sounds like you have a great doctor who is more concerned with the health of his patient than a lot of them are. Congrats. I think the home page here has a place for celiac savvy doctors to be listed, you may want to add him to the list.
  19. ravenwoodglass
    Just do your laundry yourself with your own detergent till you get your own place. Mom will be glad to have one less chore to do. You may soon be hearing from her how at least one good thing came out of it, you learned to do laundry.
  20. ravenwoodglass
    What detergent and fabric softener do you use? The rash may be linked to that. I have problems with rashes on my head and body when I use a lot of different products. I have learned the hard way to stick with Arm and Hammer dye free scent free detergent and fabric softner. Don't know if this is for sure the issue with you but thought it was worth mentioning...
  21. ravenwoodglass
    I find it interesting that the specifically told you to continue eating gluten and then he want to rebiopsy. What that says to me is that the findings are not firmily saying you have celiac so he wants you to keep eating it until the is able to say that your villi are totally destroyed. If you got relief from the diet and then saw a your symptoms return...
  22. ravenwoodglass
    Vent away, that is one of the best things about the board, we can vent and we know that others have been in the same spot, and come out of it. I also would advise checking into your GED and also check into community colleges. Here in NY after you have completed a certain number of hours of community college you automatically get your high school diploma...
  23. ravenwoodglass
    I would call the company again and tell them you are not a chemist and want a definate answer. The person you spoke with basically blew you off. If on the second call you can not get a firm answer return the products or try using a very small amount on the inside of your forearm or thigh, both senstive areas. Use the products there for at least three or...
  24. ravenwoodglass
    I'm so sorry. Hugs and prayers heading your way.
  25. ravenwoodglass
    I think lots will chime in on this one. Celiac does seriously effect our teeth in a great many cases. Many of us also have hair loss. Some due to nutrient deficincies and some due to autoimmune factors. One thing I found helpful, other than avoiding gluten in my shampoos and such, was a good 'hair' vitamin. The one I take is by country life and is called...
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