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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by ravenwoodglass
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ARCHIVED Liver Cause Of Celiac Did Anyone See This Site?!
ravenwoodglass replied to Webcrystal's topic in Coping with Celiac Disease
Thank you -
ARCHIVED Lost The Vision In My Right Eye!
ravenwoodglass replied to iluvfupa's topic in Related Issues & Disorders
I am so sorry this has happened. It must be so hard to be couped up. I wanted to mention something about your meds and the expense, you could try calling the manufacturor of the drug and tell them that your doctor thinks it is the best one for you but that you may need to switch to a different drug because of the cost. Sometimes they will 'donate' drugs... -
ARCHIVED Aphthous Ulcer + Celiac
ravenwoodglass replied to sillyyak's topic in Related Issues & Disorders
Yes, I have but my DD got them much worse. They covered her tonsils. These went away gluten-free for both of us. -
ARCHIVED Liver Cause Of Celiac Did Anyone See This Site?!
ravenwoodglass replied to Webcrystal's topic in Coping with Celiac Disease
I just want to add one more thing about liver 'stones' they do not appear to exist. I have done searches on every medical web site I know of and the only things coming up in searches are companies that are pushing liver cleansing. If anyone knows of a actual medical site that has info on them I would be interested to see the links. -
ARCHIVED Undigested Capsules
ravenwoodglass replied to lindalee's topic in Coping with Celiac Disease
Most likely it was because you had been glutened. They didn't remain in your intestines long enouh to dissolve. In addition some time release products have capsules that have microscopic holes through which the medication is delivered at a slower rate. The capsules themselves are designed to dissolve slowly and if something like a glutening speeds up their... -
ARCHIVED Anyone Know What This Could Be?
ravenwoodglass replied to Phila's topic in Related Issues & Disorders
Yes hyperpigmentation can appear with other disorders and can also be totally benign. What concerns me is what you are describing as hyperpigmentation isn't. Hyperpigmentation causes darker blotches to appear. What they call the 'mask of pregnacy' is one example. The age spots we get on our hands are another example of hyperpigmentation. I am very... -
ARCHIVED What In The World Now...help
ravenwoodglass replied to Ashley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
You need to call the company for any OTC product but especially for tummy ones. Sometimes I wonder if they know about the delayed reactions for gluten and put it in on purpose so we keep needing their meds. I used to take Immodium liquid as a preventitive every day. Now I wonder how much extra damage the gluten in that did. To help with the... -
ARCHIVED Iso Of Safe Ice Cream!
ravenwoodglass replied to nicki2222's topic in Gluten-Free Foods, Products, Shopping & Medications
Perry's Ice Cream clearly labels their gluten free ice creams. The Death by Chocolate is aptly named, sooo good. -
ARCHIVED Nickel Allergy
ravenwoodglass replied to Fiddle-Faddle's topic in Related Issues & Disorders
I have this allergy also. I also have DH. The allergy makes a great excuse to always buy top line jewelry -
ARCHIVED Obscure Noises, Burning
ravenwoodglass replied to Lister's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Lister all Delmonte fruits and veggies are gluten-free. This includes the ones with jello and they may make applesauce as well. If you can't find Motts look for an applesauce that is just apples and call the company to make sure. Most should be gluten-free if they don't have 'flavorings' added. -
ARCHIVED Liver Cause Of Celiac Did Anyone See This Site?!
ravenwoodglass replied to Webcrystal's topic in Coping with Celiac Disease
I agree completely. -
ARCHIVED Feeling 50% Or Less
ravenwoodglass replied to chick2ba's topic in Coping with Celiac Disease
It can be a bit of a long haul for some of us. Have you cut out dairy? Have you checked all your toiletries and shampoos, soaps etc? Have you been able to degluten your living quarters or do you share your kitchen with gluten eaters? It can take a long time to ferret out all the sources of CC,everything from household glues and paint and craft supplies... -
ARCHIVED Sad And Angry
ravenwoodglass replied to Byte Me's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
"11 days ago, when I had my colonoscopy and egd, OF COURSE the first thing out of the GI's mouth is "oh, its probably ONLY IRRITABLE BOWEL SYNROME" !!!! Sure enough, I got my results, negative biopsies on everything, some inflamation and irritation in my colon, and a positive WBC count on fluid samples they took (what does that even mean?? the Dr. claims... -
ARCHIVED Elisa/act Test
ravenwoodglass replied to Mamato2boys's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
You may not like my answer but you should know the bad possibilities. I had this test and it was covered by my insurance. In fact I had this test 3 times at different hospitals. I came back negative each time. I was in full blown celiac at the time. Have you tried the diet with him to see if it helps? None of the doctors, GI, Neuro, rheumy, GP suggested... -
Hi and welcome to the boards, I am so sorry you are having to go through this. I agree with asking the surgeon, demand he check everything. I would also ask if someone can bring you food from home. The inflammation from a glutening is not condusive to quick healing. Perhaps a freind or relative or even someone from a visiting nurse service or your church...
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ARCHIVED Celiac Disease, Mental Health, Quality Of Life And Physical Activity Research Study
ravenwoodglass replied to lisabarella's topic in Related Issues & Disorders
This sounds like an interesting study. Are you looking at both dietary compliant and non-compliant? Just curious. Wish I lived closer but don't think you want to fly me across the country -
ARCHIVED Liver Cause Of Celiac Did Anyone See This Site?!
ravenwoodglass replied to Webcrystal's topic in Coping with Celiac Disease
I think your choice of the name Merlin was quite appropriate. It would take quite a feat of magic to 'reset' our genetic code. You are of course entitled to your opinion on these things, and they may of course benefit some. But anyone who tried to sell me on anything by saying it will change the genes that my ancestors worked so hard to pass down to me... -
ARCHIVED Fading More Each Day
ravenwoodglass replied to Lister's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
As long as it's not Imodium liquid, I just heard it wasn't gluten-free. I lived off the stuff for years. -
ARCHIVED Liver Cause Of Celiac Did Anyone See This Site?!
ravenwoodglass replied to Webcrystal's topic in Coping with Celiac Disease
The response seen in celiac is not solely a digestive response. The absorption of this 'poison' actually begins by contact with mucous membranes. It begins to be absorbed in the mouth or even in the nasal cavities. This is the reason so many of us can't bake gluten breads and baked goods no matter how careful we are. Also many celiacs by the time they... -
ARCHIVED Newly Gluten Free With ?'s
ravenwoodglass replied to AshleyE's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yes, your body is trying to tell you to stop using gluten topically. It is also very easy to accidentally ingest a bit. You also need to make sure your shampoos and other hair products are gluten-free. -
ARCHIVED Ketchup And Vanilla
ravenwoodglass replied to Fiddle-Faddle's topic in Gluten-Free Foods, Products, Shopping & Medications
Although I know I'm not supposed to I react to grain alcohols and vinagers. McCormick Vanilla is made with alcohol that is derived from corn and the Heinz Company has ketchup that has corn vinager also. I stick with them. -
ARCHIVED Brain Fog?
ravenwoodglass replied to Super Bellybutton's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
The amount of time that 'brain fog' lasts is very individual. Now that I am gluten free it only last a few days when I get glutened by accident. Eggs are also full of B vitamins, if my memory serves me it has been a long time since my last nutrition class, the B vitamins will also help the brain fog lift. -
ARCHIVED Cooking With Gluten For Others
ravenwoodglass replied to Kaycee's topic in Coping with Celiac Disease
I have a 'sneaky' suggestion. I use Gluten-Free pantry's French Bread and Pizza mix. While it is a pain to spread as all our 'doughs' are it cooks up and tastes like pizza. It is soft and chewy and even non-gluten-free folks can't tell the difference as long as they don't see you make it. I always loved thick crust deep dish pizza and had missed it so... -
ARCHIVED Growth Hormone Shots
ravenwoodglass replied to oneqtrceliac's topic in Parents, Friends and Loved Ones of Celiacs
You could ask your doctor or an endocrinologist. From my understanding from a growth standpoint it is too late for my DS to benefit from this because his growth plates have fused. I don't know if it is ever given to help someone gain weight or if it would even work for that. My DS and I used gluten-free protein powders and lots of chocolate Instant Breakfast... -
ARCHIVED I Guess This Is From Gluten?
ravenwoodglass replied to CMCM's topic in Coping with Celiac Disease
Yea, it usually takes a couple of days for the D to hit for me and I have awful stomach pain and nausea until it does.