grey
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by grey
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ARCHIVED So All Of My Blood Work Came Back Perfect,
grey replied to ami27's topic in Coping with Celiac Disease
So your B12 was fine as well as your Celiac panel? Stress does add to everything, but that doesn't mean you aren't sick TOO. And malabsorption can cause depression & anxiety. My first celiac test several years ago showed nothing (I did have a b12 deficiency) and I didn't even know the doctor was testing me for it with this blood test this time when... -
I've been thinking about this too - I just ended a seven-year relationship in March (my dx was in May). I'm with you in trying to figure out how celiac and symptoms will fit into an already stressing experience. I'm going to try an online service, and I hope that the online chat aspect will lead to a natural moment to have celiac come up over time before...
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ARCHIVED I Guess I Should Be Tested...or?
grey replied to Kottemamman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Kottemamman, I've been flat out told I was a hypochondriac by doctors, or just depressed. I would definately write EVERYTHING down. Food diary and everything else - even if it seems completely minor, because you are probably used to it. I'm on a daily preventative for migraines, with a triptan for breakthroughs, and was already eating a trigger-avoidance... -
ARCHIVED I Guess I Should Be Tested...or?
grey replied to Kottemamman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi, I had a bad B12 deficiency for years that got progressively worse, even with supplementation by injection. When I was first tested for celiac four or five years ago, my ttg was negative - no antibodies, but very low B12. I was tested again this May, positive ttg and biopsy with total villous atrophy-definately Celiac! It's been there all along, I just... -
tcat, Thank you for the references - I will check them out. I am in Beloit, where there isn't much in the way of resources and I need to drive either towards Madison or Milwaukee (I think Waukesha is that way) for most things. My insurance is pretty flexible, so I will see what they might cover. darlindeb, Thank you for the link and the reference....
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ARCHIVED Symptoms Of Lactose Intolerance
grey replied to little d's topic in Food Intolerance & Leaky Gut
I've been trying to do some research on these, but I'm not finding an answer. Are there tests for casein intolerance or lactose intolerance? Should celiacs maybe get these? thanks. -
My stomach seems hyper-sensitive; I assume it calms down a little eventually. I was just thinking though about how amazing it is that I never noticed that food bothered me. How could I not have noticed? rsm & sfm;s post made me think about this some more - I used to think I pretty much had an iron stomach with the exception of crab and avoiding certain...
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What a shock! I really don't understand doctors. Pink dreams, did this happen in a college health center, by any chance? Or through a referral? When I was in grad school, I was diagnosed with migraines by a neurologist; nobody told me, nor did they treat them. It wasn't til I got a real doctor several years later and I was having a headache/neck pain...
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Hi Cici, I mainly just wanted to offer support as I'm a newly diagnosed celiac & going through this too & finding it harder than I thought. Go slow and be gentle on yourself. I tried to go crazy at first, making interesting things from cookbooks, but my system isn't ready for them yet. I'm ok w/ a bread from Whole Foods (rice flour), but I tried...
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THANK YOU both so much for replying - it's been really hard. I don't know what I would do without this forum. It really helps me feel less crazy and alone. On Friday, the gi office called and tried to give me info about diabetes and argued with me at first when I said I didn't have diabetes!! I hoping to find a celiac specialist or doctor with LOTS...
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So I went in to see my GI today. I had my biopsy last week - total villous atrophy, etc. Positive bloodwork. Serious b12 deficiency for at least 5 years (I give myself weekly shots), nearly non-existent ferritin. I have classic celiac clinical presentation - I've lost now 42 lbs., all the gastro symptoms, all the neuro., migraines, fatigue. Chronic joint...
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Hi Chloe! There are a lot of new people on the boards and I can't believe how welcoming everyone has been, answering questions (again and again, I imagine) and being supportive. I'm ok with most of the kinds of food, but I'm still dealing with 1) that I can't just go to a restaurant on the spur of the moment, or get a snack in a coffeeshop anymore and 2...
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Lister, "starting to think more and more that maybe my friends/family/ 1 of my docs is right and im just crazy and im able to make myself sick with my miind or something" Don't let people convince you that it's only in your head - there're not living in your body - YOU are and you know if something's not right. I made this mistake and gave up and let people...
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ARCHIVED Please Please Please Please Help
grey replied to Chris E's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Don't let anyone tell you it's all in your head. I did let my doctors, and I think rheumatologists are often especially bad, tell me I was just "depressed" or "stressed" and it would all get better on its own. I let my family and friends convince me I was really just kind of a hypchondriac with an 'occasional' migraine. You know your body better than anybody... -
What about single serving cans of tuna & those packets of mayo or mustard, pepper, etc.? Just mix in a bowl, or eat on a sandwich or bun. A jar of pb is, imho, never a mistake - you'll never starve. And can't we eat the Wendy's baked potato? How about bringing gluten-free tamari sauce and crushed almonds to put on it? Also, most gas stations quickie...
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Hi all, I live alone, so I have the luxury of making my kitchen entirely gluten-free, which I realize is not the norm for most people. It sounds like that will make things a lot easier once I figure things out more in terms of accidental cross-contamination. Right now, however, I'm confused about what needs to be done in my kitchen because most of the...
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Argh! I never even thought about household cleaners. But *of course* dish soap! And I don't have a dishwasher even. I just checked the bottle and the ingredients mean nothing to me yet. Is there a list somewhere that y'all could point to? Mine is Ultra Palmolive zesty lemon antibacterial. Palmolive is closed today, of course. thanks for all the help...
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Hi Kat, I love sashimi, and I ran across this discussion from 2005 on these boards during a bout of insomnia & bookmarked it. It looks really helpful & is REALLY detailed. Open Original Shared Link Good luck and post how it goes.
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I've definately gotten the feeling that family and friends think I'm being overly paranoid. But I think that they're also still coping with the diagnosis and the unexpectedness of it. They knew I was sick but I don't think they thought I would even diagnosed with something (nor did I). Secretly, I suspect some of my family members thought I was a hypochondriac...
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Hi, I was just confirmed to have celiac last week after blood tests & biopsy and am just going gluten-free too (started thurs). I've tried the Mesa Sunrise cereal and I LOVED it. I tried making quinoa flakes as a warm cereal this morning (miss my oatmeal!), with a pinch of salt and some brown sugar, but it came out with the consistency & taste...
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ARCHIVED Facial Splotching, Paleness, Puffiness
grey posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was just reading glutenfreegirl's blog (Open Original Shared Link), and she's talking about spotting a woman on the street and identifying her to her partner as a celiac by her "splotchy-red face, the pasty-white skin around it, the puffy look, the sleepy eyes." She talks about pictures of herself before she went gluten-free with these characteristics.... -
ARCHIVED I'm Done With Amy's
grey replied to Piccolo's topic in Gluten-Free Foods, Products, Shopping & Medications
The Amy's web site says: "Amy -
ARCHIVED Northeast Illinois/ Southeast Wisconsin
grey replied to pnltbox27's topic in Gluten-Free Restaurants
I'm in the same area as you, but very newly dx'd. I'm not secure enough to do this (it may be a while!), but Annamaria's in Beloit is a very friendly (and family-friendly) neighborhood-Italian place. (They make their own pasta ... maybe they'd make some rice pasta???). Anyway, they've always been open to all kinds of special orders and they have good... -
I like to run in the early evening, after work and before dinner. It's my favorite time because I can shake off the stress of the day and unlock the muscles and joints a bit and get my breath going again. During the day, there's little time for me and a lot of rushing and demands on my attention (true for most of us, no matter what we do these days!); running...
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ARCHIVED Endoscopy And Biospy Result
grey replied to grey's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
j_mommy - Thanks for the book references -I had one but not the other - I was too impatient for Amazon & went to Borders instead! My results came back today and confirmed the celiac: Complete loss of villous architecture, crypt hyperplasia, active chronic inflammation, and intraepithelial lymphocyctosis. They also did a biopsy of my esophagus...