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EBsMom

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Latest Celiac Disease News & Research:

Everything posted by EBsMom

  1. EBsMom
    I read these posts with interest. My 12 year old ds is a 3,3 (7,7.) His symptoms to date have been mostly neurological - brain fog so severe that he seems to have transient learning problems; he has very mild GI stuff. Have either of you had any neuro involvement? Rho
  2. EBsMom
    I "borrowed" this recipe from a friend, but I consider to be mine as well now, because I make it so much. It's the easiest recipe ever. Put boneless chicken breasts in a crock pot, pour in a jar of salsa (or two) and cook on low for 6 or so hours. When you're ready for dinner, shred the chicken and you have intstant filling for chicken tacos. My kids...
  3. EBsMom
    I didn't know that I had a problem with gluten. I went gluten-free to support my dd (who had obvious and severe GI symptoms) and then when I cheated for a whole week (on vacation) I got SICK! I was very surprised. That's when I started investigating gluten as a culprit in my own health. I have some very subtle symptoms that have gone away on the gluten...
  4. EBsMom
    Goldy, this is OT, but Nature's Path makes a cereal called "Crispy Rice" that is gluten free. You could make Rice Crispy Squares from that. Rho
  5. EBsMom
    "Knock it off" was my first response when I read your message, but unfortunately, it's not the appoach that's likely to help him. I agree with others who say that there's probably more going on with him than being upset about yours and your son's celiac disease. Maybe he doesn't even know what's really bothering him. The other part of your post that struck...
  6. EBsMom
    It appears as though you have the DQ2 (a celiac gene) and DQ5 (a/k/a DQ1, subtype 5.) The DQ1 is not one of the main genes predisposing to celiac disease, but many here have it (or have 2.) Enterolab calls DQ1 a "gluten sensitivity" gene. There is no "range" for gene results. They just tell you which 2 copies you have, as above. Rho
  7. EBsMom
    I'm glad you have some answers! Good luck getting started with the diet. We're in month 4 and it's starting to seem like second nature now! :-) Rho
  8. EBsMom
    I had understood that the casein intolerance is a cross sensitivity, provoked by the autoimmune response to gluten (the structure of casein is very similar to the structure of the gluten proteins.) I don't know if it's logical, but I'm hoping that when the autoimmune response is essentially quieted (after strict adherence to a gluten-free diet for a period...
  9. EBsMom
    Of all the books I mentioned, the "Dummies" book would help the most. Danna Korn (author) is the mom of a celiac kid. I think she also has another book about raising a celiac kid....but I haven't read that one. I was just talking to someone about gluten-free lunches and snacks - I'll throw a few ideas out there. gluten-free bagel/cream cheese sandwich...
  10. EBsMom
    I liked that book. She was so upbeat and "can do" about living gluten-free. That said, I'm not sure that all of what she proposes is practical or doable....but I still enjoyed reading it. The other books I've read are "Living Gluten Free for Dummies" - that's a great "primer" about going gluten-free. I read "Dangerous Grains" - eye opening; The Gluten...
  11. EBsMom
    There's no casein in whey? We've been avoiding it. Hmmm...... Rho
  12. EBsMom
    I'm so sorry! Poor kiddo (and poor mom!) Yes, I think it's very common to react more strongly to gluten after being gluten-free for a while. You read about that reaction on this forum often, and I've seen it with my dd (nearly 10) and experienced it myself. It certainly is possible that your son could develop a secondary intolerance, but I don't think...
  13. EBsMom
    Sorry, but that's not right. I took this quote right from the Enterolab site. "In this regard, it seems that in having DQ2 or DQ3 subtype 8 (or simply DQ8) are the two main HLA-DQ genes that account for the villous atrophy accompanying gluten sensitivity (in America, 90% of celiacs have DQ2 [a more Northern European Caucasian gene], and 9% have DQ8...
  14. EBsMom
    I think I'm the lone dissenter. I do correct people, if they're people I care enough about to feel that they really need to understand. I've had a couple of friends call it an "allergy." My response was "It's not an allergy. It's an autoimmune disease, and if it's not treated it can lead to diabetes, rheumatoid arthritis, thyroid dysfunction, anemia,...
  15. EBsMom
    What about trying weight lifting? I've been doing free weights at home and am absolutely THRILLED with the new muscle definition that I have (okay, it's pretty subtle still, but *I* can see it, lol!) There's something very empowering to me about getting stronger, too. I've done cardio stuff for years, but the weights are a new thing. Working out is better...
  16. EBsMom
    Hi Jess....you *would* think that grandparents would want their grandchildren healthy, but some weird issues seem to get in the way of that with this diagnosis/diet. I've had major confrontations with both my f-i-l (about testing) and my m-i-l (about the whole shebang.) I offered to buy "Living Gluten Free for Dummies" for my m-i-l, so that she could learn...
  17. EBsMom
    You've got several good responses to choose from, but I just wanted to give a supportive shout of indignation! That sounds like something my m-i-l would do, under the guise of "helping." That's the kind of help we can do without! Kudos to your daughter, for choosing what makes her feel best and taking care of her self! Have a wonderful party, with those...
  18. EBsMom
    That really is a tough question! My dd was gluten free before we realized what the testing process was all about. I was so thrilled to see her feeling better that I said "NO WAY" to putting her back on gluten to pursue an official celiac disease diagnosis. She had an overwhelmingly positive dietary response to eliminating gluten, and later, dairy, and...
  19. EBsMom
    Well....I'm not Irish, but when we visited Ireland a couple of months ago, a lot of guys (and gals) in the pubs were drinking Bulmers, which is a hard cider. I liked it a lot and am very glad to have discovered it....if I ever visit Ireland again, it's what I'll be drinking (in pubs, anyway.) It's better (less sweet and fruity) than any hard cider I've had...
  20. EBsMom
    You could definitely have other food intolerances. It seems that most of us do, at least in the beginning. My dd was the first of our family to go gluten-free - she had the most severe symptoms - and she's now the one with the most intolerances. About a week into her gluten-free diet, she had a bad day (reflux came back with a vengeance, lots of gas, stomach...
  21. EBsMom
    I've been reading extensively, books and online, for the last 3 months, trying to understand the scope of gluten intolerance. I've finally come to the conclusion that it's not completely understandable at this point in time. The medical establishment doesn't fully understand it. The academic community doesn't fully understand it. That leaves us, the poor...
  22. EBsMom
    What other disorder, with symptoms similar to celiac, would cause a positive blood test? I've heard the "other disorder" phrase bandied about a lot, with no specifics. In my reading, I haven't come up with any other conditions that would 1) cause symptoms that could be mistake for celiac disease, 2) cause positive bloodwork results (esp. tTg and Ema), and...
  23. EBsMom
    Sigh....I feel your pain. It's the same with my in-laws. (Luckily, my mom and brother understand and are supportive. In fact, my mom read some of my books and is now trying a gluten-free diet, as she has several health issues which suggest that she also has a gluten intolerance.) I ended up having a loud confrontation with my in-laws. It's not the way...
  24. EBsMom
    LOL! That's the same in our family. My f-i-l is a walking laundry list of celiac symptoms and he's the one who refuses to talk or think about it the most vehemently. Denial, indeed! Rho
  25. EBsMom
    Ack! If someone said that to me, I think I'd launch into a very graphic and detailed description of how gluten damages my intestines - to refute the psychosomatic assertion. What an incredibly rude thing for someone to say!!!! I don't know why people are so blase about the health of others. It does get easier each time I have to "defend" our diet. ...
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