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Latest Celiac Disease News & Research:
Everything posted by Darn210
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ARCHIVED Son's Upcoming Blood Draw
Darn210 replied to Darn210's topic in Parents, Friends and Loved Ones of Celiacs
Well, I put it off as long as I could . . . so today we went in. My husband asked how it went. I said about like what you would expect. But what would he expect? I don't think he's ever taken them for shots before. I asked my pediatrician to recommend a lab/phlebotomist and for a prescription for the ELMA cream. She happily obliged . . . SHE knows... -
ARCHIVED New To The Gluten Free Life - Help
Darn210 replied to Trenten's Mommy's topic in Parents, Friends and Loved Ones of Celiacs
Oops . . . it has to be Log Cabin Country Kitchen. Aunt Jemima is OK, too. -
ARCHIVED New To The Gluten Free Life - Help
Darn210 replied to Trenten's Mommy's topic in Parents, Friends and Loved Ones of Celiacs
One of your best bets is to get familiar with the brands that list their gluten. Kraft is a huge one since they make so many products. This website has a good list of those companies. You may want to make a copy of the list to have handy in your purse or car at least for a while. Open Original Shared Link A lot of mainstream items are gluten... -
ARCHIVED Kraft Mac & Cheese Topping (the Blue Can)
Darn210 replied to Fiddle-Faddle's topic in Gluten-Free Recipes & Cooking Tips
I think it tastes like the stuff in the box. And my daughter is extremely happy with it. I know that I paid less than $1.60 for the can. By the time that you add you're shipping, you may be getting up there a bit. Do you have any Wal-Marts nearby that you can check? That's where most people have found them (here and on at least one other thread that... -
ARCHIVED Feel Like I Am Going To Lose It!
Darn210 replied to Mickide's topic in Coping with Celiac Disease
I know it's easier said than done, but for awhile, your trips to the store may take you awhile and if you don't have to take your kids with you, it will be a lot easier on you. I was going to the grocery store about every other day after my husband got home from work. I was reading labels and figuring out what I wanted to google when I got back home. I... -
ARCHIVED Answers For Celiac Baking Newbies
Darn210 replied to imsohungry's topic in Gluten-Free Recipes & Cooking Tips
Sweet rice flour is NOT rice flour with sugar added. (I was actually told that at a Wild Oats). It is also called glutinous rice flour but that means sticky and not a bad gluten for Celiacs. I have only found it asian markets. Shop asian markets for some of your flours and starches - they are much cheaper - I paid 69 cents/pound for my rice flours... -
Another option would be to use crushed kinnikinnick k-kritter cookies or midel's arrowroot cookies to give more of a shortbread type crust.
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ARCHIVED Fast Food French Fries...is Anywhere Safe?
Darn210 replied to taweavmo3's topic in Parents, Friends and Loved Ones of Celiacs
I've been told by somebody that has done this . . . Cheeseburger in Paradise will pan fry some fries for you since they don't have a dedicated fryer. Once again, this is not a fast food place, but might be worth asking at some of the other (non fast food) restaurants. -
ARCHIVED Kraft Mac & Cheese Topping (the Blue Can)
Darn210 replied to Fiddle-Faddle's topic in Gluten-Free Recipes & Cooking Tips
I haven't made it all the way through a can, yet. Although, I do have two cans open . I am going to guess that I will get 5 or 6 meals out of it but that's because I'm not making as much as I would have if I was making the original blue box. The kids only ate about 1/2 to 2/3 of a box. Their dad would finish it off so it "wouldn't go to waste" . ... -
ARCHIVED What Do You Think?
Darn210 replied to angayla17's topic in Parents, Friends and Loved Ones of Celiacs
Nope, symptoms don't matter. My daughter's only symptom was acid reflux and they aren't sure that was from the Celiac disease - probably more likely from her Gastroparesis. Don't change his diet until you are ready - If his blood test comes back positive, they will probably want to do an endoscopy and he should still be on gluten at that time. Of course... -
ARCHIVED Cow Milk And Soy
Darn210 replied to breadless in wonderland's topic in Coping with Celiac Disease
Melmak5 is right, the intestinal area that is damaged is the same area that processes lactose. Since lactose intolerance can have similar symptoms to celiac disease, you might not be able to tell if you are doing a good job of going gluten-free. My daughter was virtually asymptomatic. She had the OK to take a lactaid pill with any dairy for the first two... -
ARCHIVED Kraft Mac & Cheese Topping (the Blue Can)
Darn210 replied to Fiddle-Faddle's topic in Gluten-Free Recipes & Cooking Tips
Oh . . . and I found it the blue can at Wal-Mart with the parmesean cheese. One Wal-Mart was a super Wal-Mart and the other was not. I also have found that not ALL super Wal-Marts carry it. -
ARCHIVED Kraft Mac & Cheese Topping (the Blue Can)
Darn210 replied to Fiddle-Faddle's topic in Gluten-Free Recipes & Cooking Tips
Cruelshoes, I thought about doing the same as you but I was worried about cc. My daughter is asymptomatic so I would have no feed back on if I was glutening her or not. Fiddle-Faddle, this isn't going to be the kind of answer you are looking for, but I just throw a little butter in with the drained pasta (I never used as much as the original box said... -
ARCHIVED Modified Food Starch
Darn210 replied to kalikohl's topic in Gluten-Free Foods, Products, Shopping & Medications
The dietician that we went to said that the only modified food starch we needed to worry about was from wheat. In other words it's not made from barley, rye, or oats. She said if you can tell that they are using the new labeling laws (calling out some other allergen like milk or soy or something) then its OK (of course, assuming it did not call out wheat... -
ARCHIVED Allergies And Reactions, Help!
Darn210 replied to NaomiL's topic in Parents, Friends and Loved Ones of Celiacs
My friend's son was alergic to wheat, dairy, egg, peanut, and something else - might have been soy. They did extensive testing when he was three (originally thought he had Celiac). He's now 7 and the only alergy left is peanut. She gave me a cookbook when my daughter was diagnosed called The Food Allergy News Cookbook (from the Food Allergy Network... -
ARCHIVED Where To Find "the Trouble That Jack Has"?
Darn210 replied to dandelionmom's topic in Parents, Friends and Loved Ones of Celiacs
This is what I found: "The Trouble That Jack Had" Written by Jane & Diane Pintavalle Supposedly, you can get it through the Friends of Celiac Disease (out of Milwaukee) for a donation. A little information was listed here: Open Original Shared Link However, the link to their website did not work for me. I did not try the phone number. ... -
ARCHIVED First Appt With The Gi
Darn210 replied to dandelionmom's topic in Parents, Friends and Loved Ones of Celiacs
At our first GI appointment, we talked symptoms, scheduled the endoscopy and discussed what they were going to look for. We were expecting the endoscopy based on a conversation with the pediatrician. The doc gave us his top three guesses as to what was going on - Celiac was not one of them. Her symptoms were acid reflux that got better but did not go away... -
ARCHIVED First Appt With The Gi
Darn210 replied to dandelionmom's topic in Parents, Friends and Loved Ones of Celiacs
Can you give us a little info as to where you are in the process? No testing but symptoms? Have you had a positive blood test and looking to see if they want to do a biopsy? -
ARCHIVED Daughter Will Not Eat
Darn210 replied to kbdy's topic in Parents, Friends and Loved Ones of Celiacs
When you say that she's been doing this for 2 weeks, I'm going to assume that you've been going gluten free for two weeks . . . She may be having trouble with milk - lots of celiacs do until they have had a chance to heal. My daughter took a lactaid pill (they have chewable versions) whenever she had dairy for about two months after starting gluten... -
ARCHIVED Emotional Iissues Over "being Different"
Darn210 replied to pinktroll's topic in Parents, Friends and Loved Ones of Celiacs
My 6 year said to me the other day that she was "special" because she has Celiac disease. She chose the word, not me, but I thought that was a nice way to put it instead of "different". We also talked about some of the other things that make her special! I don't want her disease to define her. I try to have something with me that I can whip out when... -
ARCHIVED Gluten Free Pantry
Darn210 replied to angel-jd1's topic in Gluten-Free Foods, Products, Shopping & Medications
Check the regular Wal-Marts, too!! I didn't find it at the two super Wal-Marts that I went to but the GFP mixes were at the regular Wal-Mart in with the other baking mixes. -
Kelly, First of all, thank you and God Bless. Second, I think most of us are at a loss as to how to help/advise you. What can your chain of command and mess sargent do for you? Can they lay in shelf stable items(canned goods) for your use only. There was a discussion not too long ago about how to prepare for an evacuation and there were suggestions...
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ARCHIVED What Is Cheaper
Darn210 replied to Crystalkd's topic in Gluten-Free Foods, Products, Shopping & Medications
The Asian markets/stores are probably the best place to get some of your flours. I got white rice flour and sweet rice flour (also called glutinous flour - don't let the name scare you, it's OK) for 69 cents/pound. I also found corn flour there and had not found it anyplace else. I do a fair amount of baking/cooking WITHOUT the mixes and the flours that... -
ARCHIVED New And Need Help
Darn210 replied to JenniferLeeds's topic in Parents, Friends and Loved Ones of Celiacs
Just so we can give you a little better help . . .what other allergens are you trying to avoid? Also, what did he like to eat before - so we can try to help you with a gluten-free equivalent or recipe? -
ARCHIVED Hi! We're New.
Darn210 replied to Allene's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Welcome, And just wanted to add - we were told to get rid of our old cutting board (even though it wasn't wood).